Anyone with Primary Peritoneal Cancer? Or know ... - My Ovacome

My Ovacome

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Anyone with Primary Peritoneal Cancer? Or know anyone?

9 Replies

Peritoneal

Cancer

Ascites

Frozen pelvis

Ileostomy

Read more about...
9 Replies
Elft63 profile image
Elft63

Hi Jessica 28 , I have primary peritoneal cancer , I was diagnosed last may . Any help or questions you have I will try to help if I can , love Elaine

Hi Jessica,

There are quite a few members on this forum with PPC ....The treatment is the same as ovarian Cancer. ......Best wishes love x G x

Dyana profile image
Dyana

Hi ,

I had PPC , chemo , surgery and more chemo . Lots of ascities at the beginning . Finished chemo in Jan 2013 . Pm me if you want to know the details. Lots of people on here with PPC .... Dyxxx

Woody64 profile image
Woody64 in reply to Dyana

Hi Dyana, just been diagnosed with oc with secondaries waiting for news re treatment if any had 7 litres of fluid drained from my stomach. Was quite upbeat about it all but now quite depressed. Is there any hope for me?

Sue

Dyana profile image
Dyana in reply to Woody64

Well I had high grade stage 3c PPC , 13 litres of ascities , spread to bowels , appendix , on liver , in all lymph nodes , etc and after treatment I'm clear at the moment so YES , lots of hope. Plenty of women on here have had similar stories to me . Why don't you give Ruth the specialist nurse at Ovacome a call , she would I'm sure help you , hang on in there , xxx

I have PPC as one of the hangers on in my life x

in reply to

By the way .. Welcome. I've forgotten my manners! It's now thought that many women who are diagnosed with PPC and Ovarian actually have Fallopian Tube Cancer. There is more evidence for this theory for high grade. The cancer causing cells spill out into the abdomen. The 3 conditions are in many ways, interchangeable. X x

Daughter123 profile image
Daughter123

My mum has ppc,diagnosed march2012.im willing to share her info with you.interesting re Fallopian tube.donna

iamstillme profile image
iamstillme

Hi Jessica x there are many of us here with pic . I was diagnosed in 2012 . Had one year clear and now just finished chemo for first recurrence x hope you find this site helpful as it is a great support

Ally x

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