What do you guys think?: I just found this... - My MSAA Community

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What do you guys think?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’19 Replies

I just found this, and wanted to know what ya'll thought... Is it accuate for a fatigue scale? Inquiring minds want to know! Ok mine, cause lm curious🀣

πŸ€—πŸ’•πŸŒ πŸŽ„

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Jesmcd2 profile image
Jesmcd2
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19 Replies
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DM0329 profile image
DM0329

Love It! πŸ™‚πŸ‘β€οΈπŸ˜½

carolek572 profile image
carolek572CommunityAmbassador

When I had COVID about 2 months ago (Has it been that long?), I was at Level 5 for about 10 days, Jesmcd2 I am much better now. πŸ™ƒ

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tocarolek572

I am sooooo glad to hear that! πŸ€—πŸ’•πŸŒ πŸŽ„

twooldcrows profile image
twooldcrows

wow ...can't figure out what i am for none are all the same ,parts are ...hahhahahahahah...

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

Maybe we need our own chart? πŸ€”πŸ€—πŸ’•πŸŒ πŸŽ„

DM0329 profile image
DM0329

Today, I've had TWO huuuge cups of coffee, while I took half (100 mg) of Provigil at noon. Tis the season for doing too much! LEVEL THREE

Happy Holidays! πŸ˜‚πŸŽ„πŸŽ…πŸ™βœ¨

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toDM0329

You are nuts! No more caffen for you! πŸ€£πŸ€£πŸ€—πŸ’•πŸŒ πŸŽ„

DM0329 profile image
DM0329β€’ in reply toJesmcd2

HAHAHA I can't quit my coffee. It's the "MS Modafinil and/or Provigil that I only "break out" if I am actually "doing something" like going out in public in the evening (I shower the day before, I've learned) or working on a project, etc.

Due to the MS fatigue and cognitive dysfunction I quit working full time at age 45 (dx at age 26, tx at age 29-present). Staying on a DMT has helped me greatly, for that I am certain.

But, MS is a progressive neurodegenerative disease. Now at age 56, I have bladder/bowel issues, balance issues, etc. MS is the "gift that keeps on giving" right? πŸ€£πŸ˜πŸ˜±πŸ‘Ž

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toDM0329

You are so not lying! It gives and gives and gives some moreπŸ€£πŸ™πŸ˜πŸ€—πŸ’•πŸŒ 

Peruzzot profile image
Peruzzot

Love it! Although I've long forgotten what it's like to be at level 0 or 1. A good day starts at level 2.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toPeruzzot

Understood! πŸ™‚πŸ€—πŸ’•πŸŒ πŸŽ„

goatgal profile image
goatgal

I'm at level 2 most days. On a good weather day (no rain, no wind, temp about 72) I can be at 1 for a few hours...until I foolishly attempt to do too much, then the rest of that day, I'll be at 3 or 4. But still glad I mucked out the goats or cleaned the chicken coop.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply togoatgal

Thats my temp to! 🀣 Its the perfect temp! Any variation lm doomedπŸ™πŸ€—πŸ’•πŸŒ πŸŽ„

Robsmom profile image
Robsmom

I think it's quite accurate. I stay around level 2 also, but if I get to level 5, it's for days and nothing gets done.

NorasMom profile image
NorasMom

I'd have to say I'm at level 3 most days, but every now and then I can be level 2 for a couple hours. Can I borrow someone's Level 1 for tomorrow? I'm planning a major shopping trip to 4 stores, and I already know I'm going to fade out before we leave the first store. 😬

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toNorasMom

I went to 3 places today, my 1 is gone till feb. 2024, 2 is being replaced with 3 at the moment. You can have a 4 or 5 tho? πŸ€£πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

NorasMom profile image
NorasMomβ€’ in reply toJesmcd2

Gee, thanks. You're such a big help in my hour of need. πŸ€ͺ

Elizt3 profile image
Elizt3

if it level 1, I’m not sure I want to carry-on with all normal activities. Might need to beware, so it doesn’t move to a more serious level.

mrsmike9 profile image
mrsmike9

I think it's pretty accurate! I generally fluctuate during a day.

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