Posts - MPN Voice | HealthUnlocked

MPN Voice

10,498 members • 14,488 posts

All posts for June 2013

Night Sweats - Update for Peeps with PV

Just like to share as people were asking a short time ago - I see my consultant today, she confirmed that night sweats and fluctuations in temperature...

Just like to share as people were asking a short time ago - I see my consult...

•11 years ago

Has anyone undergone a hip bone marrow biopsy without any sedation?

•11 years ago

Sorry, I was diagnosed with ET in 1993

Brain sometimes not helpful.

Brain sometimes not helpful.

•11 years ago

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Hello everybody,

I was diagnosed with ET in 2003, platelet count 650, JAK2 not then discovered.After 18 years only on aspirin and platelets stable at 650, the count started to...

I was diagnosed with ET in 2003, platelet count 650, JAK2 not then discovered.Af...

•11 years ago

Hiya, need some answers/ thoughts please...

Hi, diagnosed with PV 2004, on Hydroxycarbamide for 7 years now, platelets 500+ but steady. Recently on 2/3 occasions I've experienced extreme tiredness & been...

Hi, diagnosed with PV 2004, on Hydroxycarbamide for 7 years now, platelets 500+ ...

•11 years ago

Has anyone checked MPN's on the Macmillan website recently? E-mails needed to get them to update their information to W.H.O. classification

I was annoyed that such an important Cancer Charity in the UK still referred to MPN as a disease and put it under headings of Pre-cancerous conditions. An...

I was annoyed that such an important Cancer Charity in the UK still referred to ...

•11 years ago

Indegestion

Hi all, I have so many questions so apologies in advance. Does anyone suffer from really bad indegestion, pain in the left shoulder when they wake up. Ive...

Hi all, I have so many questions so apologies in advance. Does anyone suffer fr...

•11 years ago

Critical illness claim rejected.

Hi all, I have just had my critical illness claim rejected because my doctor, when filling out the form to the insurance company wrote that I had...

Hi all, I have just had my critical illness claim rejected because my doctor, wh...

•11 years ago

I have polycythemia vera. I have chronic severe pain in my tailbone. Is this common? Any suggestions for pain relief?

•11 years ago

Are there any foundations that can help with out of pocket expenses? I have insurance but copays for specialists and meds are expensive

•11 years ago

This is all a bit new to me..

Hi all, just going throught the process of being diagnosed with ET, Im 44, have high platelets, enlarged spleen and waiting on results forJak2. I was...

Hi all, just going throught the process of being diagnosed with ET, Im 44, have ...

•11 years ago

Did anyone else put on a lot of weight after starting on hydroxy

•11 years ago

what causes a high MCV in blood test

•11 years ago

Good morning. Does anyone know the reason why some say we have raised Histamine levels.

Just curious as having a dreadful time with the "itch" at the moment and have been prescribed anti-histamines?

Just curious as having a dreadful time with the "itch" at the moment and have be...

•11 years ago

High White Blood Cells

Hello to everyone. Just a question for you. My husband has PV and is currently taking hydroxycarbomide 2 every other day. After struggling with anaemia for...

Hello to everyone. Just a question for you. My husband has PV and is currently...

•11 years ago

Night sweats?

How do people experience night sweats? I have MF and every time I wake from sleep I get tremendous heat within two or three minutes. I feel I'm generating...

How do people experience night sweats? I have MF and every time I wake from sle...

•11 years ago

Unclassified Myeloproliferative Neoplasms

Has anyone else been given a diagnosis of an Unclassified Myeloproliferative Neoplasm? Originally my diagnosis was PV however was tested for JAK2 and EXON12...

Has anyone else been given a diagnosis of an Unclassified Myeloproliferative Neo...

•11 years ago

Holiday/Travel Insurance

I'm relatively newly diagnosed but am thinking of going abroad, does anyone have any experience with getting Travel Insurance that doesn't exclude PV or...

I'm relatively newly diagnosed but am thinking of going abroad, does anyone have...

•11 years ago

Has anyone else found their head hair has thinned after being on HU? And, any suggestions?

•11 years ago

TRYING TO FIGURE OUT IF ITS POLYCYTHAEMIA OR PV-UPDATE 2/7/2013

Hi all, just a quick recap, FBC done on 9/4/13 Haemoglobin 17.0 (11.5-16.0) Packed cell volume 0.51 (0.37-0.47) Basophils 0.11 10*9L (<0.1)...

Hi all, just a quick recap, FBC done on 9/4/13 Haemoglobin 17.0 (11.5-16.0) ...

•11 years ago

ILL AGAIN.

I am just getting over a another 2 day illness that has just wiped me out. Ulcerated mouth, aching joints/bones, skin rash, itching and extreme fatigue. I am...

I am just getting over a another 2 day illness that has just wiped me out. Ulcer...

•11 years ago

Anagrelide and bloating

Hi all I started anagrelide 5 weeks ago and experiencing bloating nausea & constipation/diarrhoea! After seeing haem yesterday they suggested lactase as...

Hi all I started anagrelide 5 weeks ago and experiencing bloating nausea & cons...

•11 years ago