Cfs or Fibromyalgia? : I was told by one... - My Fibro Community

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Cfs or Fibromyalgia?

Bleedingcrystal profile image
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I was told by one GP in March 2020 that I had Fibromyalgia. No suggestions on what to expect or how to go forward. In July I had a very bad case of vertigo and was extremely sore and tired. I went to A&E and they did various blood tests and ecg etc. I was there most of the day. The Dr then told me I had CFS and welcomed me to my new normal. He suggested I get in touch with my home GP and take it from there. So I'm not sure which one I actually have as I seem to have symptoms from both. Lately, though, I have been extremely tired, fall asleep at the drop of a hat anytime, even caught myself dropping off while driving. With this exhaustion I have pain in nearly every part of my body. Shooting pains in my toes and fingers, my arms hurt so much that I battle to pick an empty pan up. I get brain fog where I literally garble my words sound like I'm back in kindergarten. I also have many other fibro symptoms, so I am confused about my diagnosis. Dr's don't seem to know much about it either. Thank you for taking the time to read this. Take care and have a lovely day.

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Bleedingcrystal
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Yracy profile image
Yracy

20+years ago I was first diagnosed with CFS ...Then shortly after that came the diagnosis for Fribromya... And then a diagnosis for MS.

It's all a roller coaster ride, all I can tell you is to hang on tight...

Stay strong and blessed

Bleedingcrystal profile image
Bleedingcrystal in reply to Yracy

I've come to realise about the roller coaster ride 😅 thank you so much for the encouragement it is something I needed today. Please take care of yourself

Yracy profile image
Yracy in reply to Bleedingcrystal

It's a daily battle to figure out what you can or will be able to do. There will be times when just thinking about "what to do" wears you out! Lots of prayer helps me! I have 2 Medical Alert Assist Therapeutic Service Animals which are a blessing! They not only give me "help,(they alert me to seizures)" ,they bring such joy and happiness into my life! Do your best with everything you are able to accomplish, rest, and ask your Dr. about SAVELLA...Stay strong and blessed...

Bleedingcrystal profile image
Bleedingcrystal in reply to Yracy

Thank you 🌹

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