Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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All posts for March 2024

How maternal lupus affects the child

All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the...

All moms, please fill out this survey. It won't take long and you'll be the part...

gabriele_klim

•27 days ago

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Newbie here

Hi I'm new to the forum and for a while now I suspect I have had lupus but tbh I thought it was peri-menopause, joint stiffness, massive hair loss and...

Hi I'm new to the forum and for a while now I suspect I have had lupus but tbh I...

Greengreengrass1

•27 days ago

4 Replies

Scalp inflammation

Really struggling to keep inflammation down in the scalp and it is now causing severe hair loss. Dermy has been extremely unhelpful so now I'm on my own...

Really struggling to keep inflammation down in the scalp and it is now causing s...

Quuen

•27 days ago

3 Replies

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Bursitis of the toes & Steroid Injection.

I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can...

I've had pain from between the second & third toe since last May. It hurts to st...

sarahsch

•28 days ago

1 Reply

Worsening symptoms

Hi All. I posted a while ago, I am 31, was under rheumatology several years ago but they discharged me, my symptoms have ramped up the last 4 years and more so...

Hi All. I posted a while ago, I am 31, was under rheumatology several years ago ...

JCM1992

•28 days ago

2 Replies

Risk factors for childhood food allergies

Hello! I am Gabrielė Klimantavičiūtė, a fourth-year neurobiophysics student at Vilnius University. I am conducting research aimed at determining which factors,...

Hello! I am Gabrielė Klimantavičiūtė, a fourth-year neurobiophysics student at V...

gabriele_klim

•29 days ago

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Hoorah

Hi lovely Lupies, an update on my post despairing of getting any support. Today the Rheumatology Nurse called me and was incredulous when I told her about my...

Hi lovely Lupies, an update on my post despairing of getting any support. Today...

CecilyParsley

•30 days ago

30 Replies

Tooting Lupus Group - First official face-to-face meeting - Saturday 6th April - Wimbledon Library from 12pm

Come and join the Tooting Lupus Group, for our first official face-to-face meeting, on 6th April from 12pm until 2pm. These meetings will continue take place...

Come and join the Tooting Lupus Group, for our first official face-to-face meeti...

michaellasmith

Administrator•30 days ago

2 Replies

Extremely worried about contrast CT scan

Hi all, I had to go to the rapid access chest clinic and they want to do a contrast CT scan of my heart, to be on the safe side. I'm really worried about...

Hi all, I had to go to the rapid access chest clinic and they want to do a co...

Treetop33

•30 days ago

22 Replies

Malar rash caused by heat?

Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus...

Hello, just wondering if this looks like a malar rash, and if so, can be trigger...

Nome11

•1 month ago

6 Replies

Hydroxychloroquine toxic retinopathy

Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is...

Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily sin...

Juniperm

•1 month ago

6 Replies

eye problems?

Have just had a Hydroxy eye check referral to my local hospital where I was told I have a significant change in my right eye due to fluid build up affecting...

Have just had a Hydroxy eye check referral to my local hospital where I was told...

Littleandperfect

•1 month ago

6 Replies

Paul's last day today

Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for...

Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Pleas...

Debbie_kinsey

Administrator•1 month ago

28 Replies

hair loss, flares & iron deficiency - will it ever stop?

Hi I’ve had lupus for 15 yrs and diagnosed for 8. I’ve had flares lasting months (or years before Drs took me seriously) were loads of my hair has fallen...

Hi I’ve had lupus for 15 yrs and diagnosed for 8. I’ve had flares lasting mont...

Beau2016

•1 month ago

3 Replies

Blue badge

Does anyone have any advice on completing the application for a blue badge? I’m pretty much in pain all the time so whilst I can walk, it’s always painful....

Does anyone have any advice on completing the application for a blue badge? I’m...

marypw

•1 month ago

14 Replies

Contacting

HelloWhen you have your first appointment (I was GP referred) your Rheumatologist should give you a helpline number to call if any issues 🩷💜

HelloWhen you have your first appointment (I was GP referred) your Rheumatologis...

CaviarRed

•1 month ago

9 Replies

Examining the evidence for whether a neuropsychiatric symptom is directly caused by lupus - latest paper from the INSPIRE study

The latest paper from the INSPIRE study suggests that some neuropsychiatric (NP) symptoms may be more likely to be directly caused by SLE than previously...

The latest paper from the INSPIRE study suggests that some neuropsychiatric (NP)...

Debbie_kinsey

Administrator•1 month ago

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How do you contact your Rheumatologist?

Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in...

Hi lovely Lupies. Just a quick question to people in the UK regarding how you ma...

CecilyParsley

•1 month ago

32 Replies

Coming to terms with avoiding the sun

I practically lived outside, swimming, walking, gardening, reading etc. Now I'm trying to come to terms with avoiding the sun. I'm wearing high spf...

I practically lived outside, swimming, walking, gardening, reading etc. Now I'm...

AnonLupi

•1 month ago

8 Replies

Cutie Woolly Jumpers

Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute...

Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much ...

misty14

•1 month ago

32 Replies

Most days, I can handle work…

I work in a hospital in the ER and OR department. I am having trouble with brain fog lately, and my co workers are really making everything 10x worse. They are...

I work in a hospital in the ER and OR department. I am having trouble with brain...

Willow7733

•1 month ago

14 Replies

Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet

We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think...

We're updating our "Guide to Pregnancy" booklet with the new medication guidelin...

Debbie_kinsey

Administrator•1 month ago

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Sinus and cough

Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started taking Pilocarpine along with Hydroxychloroquine and other meds for Raynaurds....

Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started t...

Mctd

•1 month ago

8 Replies

Raynaud's in nipples?

does anyone else get this?

Brychni

•1 month ago

4 Replies

hydroxychloroquine/ Methatrexate

Hi looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Hi looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sj...

Den73

•1 month ago

23 Replies

Tooting Coffee and Chat - including a workshop with Nick Wright from CAB - 27th March 6.30pm!

Come and Join the Tooting Lupus Group for our next virtual Coffee and Chat session, on 27th March at 6.30pm. We will also be running a workshop on benefits...

Come and Join the Tooting Lupus Group for our next virtual Coffee and Chat sessi...

michaellasmith

Administrator•1 month ago

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Haplotype testing

Evening :) wanted to ask if anybody did haplotype testing in UK for HLA genes? Specifically for allels HLA-DR3 (B8) and HLA-DR2. If so, where did you manage to...

Evening :) wanted to ask if anybody did haplotype testing in UK for HLA genes? S...

roby1988

•1 month ago

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Missed MTX dose..

hi this is my first time missing a dose as I’m on antibiotics for an infection. I was supposed to have my dose on Tuesday. I’m only on 20mg. Last night I...

hi this is my first time missing a dose as I’m on antibiotics for an infection...

Tonkie

•1 month ago

3 Replies

Pacing and stress concern

Hi all! I recently signed onto the Visible app and wearable, which allows you to track your heart rate, HRV, log symptom severity and get signposts as to...

Hi all! I recently signed onto the Visible app and wearable, which allows you...

Treetop33

•1 month ago

21 Replies

Advice: temperature

Hi everyone Haven't posted for a while due to my health status. Seeking advice as I've got a horrible temperature (hot and then chills), overall weakness,...

Hi everyone Haven't posted for a while due to my health status. Seeking advice...

Amakura

•1 month ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2024

How maternal lupus affects the child

Newbie here

Scalp inflammation

Bursitis of the toes & Steroid Injection.

Worsening symptoms

Risk factors for childhood food allergies

Hoorah

Tooting Lupus Group - First official face-to-face meeting - Saturday 6th April - Wimbledon Library from 12pm

Extremely worried about contrast CT scan

Malar rash caused by heat?

Hydroxychloroquine toxic retinopathy

eye problems?

Paul's last day today

hair loss, flares & iron deficiency - will it ever stop?

Blue badge

Contacting

Examining the evidence for whether a neuropsychiatric symptom is directly caused by lupus - latest paper from the INSPIRE study

How do you contact your Rheumatologist?

Coming to terms with avoiding the sun

Cutie Woolly Jumpers

Most days, I can handle work…

Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet

Sinus and cough

Raynaud's in nipples?

hydroxychloroquine/ Methatrexate

Tooting Coffee and Chat - including a workshop with Nick Wright from CAB - 27th March 6.30pm!

Haplotype testing

Missed MTX dose..

Pacing and stress concern

Advice: temperature

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