Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2024

Lupus rash? And symptoms

I look awful in the picture! I started with symptoms of possible lupus in September 2023. Extreme fatigue, muscle and joint pain, face rash, dry hair (even my...

I look awful in the picture! I started with symptoms of possible lupus in Septem...

Drewbedo

•3 months ago

4 Replies

Hello

Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment

Hi I'm under going tests for lupus I have symptoms, I'm just looking for more i...

Tray68

•3 months ago

2 Replies

Possible Lupus treatment breakthrough from Monash University Australia 😁 - Still in research phase but looking good ?

Hi. I'm from Victoria - Australia. Monash University, connected to Monash Medical centre Melbourne - seems to have pulled off a potential Lupus treatment...

Hi. I'm from Victoria - Australia. Monash University, connected to Monash Med...

Freckle1000

•3 months ago

10 Replies

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Alendronic - Osteoporosis

Hi all have been diagnosed with Osteoporosis and finding the tablet Alendronic makes my daily routine suffer for days afterwards. Seems to emphasise my usual...

Hi all have been diagnosed with Osteoporosis and finding the tablet Alendronic m...

kelpie21

•3 months ago

3 Replies

lupus

hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever...

hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due...

Pea_m

•3 months ago

7 Replies

Cellcept vs Myfenax

My local pharmacy has changed ownership and are being awkward regarding my prescriptions. They are refusing to prescribe me CellCept (been on it for 4 years)!...

My local pharmacy has changed ownership and are being awkward regarding my presc...

eescvc

•3 months ago

5 Replies

Private specialist recommendation?

I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended?...

I’m not sure if this is allowed? I’m looking for a private Lupus specialist in t...

Puckster01

•3 months ago

19 Replies

Feeling hopeful.

Brook to Freshwater coastal path. Sunday was a perfect day for walking this route. Wild, windy, bracing, exhilarating. This footpath is rapidly disappearing...

Brook to Freshwater coastal path. Sunday was a perfect day for walking this ro...

IsleofWight1

•3 months ago

5 Replies

Rituximab infusion tomorrow !!

Hello, this is a little last minute. But I have my first rituximab infusion tomorrow, I was wondering if anyone had any tips logistics-wise. Also, do they...

Hello, this is a little last minute. But I have my first rituximab infusion tomo...

poppies_are_red

•3 months ago

18 Replies

hi good afternoon

my name is Diana

Shawna3g

•3 months ago

1 Reply

The Shelagh Cheesman Lupus Information Day - 16th March

The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in...

The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16...

michaellasmith

Administrator•3 months ago

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lupus and surgery

hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it...

hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler...

Shawna3g

•3 months ago

2 Replies

Experience with Norethisterone for delaying periods?

Just wondering if anyone has used norethisterone to postpone periods? I'm traveling in a month's time to a part of the world where I may have limited access...

Just wondering if anyone has used norethisterone to postpone periods? I'm trave...

lingdings

•3 months ago

3 Replies

INSECT BITE OVERREACTION Could this trigger lupus or lupus like reaction?

I felt rotten for a couple of days. Then woke up the third day with a really big blistery looking bite on my right thumb. It looked really inflamed and had a...

I felt rotten for a couple of days. Then woke up the third day with a really big...

Mmef1304

•3 months ago

1 Reply

feeling a bit overwhelmed and lost

In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a...

In September 2023 I found out by chance that I had apparently been diagnosed wit...

opalescenthope

•3 months ago

11 Replies

Professor K Raza

Hi all me again sorry for all the posts but I have literally had the worst January been so ill I've barely been able to leave my bed, went to the gp they tried...

Hi all me again sorry for all the posts but I have literally had the worst Janua...

Haylz2109

•3 months ago

4 Replies

a newby to Lupus

Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was...

Hello folks, I was only diagnosed with lupus a few days ago, after six months o...

C0rnflakes

•3 months ago

25 Replies

fillers

has anyone had fillers at all ?

Dressgirl52

•3 months ago

5 Replies

Feeling low:(

Feeling really worn out, low…I’ve stopped using hydroxy a couple of months ago for my Uctd as İt did not help and was advised to stop by the consultant....

Feeling really worn out, low…I’ve stopped using hydroxy a couple of months ago ...

April2018

•3 months ago

19 Replies

Possibly of Interest - Autoimmunity linked to X chromosome?

https://www.nature.com/articles/d41586-024-00267-6?utm_source=Live+Audience&utm_campaign=5093011eda-briefing-dy-20240202&utm_medium=email&utm_term=0_b27a691814-

https://www.nature.com/articles/d41586-024-00267-6?utm_source=Live+Audience&utm_...

WinterSwimmer

•3 months ago

1 Reply

Some new science on why women are more prone to autoimmune disease

This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation....

This is an interesting read that suggests the preponderance of systemic autoimm...

whisperit

•3 months ago

4 Replies

Methotrexate and hair loss

I have been experiencing severe hair loss since starting methotrexate and I'm only on 12.5mg. My dermatologist suggested to wear wigs and didn't even look at...

I have been experiencing severe hair loss since starting methotrexate and I'm on...

Quuen

•3 months ago

13 Replies

Share your experiences of the Royal National Hospital for Rheumatic Diseases in Bath!

LUPUS UK will be conducting a Centre of Excellence inspection of the Royal National Hospital for Rheumatic Diseases (RNHRD), Bath, on Monday 26th February and...

LUPUS UK will be conducting a Centre of Excellence inspection of the Royal Natio...

michaellasmith

Administrator•3 months ago

1 Reply

SLE flare up

Hello all just needing some advice. I have had Sjogrens and lupus for over 20years with mid to mild symptoms, but on 6/7th January had swollen knees with a...

Hello all just needing some advice. I have had Sjogrens and lupus for over 20ye...

COCO66lola

•3 months ago

4 Replies

Lupus SLE, APS, Vasculitis

I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which...

I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Synd...

Newlupus76

•3 months ago

4 Replies

Did I see something on here about an SLE conference in March?

Can anyone help with any info please? I can't seem to find the post.

happytulip

•3 months ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2024

Lupus rash? And symptoms

Hello

Possible Lupus treatment breakthrough from Monash University Australia 😁 - Still in research phase but looking good ?

Alendronic - Osteoporosis

lupus

Cellcept vs Myfenax

Private specialist recommendation?

Feeling hopeful.

Rituximab infusion tomorrow !!

hi good afternoon

The Shelagh Cheesman Lupus Information Day - 16th March

lupus and surgery

Experience with Norethisterone for delaying periods?

INSECT BITE OVERREACTION Could this trigger lupus or lupus like reaction?

feeling a bit overwhelmed and lost

Professor K Raza

a newby to Lupus

fillers

Feeling low:(

Possibly of Interest - Autoimmunity linked to X chromosome?

Some new science on why women are more prone to autoimmune disease

Methotrexate and hair loss

Share your experiences of the Royal National Hospital for Rheumatic Diseases in Bath!

SLE flare up

Lupus SLE, APS, Vasculitis

Did I see something on here about an SLE conference in March?

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