More medication????: Hi, I have Jac2 ET and... - MPN Voice

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More medication????

Jennytheb profile image
8 Replies

Hi,

I have Jac2 ET and Menieres Disease, take Hydroxy, Copydogrel, Lisinopril and Betahistine Dihydrochloride.

Have been very stable with no side effects since starting Hydroxy about 9 years ago. Have moved to new area and GP suggests I need to take Lansoprazole in case of stomach bleeds.

Having looked at the side effects of this and knowing I lead a normal life now I am very reluctant to start this.

Can anyone comment please.

Many thanks, Jenny

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Jennytheb
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8 Replies
Cat1001954 profile image
Cat1001954

hi I’m on hydroxycabamide Clopidigrel and tons of other meds I take lansoprazole for acid reflux no problems at all I have triple negative ET

Jennytheb profile image
Jennytheb in reply to Cat1001954

Many thanks for replying Cat, that is some reassurance, will consider.

kevmince profile image
kevmince

For what it's worth , I've been on hydroxy and 75mg aspirin for many years for ET, (plus assorted other meds for other minor stuff) but when I turned 50 apparently the recommendation for lansoprozole is automatic because of stomach bleed risk from aspirin , I dont know if clopidogrel carries same risk . I take the smallest dose , but figured it was probably as well to have that protection after decades of aspirin use , even if it's enteric coated

summerdown profile image
summerdown in reply to kevmince

Hi. I have ET and Jak2 and take Hydroxy. I was taking a low dose aspirin but my cardiologist changed this to clopidogrel.

Jennytheb profile image
Jennytheb

Oh that's worth knowing Kevmince, thanks for your reply, I am still undecided as have no symptoms and the counter indications look a bit scary for lansoprozole.

'

Scaredy_cat profile image
Scaredy_cat in reply to Jennytheb

I've been on lansoprazole for many years. No problems at all

hunter5582 profile image
hunter5582

The decision to use a PPI as prophylaxis is a judgement call. I use esomeprazole to treat GERD. It works and I tolerate it well, but it does interfere with the absorption of some nutrients such as magnesium, Vit B/folate. If you decide it is in your best interests, you may want to do a nutritional evaluation after taking it for a while as a precaution. This is what my GI-NP recommends.

Jennytheb profile image
Jennytheb

many thanks Hunter, value your advice, think I might check with my haematologist too before I go ahead

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