Has anyone ever had or knew someone with Nethertons symdrone, because very few people have this ( 1 in 200,000) I would love to know what they do to help with it and prevent breakouts. I couldsider myself lucky as I have read up on it and have found that my case is less severe than many others. But if anyone has any help/ hints I would love to know!
Nethertons Symdrone...: Has anyone ever had or knew... - MY SKIN
Nethertons Symdrone...
Gabbyeva54Volunteer
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Gabbyeva54
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3 Replies
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Hello Hermione54,
Do you reckon this is something you would be happy to talk to the press about? We're always always trying to build on our case studies who help with press work, and someone with your condition and situation would be a great addition in the effort to try and spread awareness about skin disease and what living with one entails?
What do you think? Feel free to have a read here about helping in this way: bit.ly/n8iVv1
Or you can contact me on 0207 391 6347 or bevis@britishskinfoundation.org.uk
Thanks!
Bevis (Communication's Manager at the BSF)
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