Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2024

Having no temperature

Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there...

Hi, having lupus, we are prone to having lots of infections. I do not generally ...

•4 months ago

Alone in Wales

Can anyone help me access Lupus support in South Wales ? I feel very isolated with my diagnosis after many tests scans and appointments over the past 12 months...

Can anyone help me access Lupus support in South Wales ? I feel very isolated wi...

•4 months ago

Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award

In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the...

In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Ma...

Administrator•4 months ago

Want to take advantage of all our features? Just log in!

or

Travelling

Hey... Hope everyone here doing just fine... I am planning to travel for a week. Are there things I should pay attention to due to I have lupus. Thanks!...

Hey... Hope everyone here doing just fine... I am planning to travel for a week...

•4 months ago

Retuximab

Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion...

Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu,...

•4 months ago

Obinutuzumab not recommended for funding by NHS England

NHS England have not recommended funding obinutuzumab for people with lupus and secondary non-response to rituximab. However, they are prepared to consider it...

NHS England have not recommended funding obinutuzumab for people with lupus and ...

Administrator•4 months ago

Be the first to reply

Feeling unlistened to.

hi everyone, Hope you’re all well. 2 years I go I had auto immune bloods done which came back negative. I had them done as I have 3 other skin auto immune...

hi everyone, Hope you’re all well. 2 years I go I had auto immune bloods done...

•4 months ago

Enter our poster competition for World Lupus Day 2024!

This year we're launching a poster competition for our 2024 World Lupus Day campaign. The theme of the poster will be centred around those who have been newly...

This year we're launching a poster competition for our 2024 World Lupus Day camp...

Administrator•4 months ago

Be the first to reply

SCLE Hair Dye ??

Hi All, is anyone using chemical dye for hair??? Does anyone had any reaction using ?? Can you recommend any hair dye if had no reaction... Thank you

Hi All, is anyone using chemical dye for hair??? Does anyone had any reaction us...

•4 months ago

A cutie treatment

Hello everyoneJust popping up again to say Happy New Year from 'cutie pics' and to show you this different and uplifting picture. At the Lister Hospital , a...

Hello everyoneJust popping up again to say Happy New Year from 'cutie pics' and ...

•4 months ago

Lupus sle treatment

Hey everyone I was diagnosis in may lasy year I'm on hydroxychlorquine 200mg twice a day steroids 15mg azathioprine 100 which has been incresed to 125 for 4...

Hey everyone I was diagnosis in may lasy year I'm on hydroxychlorquine 200mg twi...

•4 months ago

Need some management advice on SCLE plz ... are u susceptible to infections quite often ???

Need some management advice on SCLE plz ... are u susceptible to infections quite often ?

Need some management advice on SCLE plz ... are u susceptible to infections quit...

•4 months ago

Discoid Lupus

Hello Everyone, I have been suffering with discoid lupus for 5 years now. i have had some pretty nasty flare ups since being diagnosed. One flare up resulted...

Hello Everyone, I have been suffering with discoid lupus for 5 years now. i ha...

•4 months ago

Chilblain Lupus?

Hi All, Well, after being well for a good period of time it all came to a grinding and painful halt. I have what seems to be Chilblain Lupus. Has anyone...

Hi All, Well, after being well for a good period of time it all came to a gr...

•4 months ago

Ill Health Retirement

I have SLE, I have tried several of the medications Hydroxychloroquine, Methotrexate and Azathioprine which is affecting my liver. I have the brain fog,...

I have SLE, I have tried several of the medications Hydroxychloroquine, Metho...

•4 months ago

cataracts

I was told today, that because of being on prednisone, I have a cataract in each eye (the left is much worse than the right). I was wondering if this is a...

I was told today, that because of being on prednisone, I have a cataract in each...

•4 months ago

Discoid lupus

Hi. I have just got results of biopsy. I have discoid lupus, I have also had full blood checks and came back clear. Every where I read says discoid lupus only...

Hi. I have just got results of biopsy. I have discoid lupus, I have also had ful...

•4 months ago

Starting a family

Hello Does anyone have an experience/advice/information on wanting to start a family? I have read all the things that say you have to stop methotrexate but...

Hello Does anyone have an experience/advice/information on wanting to start a f...

•4 months ago

1
2
3