Hisson: I have a son with none verbal Autism... - Mencap

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Hisson

Hissone profile image
12 Replies

I have a son with none verbal Autism challenging behaviour and severe learning difficulties. I haven't done dutyship because I wasn't sure how to fill the forms .

But because of the restrictions placed on my son who is 35yrs I sort legal aid to to get help from lawstop but they dont do legal aid for dutyship.

To cut a love story short .

My son has live in this residential home since he was 18years .In December both the manager and duty manager.

Were away .

My son was so happy during that time .

But once they came back they put so many restrictions one him that he he started attacking staff and banging his head now he is sadated and sleeps ,his behaviour had become so bad they mentioned sectioning him.

They stopped taking him out for.

I 5weeks once he was allowed out the started banging his head then they put a padlock on his snacks ,then I brought up his favorite books which were locked away.

After months of me asking for his rights I lost my cool in the meeting and my solicitor is now investigating me and blaming me for causing a bad atmosphere.

I never loss it but I couldn't take the lies

Is anyone able to help my son

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Hissone profile image
Hissone
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12 Replies
Jofisher profile image
Jofisher

Hi get yourself an independent social worker and quick and they can help you and It might be worth seeing if you can get him an independent mental capacity advocate. Also speak to carers U.K. for support it doesn’t matter if your sons in a care home mine is as well but I still access them for help and support and they can sigh post you to other things that could help you. My sons 30 very similar to your sons needs I get your frustration and a deputyship is imperative in my humble opinion they can be completed online. Good luck if you can’t find an independent social worker I have a contact for you who maybe available to help you.

Hissone profile image
Hissone in reply to Jofisher

Thank you so much

Jofisher profile image
Jofisher in reply to Hissone

Your very welcome

Hissone profile image
Hissone

My son is is funded by nhs .Social services always take meback to that .

Is there independent Social workers

BenjiB profile image
BenjiB

When NHS funded there will be a person there who is allocated to your son and acts in the same way a social worker does. They are usually mental health nurses.

Yes there are independent social workers but they are quite expensive to use but they will be able to give you advice. Your son may also benefit from having an advocate to support him.

49Twister profile image
49Twister

I totally understand you losing your cool in the meeting, it's happened to me, and as you say it was because of the bare faced lies from support staff up to managers. They refuse to accept any responsibility, saving their own skin and passing the buck, ratherthan being transparent, impartial and candid. (honest). My son is in the process of moving because of this. I have made an official complaint to Adult Social Services which is being investigated. I'm disgusted to find out the investigation is being carried out by someone in the company that supports my son. So we know how that will end up !!!!

Hissone profile image
Hissone in reply to 49Twister

Thank you for your support there is probably plenty more people in the same position

Tracidu profile image
Tracidu

Im sorry you and your son are going through this , this is just one of the worries I have about putting my son into care as he has very little speech and if everything is running smoothly he is lovely but if something is upsetting him he can show challenging behaviour , I would hate to think he was beeing treated like this just because he cant say whats upsetting him . I, like you would loose it too. I scincerly hope you get the support you definitely need . Sorry Im not much help , just showing some empathy with you and your son . My son is 38 . Best of luck to you both .

Hissone profile image
Hissone in reply to Tracidu

Thank you so much

Hissone profile image
Hissone

Thank you all for your comments and empathy

you need place where they care - find managers that care - there are better places than that

Hissone profile image
Hissone

Thank you

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