Roaccutane

[spot]

Why do sufferers of hydradenitis suppartiva think Roaccutane is dangerous? I am newlt diagnosed

and would be glad of any advice as my GP has not said anything and what are the stages? - Spot

[sidekick]

Hi spot, it isn't just sufferers of HS that think Roaccutane is dangerous - it has some well documented adverse affects, on many systems of the body. You can see a list of these on the wikipedia page (en.wikipedia.org/wiki/Roacc...; I apologise, it doesn't make for comfortable reading, but you can see why so many people have turned it down.

As far as information about this lovely disease of ours, there are a few good online resources, including the British Association for Hidradenitis Suppurativa (ba-hs.org.uk/info.html) and the British Association of Dermatologists (bad.org.uk/site/825/Default...

I have discovered a lot of what works for some people doesn't work for others, and how people manage their condition depends largely on the location, severity and frequency of their flare ups. Personally, I have found my triggers to be largely hormonal, and I manage with a variety of things such as loose clothing, salt baths, chlorhexidine washes, courses of tetracyclic antibiotics etc etc. With varying levels of success, I have to say.

I hope that helps in some way, and I hope you find something that works for you.

[spot in reply to sidekick]

Thanks Sidekick your info on h .s., was very helpful - Spot