Posts - MPN Voice | HealthUnlocked

MPN Voice

10,529 members • 14,546 posts

All posts for October 2017

Cramp!

A new symptom seems to have gatecrashed my private party of symptoms! It is an unruly guest with the impudence to wake me up at night in mega pain. Does...

A new symptom seems to have gatecrashed my private party of symptoms! It is an ...

•7 years ago

Do you suffer from aquagenic pruritis connected to PV?

Hi I have histamine intolerance ( not PV connected) and in the past aquagenic pruritis which is PV related. I've started to take black cumin seed oil ( organic...

Hi I have histamine intolerance ( not PV connected) and in the past aquagenic pr...

Volunteer•7 years ago

Support from family and friends

I wonder if some of you do not have support from family and friends and if so how you cope. I have ET - JAK2- and am being investigated for MPL, CALR and...

I wonder if some of you do not have support from family and friends and if so ho...

•7 years ago

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Just found out I have pv

Hi everyone as you can guess I am new to this site which was recommended by my consultant. I have been told I have pv with negative jak2. I have had 2...

Hi everyone as you can guess I am new to this site which was recommended by my c...

•7 years ago

PV & Venesections

Hi community, I've was diagnosed with PV about 3 years ago and have gone through many tests including a couple of sessions at Guys hospital. All tests were...

Hi community, I've was diagnosed with PV about 3 years ago and have gone through...

•7 years ago

ET and Eye Problem

This is a follow-up to an earlier post abou1-2 months ago. The consensus of the eye specialists that I have seen is that - in the absence of any other cause...

This is a follow-up to an earlier post abou1-2 months ago. The consensus of the ...

•7 years ago

Christmas cards

Hi I attended the forum in Edinburgh and purchased some xmas cards amongst other things. Is there anyway i can purchase more online? Thanks Tara x

Hi I attended the forum in Edinburgh and purchased some xmas cards amongst other...

•7 years ago

Newly diagnosed

Hi I am new to this, I have been diagnosed with myeloproliferative disorder but as yet is unclassified. I have been started on Asprin and await further...

Hi I am new to this, I have been diagnosed with myeloproliferative disorder but ...

•7 years ago

ET and Von Willibrands

Hi all, I'm freshly diagnosed ET with Jak2 +ve. Haemo decided to do BMB, ultrasound and extra bloods. BMB was fine as expected but I have really low levels on...

Hi all, I'm freshly diagnosed ET with Jak2 +ve. Haemo decided to do BMB, ultraso...

•7 years ago

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