Official SPMS Dx on March 14, 2023. No active lesions on MRIs, only scars of past activity. iPhone tracking an avg of 2300 steps and just over a mile a day. Lots of falls, even with walking sticks.
Started daily 600 mg Alpha Lipoic Acid, 2000mg omega 3 and a couple d3 a week. 2mg daily Mayzent started in May.
Today…. Avg 6900 steps a day with 3.3 miles walking. Rarely fall, maybe twice in last month due to tripping on hose or twine. Trying not to use trek poles at all but have them just in case.
What’s next?
Google “PNAS ReBUILD Results”. Re mylienization from a “robust” response with the drug Clemastine! Soooo…
I showed the report to my GP . I have had bad allergies my whole life. Constantly dealing with nasal drip. Clemastine is approved for allergies…. Yup, my doc agreed and prescribed it. True, 2.68 daily is a lot less that10 mg BUT…. It’s better than nothing!
The Blood Test That Could Improve Your MS Prognosis
Feeling Frustrated and Upset
Anyone else loving life?
Maybe MS Please give oppinion am worried
