Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2024

Post massage pain

Hi all, I had a full body massage yesterday for the first time in months... last night about 1045pm I got the most severe costochondritis from under my boobies...

Hi all, I had a full body massage yesterday for the first time in months... last...

•1 month ago

No meds no symptoms

I was told a week ago to stop all my medication due to a chest infection and WBC being too low. I've been off my hydroxychloroquine and methotrexate for over a...

I was told a week ago to stop all my medication due to a chest infection and WBC...

•1 month ago

Wild and Windy Cornwall

A very windy weekend in spectacular Cornwall with my friend . Our hotel is in Newquay where we had a challenging but successful and exhilarating 8 mile...

A very windy weekend in spectacular Cornwall with my friend . Our hotel is in ...

•1 month ago

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Struggling after surgery

Hi guys, hope you are all managing as well as you can be. I had surgery last week, and man, it is kicking my butt. The surgeon repaired a massive hernia (12cm...

Hi guys, hope you are all managing as well as you can be. I had surgery last wee...

•1 month ago

pigment dispersion syndrome

Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an...

Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar ...

•1 month ago

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Tips for dealing with GP

Morning everyone. I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I...

Morning everyone. I have discussed my journey with you before and issues I have ...

•1 month ago

Cutaneous lupus

Hi, I've just joined the group following a diagnosis of cutaneous lupus. My skin is affected on my arms, shoulders, back and chest and a few smaller spots on...

Hi, I've just joined the group following a diagnosis of cutaneous lupus. My skin...

•1 month ago

Hydroxychloroquine and going on hoildays

Hi All, hope u are all well. I was wondering if anyone with SLE & Photosensitivity taking Hydroxychloroquine has any advice on going on holiday foreign whilst...

Hi All, hope u are all well. I was wondering if anyone with SLE & Photosensitivi...

•1 month ago

Scelerosing Mesenteritis and Walking sticks

hi folks it’s been a long while since I’ve last posted- I have been in and out of hospital 3 times in last 3 months with the most excruciating pain in my tummy...

hi folks it’s been a long while since I’ve last posted- I have been in and out o...

•1 month ago

Peeling skin on hands? Lupus or Prednisolone? Or something else?

Hi Guys, I’ve recently been having a flare of my lupus and am set to have rituximab this week. My steroids was increased from 5mg to 30mg. This has been...

Hi Guys, I’ve recently been having a flare of my lupus and am set to have ritu...

•1 month ago

drug induced lupus

Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they...

Hi, My husband has drug induced lupus from inflixmab infusions which he was hav...

•1 month ago

What would you most like to tell rheumatologists?

What would you most like to tell rheumatologists? LUPUS UK are presenting at a conference for rheumatologists, and we want to make sure we include your...

What would you most like to tell rheumatologists? LUPUS UK are presenting at a ...

Administrator•2 months ago

Skin ulcers

Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just...

Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that...

•2 months ago

Red Cheeks

Hi all, I noticed in the mirror just now that my cheeks look red and irritated. They are also rough to the touch. I am not currently diagnosed with anything,...

Hi all, I noticed in the mirror just now that my cheeks look red and irritated. ...

•2 months ago

Diagnoses

Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms...

Has anyone been diagnosed with an autoimmune condition without having positive ...

•2 months ago

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