Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,738 members • 28,096 posts

All posts for April 2024

Mam I might need a bath 🛁

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life seems to be difficult for so many of us right now. Thank God for our beautiful...

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life se...

CecilyParsley

•13 hours ago

6 Replies

Not so great British summer !

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in Somerset . Even Prince Tiggy I think is suffering from lack of sunshine 🌞....

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in So...

Tiggywoos

•14 hours ago

26 Replies

Vitamin D

Not All Sunshine–The Reality of Vitamin D Supplementation:...

MrsMarigold

•14 hours ago

1 Reply

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Facial erythema

Hi.Can anyone recommend any cream or advice on how to calm facial erythema please ? It happens totally randomly, people assume it's a hot flush. I'd love to...

Hi.Can anyone recommend any cream or advice on how to calm facial erythema pleas...

heatherose

•16 hours ago

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Hi to everyone.

I feel lonely, sad ,weak and useless.I feel like to give up

AddyT

•2 days ago

15 Replies

Are you a disabled mother who uses LA services?

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I am a disabled mother and I am currently do my MSC and looking for participants...

JennyHJ

•2 days ago

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Secondary Sjogrens

Morning all. I have recently been diagnosed with secondary sjogrens and wondering if anyone has any tips for helping the dry eyes. I have always struggled with...

Morning all. I have recently been diagnosed with secondary sjogrens and wonderin...

Alexia01

•2 days ago

7 Replies

Happy Weekend

Walked up to the Hoy monument, that tiny blob on the second hillock, and across to the Pepperpot on Thursday and coincidentally did the same walk as a guide...

Walked up to the Hoy monument, that tiny blob on the second hillock, and across ...

IsleofWight1

•3 days ago

2 Replies

Notes for upcoming GP appointment

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice....

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May...

Wispymisty

•4 days ago

23 Replies

Turmeric curcumin

anyone taking this as a supplement and any advice as mixed reviews online . Thanks

anyone taking this as a supplement and any advice as mixed reviews online . Than...

Johnnyfay

•4 days ago

19 Replies

Gps don't do ENA blood test ?

This blood test was requested February 2023 from a London Hospital. GPS phoned just now and said they don't do this ?

This blood test was requested February 2023 from a London Hospital. GPS phoned j...

Sc12Coco

•4 days ago

13 Replies

UCTD and penicillin allergy and use of hydroxychloroquine

Hi all - I’ve just been diagnosed with UCTD (after many years of symptoms!☹️ ) and have been prescribed Hydroxychloroquine. Consultant gave me a leaflet where...

Hi all - I’ve just been diagnosed with UCTD (after many years of symptoms!☹️ ) a...

RainKing

•5 days ago

10 Replies

Johnny

just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help

just been diagnosed with lupus . I’m 55 and would like advice on how to control ...

Johnnyfay

•6 days ago

12 Replies

Borderline ana

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to...

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredn...

Beeekind22

•6 days ago

12 Replies

can ANA turn negative?

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and am in a bit of a whirl. It came as a shock. I hadn’t even heard of it before I...

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and a...

Yorkshiremeadows

•6 days ago

34 Replies

Help I don’t understand

So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my...

So for the last 4 months I’ve been having pain in my muscles and head as well as...

Jadaboo4

•6 days ago

2 Replies

Help us develop a new information resource on lupus and the menopause

We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to...

We're developing new information resources about lupus and the menopause. We wan...

Debbie_kinsey

Administrator•7 days ago

8 Replies

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experience with you all. Despite years of discussing my menstrual difficulties,...

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experie...

Naladog

•8 days ago

13 Replies

fatigue after steroid injection?

Hi everyone, I haven’t been on here in a long long time but I need some advice! My UCTD has been pretty well controlled for a few years on...

Hi everyone, I haven’t been on here in a long long time but I need some advice...

SRiley

•8 days ago

1 Reply

Eyes affected by sunlight

Does anyone know about this.? Another surprise for me. I’ve been feeling well, getting out and about, decided to have a rest day today. This afternoon I...

Does anyone know about this.? Another surprise for me. I’ve been feeling w...

IsleofWight1

•8 days ago

15 Replies

Lupus?

Does this look like a Lupus rash?

Dontknowwhattodo

•9 days ago

5 Replies

Lupus rash?

I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems...

I have suffered many different symptoms for a period approaching 15 years. Abo...

Dontknowwhattodo

•9 days ago

16 Replies

infection in ear

Hi! I have a question. I keep getting a recurring Staphylococcus aureus infection in my middle ear. I was wondering, since it is recurring often, if it has...

Hi! I have a question. I keep getting a recurring Staphylococcus aureus infectio...

Willow7733

•10 days ago

3 Replies

Blood test positive lupus

Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to...

Recently had bloods done due to a few skin rashes and I looked at the results an...

Debz1974

•11 days ago

5 Replies

Cool crutches -Bea & Mira

hi folks just wanted to post a pic of my first ever walking stick - who would have thought at the age of 56 I would be needing one. Im so pleased with the...

hi folks just wanted to post a pic of my first ever walking stick - who would ha...

svfarmer

•12 days ago

18 Replies

Good morning.

I took this from the webcam on a local beach. What a lovely start to the day. I can’t get there this morning but now the weather is improving I will be there...

I took this from the webcam on a local beach. What a lovely start to the day. I ...

IsleofWight1

•12 days ago

3 Replies

Lupus re-diagnosis UCTD

Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition...

Hello All, so when I last posted I had been to the rheumatologist Prof X and tol...

KeepingUpBeat

•13 days ago

7 Replies

SPF Article

Hello everyoneFollowing on from Weathervane's interesting post, i saw this article about different SPF creams. Thought it might be helpful as we should all be...

Hello everyoneFollowing on from Weathervane's interesting post, i saw this artic...

misty14

•13 days ago

5 Replies

Thoughts on blood results and next steps please

Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked...

Blood test resultsI have had most of my results in today and would appreciate so...

Wispymisty

•13 days ago

5 Replies

prednisolone interacting with contraceptives..? Is this a thing?

hello everyone. It’s been a long time since I posted on here but was just wondering if this is something that anyone anywhere has heard of or experienced?...

hello everyone. It’s been a long time since I posted on here but was just wonder...

SarahLuna

•14 days ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2024

Mam I might need a bath 🛁

Not so great British summer !

Vitamin D

Facial erythema

Hi to everyone.

Are you a disabled mother who uses LA services?

Secondary Sjogrens

Happy Weekend

Notes for upcoming GP appointment

Turmeric curcumin

Gps don't do ENA blood test ?

UCTD and penicillin allergy and use of hydroxychloroquine

Johnny

Borderline ana

can ANA turn negative?

Help I don’t understand

Help us develop a new information resource on lupus and the menopause

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

fatigue after steroid injection?

Eyes affected by sunlight

Lupus?

Lupus rash?

infection in ear

Blood test positive lupus

Cool crutches -Bea & Mira

Good morning.

Lupus re-diagnosis UCTD

SPF Article

Thoughts on blood results and next steps please

prednisolone interacting with contraceptives..? Is this a thing?

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