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LUPUS UK

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Prednisolone for Lupus Flare

Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530

Hello Does anyone find a short course of Prednisolone help with fatigue and joi...

Chris5530

•2 months ago

13 Replies

Cutaneous Lupus

Can anyone tell me if you have any physical symptoms with cutaneous lupus? I was diagnosed with Lupus back in 1999. I had sores on my scalp, they biopsied...

Can anyone tell me if you have any physical symptoms with cutaneous lupus? I w...

Angel767

•2 months ago

4 Replies

Had anyone tried LDN?

I've been clear of all medicine for the last couple of years. However, my latest MRI of my hands and wrists has shown lots of inflammation around the tendons...

I've been clear of all medicine for the last couple of years. However, my latest...

HealthCoachLupus

•3 months ago

13 Replies

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Questions about rituximab experience

Hello! My doctor has recommended that I try rituximab if I have another flare-up of arthritis, and it would also help my low platelets. I'm going into my third...

Hello! My doctor has recommended that I try rituximab if I have another flare-up...

poppies_are_red

•7 months ago

7 Replies

Methotrexate-induced neutropenia

Good Evening, I’ve been on methotrexate for 6 years and unlike many others I haven’t had many problems with it, until about 6 weeks ago when I had to stop...

Good Evening, I’ve been on methotrexate for 6 years and unlike many others I ha...

purple1995

•9 months ago

1 Reply

prednisolone how long before taper & stop

hi all, I’ve recently started cellcept and prednisolone having been on HCQ for 7 yrs. Lupus is now affecting my skin, heart and lungs as well as joints, fever...

hi all, I’ve recently started cellcept and prednisolone having been on HCQ for 7...

Beau2016

•9 months ago

15 Replies

7 months and still no medication...

Hello all, I got diagnosed with SLE back in October 2022 after a bad flare up and was put on hydroxychloroquine. I had an allergic reaction to it in December...

Hello all, I got diagnosed with SLE back in October 2022 after a bad flare up an...

CorlaRo

•10 months ago

8 Replies

Update - starting prednisolone & mycophenolate - any tips?

I'm hoping that this makes the beginning of the end for my 2 year long flare. Consultant has changed diagnosis back to Lupus and added POTs to diagnosis....

I'm hoping that this makes the beginning of the end for my 2 year long flare. ...

Beau2016

•10 months ago

2 Replies

hydroxy brand change symptoms

Hello everyone, I have a quick question for anyone who can help - when I was first put on hydroxychloroquine last year I was put on Zentiva and then an...

Hello everyone, I have a quick question for anyone who can help - when I was f...

Tinylittlemac

•11 months ago

5 Replies

Hydroxychloroquine side effects!!

Hi,Ive been put on hydroxychloroquine. They said it would take 3 month to kick in. Its been 3 months and im getting rashes, itchiness. Last week at work and...

Hi,Ive been put on hydroxychloroquine. They said it would take 3 month to kick i...

NatalieMai

•1 year ago

11 Replies

Rituximab. V benlysta

Hi everyone Hoping to get some advice from this amazing group. So, I've been on benysta for about a year and though its helped I still have a lot of fatigue...

Hi everyone Hoping to get some advice from this amazing group. So, I've been ...

Literatureteacher

•1 year ago

5 Replies

long haul travel with refrigerated meds

Hi, I recently started Benlysta which needs to be kept in the fridge. I’ve done a few short flights & have a travel bag with ice packs which works well. I’m...

Hi, I recently started Benlysta which needs to be kept in the fridge. I’ve don...

SonyaNME

•1 year ago

13 Replies

Azathioprine?

I'd love to hear some of your experiences with azathioprine. I'm being switched to it as mmf seems to have stopped working for me xxx

I'd love to hear some of your experiences with azathioprine. I'm being switched ...

Dogportraitartist

•1 year ago

7 Replies

Experiences with Hydroxychloroquine?

Hello, I’m Mac and I’ve just been diagnosed with Lupus (mild disease progression). I’ve been given hydroxychloroquine to take for 6 months - I’ve never taken...

Hello, I’m Mac and I’ve just been diagnosed with Lupus (mild disease progressio...

Tinylittlemac

•2 years ago

29 Replies

update on horrendous flushes

Hi everyone. I recently asked on here about horrendous full body flushing when increasing my dose of azathioprine and got some helpful feedback. Basically I...

Hi everyone. I recently asked on here about horrendous full body flushing when i...

cakerbaker

•2 years ago

8 Replies

Methotrexate and Mycophenolate together?

I’ve been on Mycophenolate for over a decade but in recent years it’s less effective and I am trying to find a way to better manage my lupus. One of my...

I’ve been on Mycophenolate for over a decade but in recent years it’s less effec...

ShannonB

•2 years ago

4 Replies

medication sensitivity, problem with getting the right brand.

Hi everyone, I was wondering, does anyone have difficulty with getting the right brand medications due to hypersensitivity. I am hypersensitive to meds and...

Hi everyone, I was wondering, does anyone have difficulty with getting the right...

field

•2 years ago

2 Replies

Blood Pressure tablets

I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazide 2.5mg tablets. These have been very good. However my blood pressure has...

I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazi...

Gunner01

•2 years ago

6 Replies

Evusheild, Petition for funding the preventative COVID 19 antibody for immunocompromised

Hi everyone, this antibody injection is for those who have not benefitted from Covid vaccines. The government is not willing to fund so here is the petition....

Hi everyone, this antibody injection is for those who have not benefitted from C...

Paprika60

•2 years ago

12 Replies

Amitriptyline or gabapentin increase

Hi, I'm currently between appointments with my rheumatologist I'm due to be reviewed in a month or so. I have a few tests before a confirmed diagnosis but...

Hi, I'm currently between appointments with my rheumatologist I'm due to be rev...

Ziggidy

•2 years ago

11 Replies

Mycophenolate mental side effects

Hello lovely lupus folk. I hope everyone is keeping reasonably well and enjoying the spring weather, if only through a window! I haven't posted in a while,...

Hello lovely lupus folk. I hope everyone is keeping reasonably well and enjoying...

Choccy8

•2 years ago

7 Replies

Coagucheck Test strips / INR

Hi, I am the new one here 😁. I have a question about Coagucheck test Strips for INR testing. I am sire that you heard that a lot and I am sorry if this is...

Hi, I am the new one here 😁. I have a question about Coagucheck test Strips for...

Christos89

•2 years ago

7 Replies

How quickly did it take depo-medrone steroid injection to work for your Lupus swelling?

I had a depo-medrone systemic injection for my lupus swelling. I was advised it should take effect 1-2 days, unless I misunderstood. I would be so grateful to...

I had a depo-medrone systemic injection for my lupus swelling. I was advised it ...

Joanna098

•2 years ago

3 Replies

3rd covid injection and then booster?

Hi everyone I hope your all doing well? I have 2 questions 🥰 I went for my hospital appointment on friday I was told i need to have another pfizer injection...

Hi everyone I hope your all doing well? I have 2 questions 🥰 I went for my hosp...

Ticklytoes24

•3 years ago

5 Replies

Hydroxychloroquine and Eyes

Hello everyone, I just wondered if any of you who have been for an eye appointment at a Retinopathy Clinic have been told that you have "drusenoid deposits...

Hello everyone, I just wondered if any of you who have been for an eye appointme...

Whitemagnum

•3 years ago

5 Replies

Difference between 3rd primary dose and booster vaccine?

Is there a difference between the 3rd primary dose for people who are severely immunosuppressed and the normal booster dose for everyone else who is eligible?...

Is there a difference between the 3rd primary dose for people who are severely i...

lss253

•3 years ago

11 Replies

Benylsta?

Hi, does anybody have experience or knowledge of Benylsta? Did it make you feel better? Or did you experience side effects? I believe that it is more widely...

Hi, does anybody have experience or knowledge of Benylsta? Did it make you feel ...

Lily77

•3 years ago

9 Replies

So, l had a horrid reaction after my jab

This after waiting for what we assumed was a horrid flare to die down. Landed me in the ER with a Blood pressure was So high I coded. I also had...

This after waiting for what we assumed was a horrid flare to die down. Landed me...

OneLove2019

•3 years ago

6 Replies

Greetings from the Antipodes

It’s a pleasure to find such a supportive and caring community for lupus warriors. I’m new, and services in Australia are limited. My Mum had lupus, and I was...

It’s a pleasure to find such a supportive and caring community for lupus warrior...

Colonial-girl

•3 years ago

27 Replies

Brand name of Hydroxychoroquine

Hi could someone help me remember the two brands of hydroxychoroquine please. Some time ago a brand of hydroxy came out that was known to upset your stomach. I...

Hi could someone help me remember the two brands of hydroxychoroquine please. So...

Gillyg

•3 years ago

7 Replies

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Medications posts

Prednisolone for Lupus Flare

Cutaneous Lupus

Had anyone tried LDN?

Questions about rituximab experience

Methotrexate-induced neutropenia

prednisolone how long before taper & stop

7 months and still no medication...

Update - starting prednisolone & mycophenolate - any tips?

hydroxy brand change symptoms

Hydroxychloroquine side effects!!

Rituximab. V benlysta

long haul travel with refrigerated meds

Azathioprine?

Experiences with Hydroxychloroquine?

update on horrendous flushes

Methotrexate and Mycophenolate together?

medication sensitivity, problem with getting the right brand.

Blood Pressure tablets

Evusheild, Petition for funding the preventative COVID 19 antibody for immunocompromised

Amitriptyline or gabapentin increase

Mycophenolate mental side effects

Coagucheck Test strips / INR

How quickly did it take depo-medrone steroid injection to work for your Lupus swelling?

3rd covid injection and then booster?

Hydroxychloroquine and Eyes

Difference between 3rd primary dose and booster vaccine?

Benylsta?

So, l had a horrid reaction after my jab

Greetings from the Antipodes

Brand name of Hydroxychoroquine

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