I’ve had a bad 6 week’s multiple skin infections after my rtx infusion then an almighty flare and peripheral neuropathy raging. Walking impossible. Rang my clinic left message to ring back. A nurse rang back I can’t see any senior nurse as they have left my rheumatologist has also left and there is no replacement. They have different locums coming in . When I asked if I could see on who was actually a rheumatologist I was told they are trying their best…. Really doesn’t bode well. So effectively I have no care.
One of my sons came back from canada. He had been diagnosed with ADHD over there with great care. He can’t get his meds on the nhs unless seen by a nhs psychiatrist . There is a 2 year waiting list minimum. He is now in a shocking mess with no support form the nhs . I eventually found a decent private psychiatrist but jumping through hoops to get certain tests by his Gp. There is light at the end of the tunnel but it’s a different medication just waiting for the final bits to fall into place. So far this has taken 8 weeks. He is trying desperately to keep his job but he is struggling.
Next hubby had an elevated heart rate on Wednesday morning while working in Scotland. He didn’t tell me and drove home 🤯🤯🤯🤯 we will leave it there!! I rang an ambulance as soon as he walked in the door.. a7 hr wait for an ambulance. I took him to A&E . We were seen quickly but no beds or heart monitors available. He has an iPhone watch and they were monitoring on that on and off. He was eventually moved to resus staff lovely but they had no stores of equipment and were running round to different departments trying to find blood sample bottles etc . Eventually saw a doctor. Meds given but heart rate up and down . I went home then they moved him to a chair in the internal A&E . Again no monitor so he had to find a nurse to say heart rate elevated. No food or drinks for anyone in this area . He was there for 16 hours other patients longer. Nurse that was in resus came back on duty and saw hubby and said why are you still here. Looked at his watch and demanded someone attend him . He said I’m very thirsty. When she found out none of them had any food or drinks there was hell to pay. Back in resus more meds then told he would be discharged with meds and a prescription. moved to the main A&E area with all the … nutters my husbands quote. He was given a prescription but no meds as they didn’t have any. While he was waiting for discharge papers I rang several pharmacies and none stocked these meds eventually found out it was taken off the market in February. Heart rate went sky high again before I told him and back in resus . Eventually got a bed In ambulatory he has been moved 3 times keeps missing meals . We are trying to get him home with meds but he only saw a doctor for the second time this morning so won’t hold our breath. I’m at breaking point with the nhs as are the nursing staff most of which are agency nurses . More money less hours less responsibilities but at the patients cost.
Rant over I’m bloody knackered.
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J1707-
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That's what I call a complete and utter nightmare!!! So sorry to hear all this J and really hope everything improves soon for you all, it's no wonder you're bloody knackered!!
Can’t believe what I’ve just read on your post. No wonder you’re on the ceiling! Am afraid it all sounds too familiar these days - the NHS all round is on its knees as are its patients and no prospect of improvement, certainly not with the present health secretary et al in charge.
Can only send you every best wish that having hit rock bottom the only way can be up and all of you get the help and treatment you need as soon as possible. X
Thanks felt like a third world country . Hubby in same hospital in feb and care was outstanding very efficient. I asked what happened to staff … elections on the way budgets suspended and most medical equipment made in Europe because of Brexit we are at the bottom of the list . Government not recruiting any staff from abroad … no hope I’m afraid
This sounds a complete nightmare for you and your husband. I do hope you get sorted soon. All this stress is so detrimental to our health. Wish I could do something to help but can only send my good wishes
OMG what a nightmare - hope you get some resolutions soon. It's about time the very highly paid CEOs and other backroom staff woke up to what is happening because a lot of money is going down the drain.
Couldn’t agree more. They were painting the hospital yet they are due to love to a new site early next year and the land has been sold to developers who are knocking it down 🤷
You poor things. That is unacceptable. I hope you all get the treatment you need and have paid for over the years. This country is going to the dogs. It is very worrying indeed. Get well soon.
Rant away, sounds absolutely shocking, what hope is there when we can’t even cover the basics like providing patients with food and drink. Sending a big hug to you all this morning. 🤗
It's vile my brother had a big arrest at home neighbor tried is best is best to resuscitate him waited 40 minutes for a ambulance he wasn't so lucky died 3 weeks ago on Wednesday gone. Your post as triggered me . My hubby cousin has been in for 5 months waiting funding they had a meeting last week and wait for it 25 people from management were all sat at this meeting. It's a absolute sham what's going on.
Sending huge virtual hugs for you , your son and your husband. What a horrendous sequence of events. I don’t have the words to say how sorry I feel for you.
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How long to stay off drugs for RA? 
Off topic...when you're husband breaks down because he isn't coping. 😪
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