Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for February 2024

The Results are in

Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just...

Hello wonderful people. Just a quick update as I am so relieved I had to tell yo...

CecilyParsley

•2 months ago

87 Replies

Laryngitis and lupus

Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis...

Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had i...

pattypatchwork

•2 months ago

4 Replies

Belimumab treatment

Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've...

Hi I have lurked on this site for years but now after reoccurring pericarditis ...

Spacecadet73

•2 months ago

6 Replies

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REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!

Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus...

Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patie...

michaellasmith

Administrator•2 months ago

5 Replies

Focus group with Kuma Health - 8th March 10.30am until 12pm!

We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more...

We at Kuma Health are passionate about improving the lives of people with lupus....

michaellasmith

Administrator•2 months ago

Be the first to reply

oxygen on flight advice sought

I have had lupus for many years. I have interstitial lung disease and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would...

I have had lupus for many years. I have interstitial lung disease and had a sma...

Lovemydogs1

•2 months ago

6 Replies

extreme tinnitus making life a nightmare atm - a quick vent.

Since I started to get ill in 2016/17 with autoimmune conditions, I've acquired an impressive and still growing collection of loud tinnitus noises. Last time...

Since I started to get ill in 2016/17 with autoimmune conditions, I've acquired...

robertbob

•2 months ago

21 Replies

Lupus flare

Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus...

Hi has anyone experience a lupus flare which was tiggered by a suspected infecti...

Flows

•2 months ago

20 Replies

Should I tell my rheumatologist?

Morning everyone, after 7 years I eventually got a diagnosis of mctd and secondary Fybromyalgia in November. Things had started to settle, but was feeling...

Morning everyone, after 7 years I eventually got a diagnosis of mctd and seconda...

Mctd

•2 months ago

5 Replies

LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky

After a rigorous and careful selection process, involving a panel of Trustees and the staff at the National Office in Romford, Caroline Olshewsky will start...

After a rigorous and careful selection process, involving a panel of Trustees an...

Paul_Howard

Partner•2 months ago

6 Replies

Lupus rash

Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds...

Hi, My main symptoms are an itch on my neck, face, one shoulder and recently bet...

Lula1983

•2 months ago

11 Replies

facial rash

hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but...

hi there, I have just had a positive ana result and suspected lupus so I am bei...

Pinkyerin

•2 months ago

5 Replies

Hello everyone

I was diagnosed with fibromyalgia in 2015 and a probable lupus diagnosis at the same time and was prescribed hydroxychloroquine I've been on this medication...

I was diagnosed with fibromyalgia in 2015 and a probable lupus diagnosis at the ...

Martha-dorothy

•2 months ago

5 Replies

I’m Back

it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal,...

it has been quite a while since I have been on this message board, life just ha...

SunflowerYiayia

•2 months ago

Be the first to reply

Wearing Me Down

I am a 48yr old female from the US who has been dealing with itchy rashes, disfiguring angioedema, and recurring MRSA infections. I show a diffuse ANA and a...

I am a 48yr old female from the US who has been dealing with itchy rashes, disfi...

Lisadoe

•2 months ago

1 Reply

What to expect at first rheumatology appointment?

Hi everyone, I've recently had my ANA results back at a titre of 1/640 with positive anti-Ro and anti-La, after suffering from mainly fatigue, brain fog,...

Hi everyone, I've recently had my ANA results back at a titre of 1/640 with pos...

Helzipop

•2 months ago

5 Replies

Carbomer eye gel

Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV...

Good morning. I was at the ophthalmologist yesterday getting umpteen scans and ...

Whippet_lady

•2 months ago

7 Replies

Cirque Du Soleil

A change from my usual photos! I had a few days in London with my brother and sister. Went to the Royal Albert Hall, which is a treat itself, and saw the...

A change from my usual photos! I had a few days in London with my brother and s...

IsleofWight1

•2 months ago

3 Replies

Does this look like lupus

My daughter gets really bad skin particularly on hands and arms. Mum has sle and the rash goes with oral steroids. Any thoughts please

My daughter gets really bad skin particularly on hands and arms. Mum has sle and...

jimbo1605

•2 months ago

3 Replies

Steroids

I posted a few months ago about my wife's breathing problems. This is an update.Wife age 64 diagnosed with sle six years ago. She is currently on hydroxy,...

I posted a few months ago about my wife's breathing problems. This is an update....

jimbo1605

•2 months ago

2 Replies

Methotrexate alongside hydroxychloroquine

Morning, due to my chilblain lupus blisters not responding well to hydroxychloroquine, my consultant has decided that I now need methotrexate as well. I...

Morning, due to my chilblain lupus blisters not responding well to hydroxychlor...

pattypatchwork

•2 months ago

8 Replies

Watching House

I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it...

I am off on a long weekend (tomorrow I go back to work), and watching House on N...

Willow7733

•2 months ago

9 Replies

Newbie needs advice

Hey all 💖 So, I've classically been misdiagnosed with fibromyalgia after 7 years shuttling back and forth to gp. Been served anemic for two years just palmed...

Hey all 💖 So, I've classically been misdiagnosed with fibromyalgia after 7 year...

Siouxsiesioux

•2 months ago

3 Replies

Lupus

This is just a post for anyone who has been newly diagnosed. I was diagnosed in 2021 and can on here looking for help and support as I was in a dark place. A...

This is just a post for anyone who has been newly diagnosed. I was diagnosed in ...

lupie2021

•2 months ago

19 Replies

I Survived

Hello everyone, just a quick message as I cannot see very well with two infected eyes but I am through the operation and my Consultant got all she could of the...

Hello everyone, just a quick message as I cannot see very well with two infected...

CecilyParsley

•2 months ago

63 Replies

What other tests

Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just...

Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm hi...

JCM1992

•2 months ago

1 Reply

New research

Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it....

Did anyone listen to the piece on talk radio today about new lupus research? So...

EllsBells591

•2 months ago

1 Reply

Kidney update and possible gallstones

Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty...

Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks...

MusicalFurbaby

•2 months ago

3 Replies

Prickly Cuties

Hello everyoneJust popping in to show you these three cuties being lovingly cared for by a Hedgehog Rescue Centre. They've had record numbers of hedgehogs due...

Hello everyoneJust popping in to show you these three cuties being lovingly care...

misty14

•2 months ago

12 Replies

Australian research - possible cure?

I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many...

I don’t like raising false hope among our community about ‘cures’ toted in the m...

MusicalFurbaby

•2 months ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2024

The Results are in

Laryngitis and lupus

Belimumab treatment

REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!

Focus group with Kuma Health - 8th March 10.30am until 12pm!

oxygen on flight advice sought

extreme tinnitus making life a nightmare atm - a quick vent.

Lupus flare

Should I tell my rheumatologist?

LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky

Lupus rash

facial rash

Hello everyone

I’m Back

Wearing Me Down

What to expect at first rheumatology appointment?

Carbomer eye gel

Cirque Du Soleil

Does this look like lupus

Steroids

Methotrexate alongside hydroxychloroquine

Watching House

Newbie needs advice

Lupus

I Survived

What other tests

New research

Kidney update and possible gallstones

Prickly Cuties

Australian research - possible cure?

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