(Ocrevus) Infusion Day!!!! Thank my good... - My MSAA Community

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(Ocrevus) Infusion Day!!!! Thank my good Lord above!!!

Kellyj44 profile image
29 Replies

I hope everyone is doing well today.

Sitting here thinking of how I'm so bored, also about how lucky I am. Don't have to do this but every 6 months. I'm really blessed because I could havea different disease that could take me out so much quicker. For that I am definitely blessed. God is on my side!!!

Have a great day my new friends!! Take care!!!

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Kellyj44 profile image
Kellyj44
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29 Replies
Kenu profile image
Kenu

Good luck today with infusion 👍. Prayers are with you 🙏. 😉🐾 Ken

Kellyj44 profile image
Kellyj44 in reply toKenu

Thank you so very much!! So far so good!!

greaterexp profile image
greaterexp

I'm tickled pink for you! Will you let us know how it goes? You're in my prayers!

Kellyj44 profile image
Kellyj44 in reply togreaterexp

Thank you so very much!! I appreciate y'all!! I will let ya know. I sure hope I don't forget!! Have a great day!

greaterexp profile image
greaterexp in reply toKellyj44

Please don't expect me to remind you! Have a great day, yourself!

Kellyj44 profile image
Kellyj44 in reply togreaterexp

That's funny! I wont. Promise!! 😂

jimeka profile image
jimeka

Prayers going up, blessings coming down, Jimeka 🦋

Kellyj44 profile image
Kellyj44

Awe thank you!! Almost done!! Yeah!!!

Iona60 profile image
Iona60

Is this your first 1/2 dose?

Kellyj44 profile image
Kellyj44

No. This was my 3rd go around.

kdali profile image
kdali

What did you pack to bring with you?!

Kellyj44 profile image
Kellyj44 in reply tokdali

I'm so sorry. I've done something wrong here. My reply to you is below.

Hope ya get it. Bad with technology. Please forgive me.

kdali profile image
kdali in reply toKellyj44

😂😂😂 easy to do!

Kellyj44 profile image
Kellyj44

I've had no reactions with any of the infusions. All went well.

They start ya off with 2 Tylenol and 2 benadryls.

They give you steroids intreveniously first, last for 30 minutes. Then they start the Ocrevus. Mine lasts 5/12 to 6 hours.

All has gone well so far. No problems.

No problems or changes in symptoms either.

Good luck to you. Best wishes.

Kellyj44 profile image
Kellyj44

I only packed a couple of snacks and took my own drink. Headsets definitely for me. Music for me instead of watching TV.

They will put a pillow for your head and blanket if ya want or need one. So I didn't need to bring that stuff.

You may take whatever you may need. That would be up to you.

I only took my phone, snacks, and drink.

Good luck with everything. I hope all works out for you. Keep us informed. Thanks.

I hope I've been some help.

Kelly

kdali profile image
kdali in reply toKellyj44

I'd love to take my husband and some board games, but I don't think there will be room for all that 😂 Thank you, it is helpful!

MS_Indestructible profile image
MS_Indestructible in reply tokdali

take him with you and the board games. Should be plenty of room. The board game may be hard to do but there is usually room for some one to visit with you. You can ask your questions before you go.

kdali profile image
kdali in reply toMS_Indestructible

Card games might work 😁 Ty!

janetb1968 profile image
janetb1968

Wow! Hope it all goes well for u, im in the UK and Ocrevus is going to be allowed here in the UK just read the news. I'm having my 5th infusion of Tysabri on Friday xxx

Kellyj44 profile image
Kellyj44

Happy to hear you're getting infusion Friday. Good luck to you. How has the Tsabri been for you?

Ocrevus is good . It's just not lasting for the full 6 months.

I wish the best for you. Take care .

Elizt3 profile image
Elizt3 in reply toKellyj44

Hello, I hope your infusion goes smoothly. May I ask what you mean by “not lasting the full 6 months”? Just wondered what’s happening during the time leading up to your next infusion? Kellyj44

Kellyj44 profile image
Kellyj44 in reply toElizt3

Hi. Sorry I didn't make myself clear. Have trouble with that most if the time.

About 3-4 weeks I'm able to get the next infusion I notice my body start to act up. Muscles get weaker, leg and upper body seem to want to shake. I have absolutely no energy to do much of nothing.

That's what I meant when I said it doesn't seem to last full 6 months.

Have a good day. Take care.

Ooma profile image
Ooma

Had a neurologist who refused to prescibe Ocrevus, so I found one

who would! Couldn't be happier with results😊

Kellyj44 profile image
Kellyj44 in reply toOoma

So happy for you!! That's great!!

Yooper profile image
Yooper

Kellyj44: Praying Ocrevus helps you!! Keep the faith. God Bless 🙏

Kellyj44 profile image
Kellyj44

Thank you. Prayers are always welcomed and they work! AMEN!!!

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Kellyj44 How are you feeling since the infusion? Please keep us posted. So many times others are wondering how each of us may feel after infusion. Blessings, Lynn

Kellyj44 profile image
Kellyj44

I'm feeling better. I m so thankful for the medicine. I will continue to feel better as long as I quit pushing myself. I have a bad habit of that.

Everything went smoothly and is going well.

Thanks for asking. Have a wonderful and blessed day. Take care.

itasara profile image
itasara

I read somewhere in blogs that rituximab is the same as Ocrevus but costs less. I don’t know more about it.

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