MsLizD

[MsLizD]

Tonight not a good night. Onc phoned around 9pm to tell me results of scan. Seems like 2nd lot of treatment not working, cancer spreading. Now in pelvic region and on surface of liver. Feeling tearful scared and very much alone at home. Someone tell me how to cope.

[Hidden]

So sorry you have had to hear this news. Do you have an appointment soon where you can discuss what the next steps are? Presumably they will change your drugs.

Coping is so difficult at these times. All you can do is take things one small step at a time.

Hope you manage to get some sleep.

Monique x

[MsLizD in reply to Hidden]

Thank you Monique. I have an apt next week. At the moment it's just dealing with the emotions. Probably best that I am on my own.

Liz x

[Hidden]

Hi Liz,

I am sorry about the news you have just had, especially as you are going through this alone,

we all share with you this worry, and this feeling of isolation, waiting for your appointment is difficult, I hope your oncologist as got a plan for you, meanwhile I shall pray for you that God will show you His love and His Peace and that He will carry this burden for you.

Sending you my very best wishes love and prayers x G x

[MsLizD]

thank you Gwyn x

[Hidden]

9pm on a Friday night is not the best of times to get such news.

It will be a very long weekend.

Do you have anything to distract you?

[MsLizD in reply to Hidden]

Well yes I have my sons and friends but probably like we all know its the times we are alone and not able to stop I wanted thoughts entering our heads but I guess we carry on with hope x

[Hidden]

Hi Liz

Sending you (( hugs )) to help you cope...I'm sure you need lots of support to get you through tonight...lot's of love and I'll be saying a prayer for you also.

Love Luanna xx

[MsLizD in reply to Hidden]

Thank you x

[Sunfleury-UK]

Hi Liz, so sorry to read your news- I shall be thinking of you and wishing you strength xxx

[Fernanda]

Oh, Liz, it's such a shocking new to receive alone... But you will always receive support here in the blog. We're here to hear you and send you good energies.

Hope you can find some comfort to wait until the appointment next week.

Love and hugs,

Fernanda

[charlie12]

Hi Liz

I am so so sorry that you have got this news and my heart just goes out to you. There surely are other treatments you can try. Please if you are up for it try to get some exercise outside this weekend and even though you might not feel like it spend some time with other people.

Take care of yourself

Charlie xxx

[Keli]

Hi liz, so sorry to hear your bad news. God wishing you strength at this time. I think night time always is such a bad time for news. Big hugs for you and you have a great support system from the ladies here. Love keli xx

[MargaretJ]

Hard for you Liz! Why the hell did the onc phone at 9PM. Coping is something we all have to find our own way to. I hope that you find yours! Meanwhile I am sending you positive thoughts.

M

[Hidden]

Oh dear, am so sorry to hear this. Wish there was more we could do than offer moral support... I hope you got through what must have been a disturbed night OK. I disagree, I think you should try to be with people this weekend if you can, are there any non-pressuring friends or relatives you could visit?

Love

Sue xxx

[Hidden]

Hi Liz,

Very hard news to get particularly alone at the beginning of the weekend- don't know why they didn't leave it and tell you next week.

Hope you are ok and there is someone you can talk to.

Anne x

[Hidden]

Sorry you had to hear this way. My reaction would have been to ask the onc what he was doing at the weekend, in the hope that s/he realised that call had ruined yours.

Hope the consultation brings better news and some hope.

Cx

[jennybutler]

That was so thoughtless giving you this news at 9pm whats he on? with the whole weekend ahead to think the worst.Dont think the worst there are lots of things that will work.I too have had my cancer spread to around my liver and stomach and as my last post said they have all shrunk back I am on Paxi/taxol and carboplatin,I wont give up hope ever and you must not they will just change your chemo. to one that will work.Chin up MsLizd thinking of you. love Jennyxxx

[Dyana]

Hi , thinking about you and feeling really angry that you received the news in this way, on a Fri night by yourself! Sure options will be available , and hoping that you can manage not to worry too much . Love dy

[MsLizD]

Thank you so much for your kind words it means so much. I know I am not alone. Strangely I did sleep ok but back in the real world on waking. I am seeing my sons today and friends this eve and tomorrow so I will get through.

Onc was insensitive fortunately I had a referral to mars den who are prepared to take me on and did have several suggestions for further treatment. Last eve it all seemed so hopeless, today well my positive ness is going to return. Thank you again for all messages x x x

[Whippit]

Dear Liz

I'm really sorry to read you have been treated so insensitively by your oncologist. There's really no point in having rung you late on a Friday night and I'm appalled this has happened. Sometimes even if they do have results like that it's best to judge when is best to share it.

It sounds hopeful that you have a referral to the Royal Marsden as they have such a broad experience there and I'm sure will have encountered this situation before. What chemotherapy did you have this second time round? I've been told there are always alternatives to try. Different women respond to different drugs.

I hope you can get together with your family for support this weekend. Do you have a date for your referral to the RM. I always feel better when I have a plan in mind. Last night you had nothing. Let's hope you get news quickly.

Sending my love. You're certainly not alone.

love Annie xxx

[MsLizD]

Thank you so much. 2nd time around Abraxann 1st time topotecan, carboplatin and taxol caused an allergic reaction

[Sebbie]

Hope you manage to enjoy the company and hopefully a bit of sun this weekend . Thinking of you . Xxx

[Madz]

Hope that you have some sunshine where you are this morning to help warm you up and give you a bit of bounce back. Difficult news is difficult whenever it comes and the key is hope - as that is always there and I'm sending you loads more in a big virtual hug

Love Amanda xxx

[ArwenP]

Hi Liz, bad news I am really sorry about that but after you sleep you can recover a little bit. When happen to me I try to focus on things I can enjoy and share. Also probbaly asking for a second opinion could be an option. In an case, a BIG HUG for you. TAke care and a lot of love and support, Pilar

[iamstillme]

Hi liz sorry to hear your news . There are so many treatment options and I am sure you will get one that works for you. What an insensitive way to tell you

Ally xx

[drdu]

Thinking of you. Keep positive. There is always hope.

Lots of love,

Eileen xxx

[Fitzy]

So sorry to hear your news. Hope your family give you lots of support over the weekend, which will help boost your spirits. Then off to the RM and get sorted with further treatment!!

Lots of love and hugs

Colette xxxxxxxxx

[TinaWright]

Hi Liz,

What an awful blow and so close to bed time when you are at home all alone.

No time would be a good time but 9pm, oh boy!

I really don`t know what to say - I just wish I had a magic wand to make all of this stop for you.

How to cope - I am clueless, to find oneself in this situation is so, so cruel.

I think just do whatever you feel is right for YOU right now. But don`t feel as though you have to be too brave, let the feelings out if you need to and we are always around when you want to lash out in anger, cry with emotion or just chat about your own personal feelings. I think all of those things may help. Sometimes its better therapy to chat on here rather than our closest and dearest although that is important too, if they can deal with it. I do know that many of the ladies on here do understand, for the moment I can`t even begin to imagine what you are going through.

Love sent

Tina xxxx

[citrine]

Dear Liz

So sorry to hear this and doubly sorry that you got the news so late on a Friday night. Can't think why anyone would do that to you. Hope there will be better news to come.

Lots of love and massive hugs

Mary xx

[MsLizD]

Oh thank you each and every one, your words and understanding is so comforting. X x

[Hidden]

How are you doing Liz? Was thinking of you yesterday. Still cannot believe the onc thought that call was a good idea, and v glad to read that you will be under the RM going forward!

Where in the country are you? Wondering if any of us know support group near you. Or whether you are near any of the Maggies centres maggiescentres.co.uk/centre.... Or whether it might be worth you asking for a Macmillan buddy to chat to. It's that being on your own thing .... It's not good. Your sons will no doubt be great but there are some things you just won't want to discuss, I suspect you will also do the strong Mum brave face thing too...

I fought tooth and nail against even joining in on here, am so NOT a groupy person. Was surprised at this one, and it has since extended into the real world. Groups aren't for commiseration and mutual weeping, it turns out...

Love

Sue xxx

[Aurelie]

Hello Liz - I'm a little late in seeing your post as still finding my way around the site, but would like to add my good wishes and support.

I can only say that your oncologists appalling behaviour beggars belief and I'm so glad that you've been referred to the Royal Marsden - things can only improve, so please take heart and try to have positive thoughts.

Jill xx