Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,416 members•21,200 posts

All posts for April 2024

Thankful for another day!

Thankful that I feel good today! I appreciate everyone's comments on my last post. One thing that I didn't do in the beginning of my diagnosis was to quit...

Thankful that I feel good today! I appreciate everyone's comments on my last po...

drumbugg

•6 months ago

10 Replies

DMT's

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and taking tecfidera. Found another neuro (script writer). I am 62 and still on it....

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and tak...

Birdloverforever

•6 months ago

6 Replies

New to the community

Hi. I just joined the community today. I was diagnosed in the early 2000's after having optic neuritis twice. My neurologist thinks I had MS since at least...

Hi. I just joined the community today. I was diagnosed in the early 2000's aft...

jezebellydancer

•6 months ago

18 Replies

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Renee

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when I had symptoms which were worse than the first time. I have loss the use of...

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when...

Renms-1950

•7 months ago

9 Replies

new symptoms

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I guess 2 years is good. But I think I’m experiencing a relapse now. I have had...

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I...

KissMyGrits

•7 months ago

7 Replies

hello there

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult life. I love my family and I’m fortunate to live right next to them. My daughter...

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult li...

HeilbronnerMaedel

•7 months ago

25 Replies

Hello there

Me name is Gabi and I’ve had to MS for most of my childhood. I’ve had

HeilbronnerMaedel

•7 months ago

4 Replies

Kesimpta and IVIG?

I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy?...

I have had many infections over the last 4 months. I have been on Kesimpta for 2...

pihokken

•7 months ago

7 Replies

Fatigued!

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan to be more productive. I just get so tired! I try to eat well, exercise as much...

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan ...

drumbugg

•7 months ago

26 Replies

Age and therapies

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to my age. I was doing good on it with no side effects except a migraine right...

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to m...

Mom4JS

•7 months ago

19 Replies

Driving

Has anyoine ever had their car modified for hand controls for braking and accellerating? How much was the cost?

Has anyoine ever had their car modified for hand controls for braking and accell...

whwiechm

•7 months ago

13 Replies

It has been a long weekend.

Yesterday we laid Bills remains to rest by his family. It was a good service even brought some family members we hadn't seen in 5 or 6 years. Today we went...

Yesterday we laid Bills remains to rest by his family. It was a good service e...

kycmary

•7 months ago

13 Replies

Octave Blood test

https://multiplesclerosisnewstoday.com/news-posts/2023/09/06/octaves-ms-blood-test-accurately-captures-disease-activity-study/#:~:text=Octave’s%20MS%20disease%2

https://multiplesclerosisnewstoday.com/news-posts/2023/09/06/octaves-ms-blood-te...

MaryAZ

•7 months ago

7 Replies

Convinced I have MS but diagnosed with something else

Hi, At age 27 I went to the neurologist after having strange symptoms for about a year. I immediately thought I had MS. However, the doctors think I have...

Hi, At age 27 I went to the neurologist after having strange symptoms for about...

Frenchfryqueen

•7 months ago

21 Replies

End of MRI Access Fund

Hi All, OMG: I was told yesterday that MSAA's MRI Access Fund is no longer available. Although I have Medicare, getting the financial assistance with...

Hi All, OMG: I was told yesterday that MSAA's MRI Access Fund is no longer av...

donna0329

•7 months ago

9 Replies

Testing for MS and MRI differences

Hello folks I’m a 34 year old female actually based in the UK but I figure this will tally across most countries. I currently being referred to neurologist...

Hello folks I’m a 34 year old female actually based in the UK but I figure this...

Chaucer89

•7 months ago

33 Replies

A Glimpse Inside – The Power of Imaging Biomarkers

This article provides terrific details and insights into what information MRIs can provide for our physicians and for all of us with MS....

This article provides terrific details and insights into what information MRIs c...

BettysMom

•7 months ago

3 Replies

I am still here.

The last 5 days seems like a never ending merry go round ride. It is coming together slowly & by the grace of God! I know where my darling is ... he is in...

The last 5 days seems like a never ending merry go round ride. It is coming toge...

kycmary

•7 months ago

16 Replies

Newest edition of The Motivator!

The latest edition of MSAA's magazine, The Motivator, is here! Featuring a follow-up to our previous cover story, this issue provides additional details on...

The latest edition of MSAA's magazine, The Motivator, is here! Featuring a fo...

DanaMSAA

Partner•7 months ago

1 Reply

Foralumab found to ease fatigue in SPMS patients in access program

Fully 70% of patients with nonactive secondary progressive multiple sclerosis (SPMS) who received foralumab nasal spray in an expanded access program (EAP)...

Fully 70% of patients with nonactive secondary progressive multiple sclerosis (S...

BettysMom

•7 months ago

4 Replies

head pain

What’s thus !! base of head aches migraine. Eyes hurt , weak all over and lethargic cannot move about my muscles spasms . Is it a relapse it’s been 3 weeks...

What’s thus !! base of head aches migraine. Eyes hurt , weak all over and leth...

309Ygi

•7 months ago

9 Replies

Infusion

Here I am for my second four hour infusion this week. I get two infusions in one week every month. The Ig is needed to keep my immune system in check so I...

Here I am for my second four hour infusion this week. I get two infusions in one...

robster1

•7 months ago

6 Replies

Update and Adventure Buddy!

Just an update, and frustration vent (pardon me for venting, but not many places I can do that!) I've been, over the last month, slowly getting worse. Neuro...

Just an update, and frustration vent (pardon me for venting, but not many places...

MSFlea

•7 months ago

37 Replies

Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis

Small study suggested benefits for MS patients with chronic optic neuropathy...

BettysMom

•7 months ago

3 Replies

MIA for 3 years!

Hello folks! Just wanted to do a restart from three years ago. The last 3 to 4 years are very blurry. I’m much better now. Other than my Ig infusion twice a...

Hello folks! Just wanted to do a restart from three years ago. The last 3 to 4 ...

robster1

•7 months ago

19 Replies

The Mighty!

I started reading this on line. It talks about Chronic Illness and ways to make things easier I am no longer bending down to get my dishwashing gloves. They...

I started reading this on line. It talks about Chronic Illness and ways to make...

lbenmaor

•7 months ago

4 Replies

Weather 🤷‍♂️

Good Morning everyone hope everyone is doing well and staying positive 🙏 The injections in my neck are helping thank god. Haven’t fallen for a month now so...

Good Morning everyone hope everyone is doing well and staying positive 🙏 The in...

Kenu

•7 months ago

11 Replies

Got my lycra 😁

Yesterday, 22/04/2023 at 10:00am BST, I got to wear my lycra!!! Got the socks, shorts, and vest top! Had my husband with me, because he took an "emergency" day...

Yesterday, 22/04/2023 at 10:00am BST, I got to wear my lycra!!! Got the socks, s...

Cwright170994

•7 months ago

22 Replies

Multiple Sclerosis Predicted by Autoantibody Signature

A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples...

A specific autoantibody signature was seen in a subset of people with multiple s...

BettysMom

•7 months ago

7 Replies

My Cionic Neural Sleeve Review

I bought a Cionic Neural Sleeve last December. Absolutely love it. I just published a box opening and review video on YouTube. If you are interested the...

I bought a Cionic Neural Sleeve last December. Absolutely love it. I just publ...

irhunter

•7 months ago

16 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for April 2024

Thankful for another day!

DMT's

New to the community

Renee

new symptoms

hello there

Hello there

Kesimpta and IVIG?

Fatigued!

Age and therapies

Driving

It has been a long weekend.

Octave Blood test

Convinced I have MS but diagnosed with something else

End of MRI Access Fund

Testing for MS and MRI differences

A Glimpse Inside – The Power of Imaging Biomarkers

I am still here.

Newest edition of The Motivator!

Foralumab found to ease fatigue in SPMS patients in access program

head pain

Infusion

Update and Adventure Buddy!

Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis

MIA for 3 years!

The Mighty!

Weather 🤷‍♂️

Got my lycra 😁

Multiple Sclerosis Predicted by Autoantibody Signature

My Cionic Neural Sleeve Review

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