Post 563 You are not promised anything... - My MSAA Community

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Post 563 You are not promised anything 12 Nov 2019

RoyceNewton profile image
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Perhaps that is not exactly true. "YOU" were promised upon your birth that "YOU" will die. That is about all I can think that was ever promised. Lots of treasure, an enjoyable and fulfilling life they were never promised by anybody or anything. It is up to me and "YOU" to make the best of what we have. If we do not like it, change it, to make it better Read that again and let it sink in, let it marinate and stew for a while.

"YOU" and I have Relapsing-Remitting ms (RRms). We have climbed the hill and got an answer. Not the answer we hoped for but an answer nevertheless. Ahead of us lies a distant journey. Over mountains, across meadows and down deep dark valleys. There are storms in some places and there are sunny patches. At first not many, "YOU" may not see the sun past the dark clouds that are over "YOU" now. Rest assured they are there. How quickly "YOU" reach them and how long they stay depend upon your actions and decisions. There is nowhere that"YOU" can turn to get off this path, "YOU" are on it for life. Accept this as quickly as "YOU" can and start adapting the life "YOU" thought "YOU" had to this life. There are stages of grief, find them online, print them and stick it on your wall. Look at them then look then at the most difficult subject ever, YOURSELF. Where are "YOU" on the list and what is next?

There is a lot of learning in RRms, and there is a lot of very bad information. Be wary of what "YOU" listen to and what "YOU" may allow to affect "YOU". People can be wrong and just plain mean. Try not to let yourself to be hurt to much. "YOU" will be hurt, I think most of us are. Try hard to not get to hurt.

As I said, no promises were made to "YOU". "YOU" and only "YOU" have to make a decision as to how well "YOU" are going to live the next forty, fifty, sixty, years of your life. Yes, depending on how old "YOU" were when diagnosed (Dx'd) "YOU" will have that long. I was Dx'd just before my thirtieth birthday and I have had twenty-some years with it. I anticipate another twenty or maybe even thirty years. "YOU" are going to live a very long time with RRms. Some of us will have children, long careers, sadly, divorces. All that "YOU" may have planned for "YOU" may still have, just differently. Remember no promises, so "YOU" build the best life that "YOU" possibly can and live it. Live it well, live it thoroughly and live it as best and happily as "YOU" can.

Get yourself some unbiased information read it, watch it, learn it. Dr AAron Boster is a great source o RRms information.. Health unlocked, resilience articles are great for your mental strength that "YOU" will need. I like Audible Bill Bryson books. I would suggest "The Body" never hurts to know more about it, and some knowledge will stand "YOU" in good stead. Diets will not cure "YOU", but eating healthy is a good idea, another one is exercise. Quit complaining, make it as energetic or slow as "YOU" like. Do something, move your body be kind to it even if it is not always kind to "YOU". Learn this condition, the more that "YOU" know the less likely "YOU" will be taken advantage of.

There are people out there who suggest not taking the Disease-Modifying Therapy (DMT) for whatever reason. I am NOT one of them. I do not work for anybody except myself and have no vested interest in "YOU" taking therapy. It is not going to cure "YOU", nothing is. DMT is meant to slow down disease progression. This is a progressive disease, it progresses, it can get worse. DMT slows that. Instead of having lots of lesions on your Magnetic Resonance Image (MRI) "YOU" may have fewer. If the first medicine does not work, try another, I have done three and had four neurologists(neuros) before I found one to stick with. This is RRms, there will be change, get used to it.

Nothing is promised, but why do "YOU" not change that. Make yourself a promise, to line your long RRms life as good as "YOU" can. Chasms or cliffs, make your journey a long walk through the fields. Not exactly carefree, but long and boring. Boring is very good, it should always be our goal.

Royce (the ms writer)

be smart go forth and live a boring life, I like boring

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RoyceNewton profile image
RoyceNewton
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2 Replies
CraigS profile image
CraigS

Royce,

That has to take the prize for “Longest Post”.

I’ll have to go back later to read some more (reading makes me sleep) 😁

Craig

RoyceNewton profile image
RoyceNewton in reply to CraigS

yes it was unplanned and I think it came out a little long, sorry

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