Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2024

Views on study design for lupus nephritis research

A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the...

A research team are planning a study and want to get the views of people with lu...

Debbie_kinsey

Administrator•2 months ago

4 Replies

Low RBC

Anybody had problems with red blood count? Is it because of the methotrexate? Thanks.

Anybody had problems with red blood count? Is it because of the methotrexate? Th...

Deiniol

•2 months ago

2 Replies

Figuring things out - first year since diagnosis

Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms....

Hi, I'm posting here as I don't know anyone in real life with lupus and have bee...

CGSLE

•2 months ago

2 Replies

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Malar Rash?

hey I dont mean to intrude on a space made for people actually suffering with Lupus, but I am curious. I have been experiencing Raynauds like symptoms and my...

hey I dont mean to intrude on a space made for people actually suffering with Lu...

granolahaterdude

•2 months ago

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Lupus or another Autoimmune Disease?

I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12...

I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic G...

Milescircus

•2 months ago

5 Replies

SLE flare up

Hello everyone I’m after some advice please. At the moment I’m having an SLE flare up that is affecting my lower legs , I have got open wounds on both ankles...

Hello everyone I’m after some advice please. At the moment I’m having an SLE f...

COCO66lola

•2 months ago

4 Replies

Malar Rash

Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I...

Hi guys I was wondering what your opinion of this rash is? Does it look like a...

Tonkie

•2 months ago

12 Replies

blood tests

hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital....

hi lovely people, I was wondering if you could give me any advice. I’m relativel...

Tonkie

•2 months ago

20 Replies

Help on blood test results

Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?

Can anyone on here advise on these results? Does this mean I 100% don't have lup...

Peppermints

•2 months ago

1 Reply

Edward Scissorhands

I don’t have any walk photos this time, in fact the weather has not been conducive to memorable views! I was lucky enough to go to the mainland, Southampton...

I don’t have any walk photos this time, in fact the weather has not been conduci...

IsleofWight1

•2 months ago

1 Reply

lupus and cerebral small vessel disease.

Hi , I have had SLE for 17 years, and recently been diagnosed with cerebral small vessel disease. I have moderate to significant damage showing on my MRI...

Hi , I have had SLE for 17 years, and recently been diagnosed with cerebral sm...

Ali3

•2 months ago

3 Replies

vitamins D…

I was just given a Vitamin D (and calcium) prescription. I am low on vitamins D…why have me take calcium too?

I was just given a Vitamin D (and calcium) prescription. I am low on vitamins D…...

Willow7733

•2 months ago

9 Replies

New Here - Malar Rash or bad complexion?

So I’ve been having symptoms on and off for years now. I’ve been told it’s stress, anxiety, vitamin deficiency (without any evidence) and told there’s nothing...

So I’ve been having symptoms on and off for years now. I’ve been told it’s stres...

RedSpoonie

•2 months ago

5 Replies

Newsystem23

Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine...

Not posted for a while, hope everyone is managing their lupus symptoms as best t...

Newsystem23

•2 months ago

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Little introduction of me

Hi. my name is Laura and I live in a very rural state Vermont. It is so beautiful but I am very lonely and needing some support since Vermont is isolating....

Hi. my name is Laura and I live in a very rural state Vermont. It is so beau...

Mrgunner

•2 months ago

3 Replies

Sugar

Hello I hope this finds you well. How do you respond to sugar? My skin burns everywhere and I feel sick. It lasts about one to two hours. I am not diabetic....

Hello I hope this finds you well. How do you respond to sugar? My skin burns e...

MrsMarigold

•2 months ago

13 Replies

Be careful about quality of medications

Hi all, In the 'wild west' UK I just want to caution everyone about checking where their medication comes from. In the past I've posted about getting...

Hi all, In the 'wild west' UK I just want to caution everyone about checking ...

Treetop33

•2 months ago

3 Replies

A puzzle

Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author...

Helllo everyone. I came across an interesting publication from the Cleveland Cli...

MrsMarigold

•2 months ago

21 Replies

HELP please

Hi I’m ANA negative was suspected of having sle lupus after a molar rash in my 40’s but rheumatologist diagnosed mechanical joint pain and fibromyalgia but...

Hi I’m ANA negative was suspected of having sle lupus after a molar rash in my ...

Numptybrain

•2 months ago

13 Replies

Rutiximub infusion.

Hi all,I've been on hydroxychlourine for Lupus for 10 years or so but seems to have run its course as I was very ill from summer of 2023. Rheum then changed...

Hi all,I've been on hydroxychlourine for Lupus for 10 years or so but seems to h...

mitty

•2 months ago

7 Replies

Recovering well

Some of you may recall I was going in for a total hysterectomy. I am 10 days post op, doing well and the lupus seems to be behaving itself. Bloods were all...

Some of you may recall I was going in for a total hysterectomy. I am 10 days pos...

Sher78

•2 months ago

14 Replies

New diagnosis

Hi all, it has been a while since my last post. I was diagnosed in December in the end, with SLE and started on hydroxychloroquine and methyl prednisone. The...

Hi all, it has been a while since my last post. I was diagnosed in December in ...

Rocinante_89

•2 months ago

6 Replies

Share your thoughts on Lleswyl Festival!

Did you catch Lleswyl Festival on 23rd February? Daring to Dream would love to hear your feedback by completing a short survey! To complete the survey,...

Did you catch Lleswyl Festival on 23rd February? Daring to Dream would love to...

michaellasmith

Administrator•2 months ago

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Sorry if wrong place to post

Hi me again,Hope you're all doing as well as can be. So little update I managed to see a lovely rheumatologist in Aberaeron this week who was very thorough but...

Hi me again,Hope you're all doing as well as can be. So little update I managed ...

Haylz2109

•2 months ago

6 Replies

What on earth is Chilblains Lupus?

What I do know is it shouldn't be confused with lupus pernio but it is, confusingly, also called pernio or perniosis.After a lot of googling I think that my...

What I do know is it shouldn't be confused with lupus pernio but it is, confusin...

Brychni

•2 months ago

12 Replies

Lupus participants needed for a study with The University of Edinburgh!

Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information,...

Do you have Systemic Lupus and currently experience disordered eating? If you're...

michaellasmith

Administrator•2 months ago

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Facebook group for parents of children with heart block

Hi! My daughter was diagnosed with heart block when she was a year old. I've found it really hard that so little information is available about heart block...

Hi! My daughter was diagnosed with heart block when she was a year old. I've f...

Ladybird_22

•2 months ago

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back with new

hi all old and new, its been a while but having new symptoms I have a question. I believe ive been through menopause 🤷‍♀️ as no period for at least 8 years. I...

hi all old and new, its been a while but having new symptoms I have a question. ...

stiff19

•2 months ago

32 Replies

Is this a lupus rash?

this is a rash on my leg it is appearing everywhere!

Jolevans

•2 months ago

4 Replies

Make up recommendations for Lupus - Good coverage

Can anyone please help. I havnt seen my friends since last year ,some longer and I have my 40th in a few weeks and I'm dreading it. Absolutely dreading my old...

Can anyone please help. I havnt seen my friends since last year ,some longer and...

Smileback

•2 months ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2024

Views on study design for lupus nephritis research

Low RBC

Figuring things out - first year since diagnosis

Malar Rash?

Lupus or another Autoimmune Disease?

SLE flare up

Malar Rash

blood tests

Help on blood test results

Edward Scissorhands

lupus and cerebral small vessel disease.

vitamins D…

New Here - Malar Rash or bad complexion?

Newsystem23

Little introduction of me

Sugar

Be careful about quality of medications

A puzzle

HELP please

Rutiximub infusion.

Recovering well

New diagnosis

Share your thoughts on Lleswyl Festival!

Sorry if wrong place to post

What on earth is Chilblains Lupus?

Lupus participants needed for a study with The University of Edinburgh!

Facebook group for parents of children with heart block

back with new

Is this a lupus rash?

Make up recommendations for Lupus - Good coverage

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