Letrozole

[HelsW1]

Hi, I just wondered if anyone out there is also on Letrozole?

I had the chemo/ debulking/chemo route and 4 months later it was back, so another round of 6 chemo and then onto Letrozole. I started letrozole August 2014 with a CA125 of 20 and this has slowly risen to June 2015 CA125 of 44. So I will be having a whole year without chemo which is amazing. I just wondered how long other people have been on the drug, any side effects and their thoughts on its effectiveness.

For me I get achy joints and fatigue but who doesn't!

[goinggaga]

I was on Letrozole after 2nd line treatment but it didn't work for me. Just completed third line treatment so down to Dorset and Devon tomorrow for 10 days Scan booked for 13th July and Onc on 22nd July. Booked a week in Madeira in August too.....pack it in now treatment finished My CA 125 wasin the 50's after second line treatment but remained much the same on Letrozole but I was symptomatic so had to convince the Oncologist there was an issue. Ordered a scan and hey ho 3rd line treatment

Hope Letrozole works for you and keeps you in remission!

Love Wendy xx

[5gems]

Hi. I have been on letrzole for almost 4.5 moths now and back in the middle of May when I was just short of having been on it for 3 moths, it appeared that though the disease had grown a little in some areas, it had shrunk in others and my CA125 had come down a little.

It was decided that I should not go back on chemo and really just wait and see. If any new symptoms occur or the little pain I have increases I have to get in touch with the onc dept. I am due back at clinic the end of August.

I have little or no side effects though the fatigue and aches I get sometimes may be Side effects or just due to the disease in general.

I have had 1st line chemo only and never really had NED. I finished first line in the middle of Oct 2014.

Hope it works for you. Let me know how you go with it,

jacqui