SCT update: I’m now on day +284 & so far seem to... - MPN Voice

MPN Voice

10,524 members14,541 posts

SCT update

SRH55 profile image
8 Replies

I’m now on day +284 & so far seem to be progressing well. I know things may change, but hopefully I’ll continue to progress. I’m managing to walk most days, weather permitting, although I do get tired in the evening. My tablets are now being decreased & my hair is growing back grey & curly - not happy about the grey! I’m waiting for blood test results to see if I am still 100% donor & to check my ferritin levels & will have a BMB around the 1 year mark, the last one showed some fibrosis, but was told that was expected.

I will be forever grateful to my donor, a 26 year old female in the US.

Sending best wishes to everyone,

Shirley

Written by
SRH55 profile image
SRH55
To view profiles and participate in discussions please or .
Read more about...
8 Replies
lizzziep profile image
lizzziep

Hope you continue to improve and recover well 🙏🏻

SRH55 profile image
SRH55 in reply to lizzziep

Thanks.

ainslie profile image
ainslie

congratulations Shirley, that’s great to hear, thanks for posting the update 👍

SRH55 profile image
SRH55 in reply to ainslie

Thanks.

Cja1956 profile image
Cja1956

So glad things are going well for you. Keep it up.

SRH55 profile image
SRH55 in reply to Cja1956

Thanks.

Bullace profile image
Bullace

yes thanks for posting the update. I am very glad things seem to be going well for you. May they continue to do so. Hilary

SRH55 profile image
SRH55 in reply to Bullace

Thank you.

You may also like...

SCT update

My tablets are now being decrea& my hair is growing back grey & curly - not happy about the grey!

SCT journey update No.2

clinical nurse that they have found three very good donor matches on the registers!! Have been...

SCT update

chimerism (proportion of donor cells to my cells) is 100% so, taking one day at a time, I feel...

SCT update

chemo, only to be told there is an issue with the donor! Obviously don’t know if there’s a family...

SCT update

posted for a while. I’m now on day +89 after my SCT, recovery is taking a while but I’m managing...