The Life We Face With Progressive MS - My MSAA Community

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The Life We Face With Progressive MS

2468642 profile image
12 Replies

Before we get the MS diagnosis, we know something is wrong with our bodies but don’t have the answers so we face confusion and fear of the unknown.

Then we get our diagnosis which validates how we have been feeling since it is often invisible to others. This provides a small amount of relief to us but doesn’t remove the fear of the unknown future.

Then after a few years of episodes, medications (LOTS of medications), reactions to medications, insurance issues, financial issues, employment issues, intimacy issues, etc.

Now we believe that we are veterans of the MS world. Then, reality hits us as some functions are taken away from us and some major obstacles are thrown in our way.

The trick to successfully riding this challenging wave of unknown changes is to remember what is most important in life;

knowledge family

friends

mental & physical toughness

belief in ourselves spirituality and of course, a sense of humor.

Remember, we’re not alone so ask/allow others for help when you need it. Push yourself to do what can - and push harder to accomplish what you don’t think you can. Take any resentment towards what you no longer have and push that aside.

Yesterday may have been great, but today and tomorrow are unwritten and can be even more amazing!

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2468642
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12 Replies
jimeka profile image
jimeka

Well said and well written 👍

Kenu profile image
Kenu

👍good post! Right on the money👍 Ken 🐾🐾🐾🐾

starlight5 profile image
starlight5

Thank you.

leking1 profile image
leking1

Well said.....I'll have to print it out so I can read it again tomorrow. I know I'll forget it if I don't. Thank you....

Cutefreckles72 profile image
Cutefreckles72

Great post and thank you for the encouragement. 👍

mrsmike profile image
mrsmike

Great words of wisdom. Thank you!

twooldcrows profile image
twooldcrows

i love what you wrote....can be very helpful for the new ones to know we all have gone thru and we are still plugging along and doing what we like to do may be different but as long as you can laugh along the way ....love and happiness....

JSSimp profile image
JSSimp

Beautiful written🙏🏾

Midsomer1 profile image
Midsomer1

Beautiful post. Thanks

Doubled51 profile image
Doubled51

Very well written.

palomino27 profile image
palomino27

All so true!

Spirituality is the key. It's the one thing the MS cannot touch, unless one let's it. And, sometimes it will and that is ok....as long as it's transitory and doesn't consume us.

This is the battles we can win. Over and over and over again. We are strong...stronger than most! Why did God choose us? I do not know. But everything happens for a reason. Maybe we just don't understand it yet. I pray that maybe all the suffering in this world is so that we have to suffer less in the next....but that's just my hope and prayer....

Gotta laugh stuff off in this world too!

Loved this gave me a real life today thanks with all best wishes kindest regards

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