Need Good Rheumatologist (For Palindromic Arthritis) Recommendations

[ImSonia]

I think my last post might have been a little long.

Recommendations desperately needed please! .... If you are a. P.A. sufferer, with a good Rheumatologist, (especially if you are based in or around London), and your Rheumatologist has: A) Heard of (or is treating your) Palindromic Arthritis, and B) Is basically great! ... I'd love to know your Rheumatologist's name and their Clinic/Practice location.

My local Hospital Rheumo Team have never heard of it (one said it doesn't exist!), and have a long list of complaints about them online, and in my last encounter, they discharged me on the first appointment, in 6 minutes, with a diagnosis of being "Fat, Old, And Frumpy".

I'm currently bed-bound, since Sunday night, in absolute agony, yet again, and I don't want this kind of life anymore. There has to be a better way of living. I'm only 47.

As long as my GP is unhelpful, and refusing to refer me to anyone at all - I have to find another way to get taken seriously, by going privately initially (already taken out a Bank Loan to do this), and then hopefully getting referred back into the NHS, by the Private Rheumatologist, who hopefully works in the NHS too.

So if you can recommend your own sympathetic, and understanding Rheumatologist, for me to possibly look into contacting, (the helplines weirdly, say that they don't keep lists of recommended Rheumo's "for legal reasons" - when other Organisations for other conditions, do), I'd be very very grateful.

Thanks in advance.

[rmros]

I don't have PA but Professor Patrick Kiely is a good all-rounder and will certainly know about it. He has a private clinic in SW London and works in the NHS in SW London.

[AgedCrone]

I was diagnosed with Palidromic Arthritis at UCL many years ago where there is an excellent rheumatology department.

But with all illnesses it depends on the doctor patient relationship doesn’t it,& with PA there are so many outcomes.

Maybe somebody here has experience of that hospital these days.

[Tillie20]

professor Margaret Callan C/W hosptal