Hi ladies. well I am out of hospital, It all started 2 weeks ago when I spent the entire night vomiting. Next morning I decided it was time to go to emergency, so my husband and I went, We were seen to fairly quickly (45 mins) and i old the doctor why I was there, and he looked up all my medical records before he started, the first thing I was given was a blood test followed by an tube inserted into my you know where! (this was for the 5 days constipation!) l wasalso given something for my sickness then I had to follow the footprints to the x-ray department, then to return to the waiting room till I was called, Well you can imagine, the loos were the next place i visited (luckily there were some in the waiting room) then the waiting began, (I know it was a weekend, and they had minimum staff , but 5 hours!) then I was called, came away with a prescription for laxitives. not a good day, we came home and I just went to bed, slept all night but on Sunday I vomited again twice, so stayed in bed, Monday I thought things can only get better. when I started to try and eat or drink, I had an awful time trying to get anything down, it felt like everything was getting stuck and was causing pain in my chest. This went on all Monday, then Tuesday I was sick again still couldn't get anything down, Wednesday the same as was Thursday, so Friday we decided to go back to emergency. I was told by the doctor that it was all cancer related and to see my oncologist, My husband was getting worried now as I was becoming de-hidrated. as my appointment with the oncologist wasn't for 2 weeks we set about getting a sooner one which was on the Monday. Well Monday came and saw oncologist who immediatly got me a bed and so I entered the hospital system. (room to my self)I was put on IV glucose, then food 2 x 200 mls this went on all week, Wednesday I had endoscopy, that proved clear, Friday I had scan with contrast, (drinking a thick substance swallowing all the time, not pleasant).results clear!!!!. now home and still having a problem eating and drinking, I do have nutricion drinks to take 3 times a day . I was told it will slowly get better and that he is sending his report to the oncologist as he thinks it is the caelyx that is affecting me and is asking for my chemo to be changed.
I think that must be the longest post I have ever put up, hope you didn't fall asleep reading it, just felt I needed to write it. Hugs to every one who need one xxx Jeanette
Oh Jeanette , you have been through a ghastly nightmare .
We all respond so differently to each regime .
Caelyx gave me a dreadful rash , and I was taken off it after round two .
Struggled with 2nd try at Carboplatin ( kept going into shock ) so forced Cisplatin in for a second time ...ultraslow , week after week ....and that helped .
You must be feeling so weak and tired , I really feel for you .
You will get over this and there will be a plan , I am sure .
Hi Jeannette, you poor thing what a nightmare you have been through. I am glad your test all came back clear.
I have had 5 treatments of Caelyx the side effect I have had are mouth ulcers, itchy painful spots, diarrhoea, vomiting,trouble swallowing, giddiness & hot flushes. It sounds bad but nothing like what you have been through. I have found Caelyx more bearable than any of the other chemos I have been on. I was so ill on other chemo I spent time in hospital & my daughter in law had to care for me not much fun for her.
It could be the Caelyx it can makes it hard to swallow & that in turn can bring on vomiting. Instead of coming off of Caelyx what about reducing it. If its working for you. Hope you are feeling better soon. Take care Cindyxx
Hi Jeanette, yes sadly that is another side effect. I hope you have been given something for it if not this is the items I am on:
Difflam oral rinse, Antacid & oxetacaine oral suspension, Antepsin & over the counter, Anbesol, Bonjela & iglu. I didn't get on with the iglu very well it's very gritty & I almost choked on it. Also effervescent pain killers.I also went on a strew & drunk plenty.
I wouldn't put up with this for too long because you need to eat. Go see your GP & if you don't have any of the above ask for some.
I hope you can get over this soon please keep us up dated take care Cindyxx
Wow!!! You have had a terrible time!!!!! It's good to hear that it is not more cancer. I hope you are now on the mend and will be feeling better very soon. Kim xx
Dear Jeanette - that sounds like a really horrible time you have had and you just wish someone could figure out what is causing all this. I am due for 5th carbo caelyx soon but haven't had the same reaction as you, just really tired and prone to constipation. Trying to balance the remedies for the side effects isn't easy but hoping you are feeling better now and able to eat a bit. Do take care and rest, thinking of you.
Jeanette, you poor thing. Sounds horrendous! I want to give you a big hug. Really hope you're feeling a little better & managing to eat & keep things down xxx
Blimey what a rotten time you've had, 🤞🏻 Your body starts to behave itself soon. If it is the caelyx then another plan of action is needed, you can't go through all that again. Poor hubby, it's so hard for them isn't it when they can't fix us? I hope things start 'moving' very soon and you feel much better. Bloody disease 😡 Big hugs and love ❤️Xx Jane
The most terrifying time for me was the ascites, the vomiting and the not eating, so I know how it feels.
I hope you are feeling a bit better now, I can't comment on the caelyx since I have no experience of it,but just hope you are getting the help you need,
Ah Jeanette I'm only just catching up with things on here and I'm so sorry to hear you've been having such a tough time! I'm glad your Oncologist properly got the ball rolling but shame it took so damn long! I hope by now you are at least feeling a little brighter? Thinking of you Hun xx
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Treatment 2 done now.
Shave and a haircut...2 bits!
Oh hell give me a break.
been back to newcastle today
3rd line treatment in less than 2 years!
