Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2024

Cervical disc

Hi, has anyone had a cervical disc replaced?I've been quite ill, Neuro found mylopathy. Right arm tremor, weakness ext. Unsteady gait and numerous other...

Hi, has anyone had a cervical disc replaced?I've been quite ill, Neuro found myl...

Largather

•4 months ago

17 Replies

New meds

Hi all, new on here ive had lupus for quite a few years. Affected my liver so placed on mycophenolate. Which is doing its job. Last year placed on...

Hi all, new on here ive had lupus for quite a few years. Affected my liver so pl...

Flows

•4 months ago

6 Replies

Alcohol flush

Hi. I was diagnosed with UCTD in October with a lupus rash (came on in July) and several Sjrogrens symptoms. In the last month I have experienced alcohol...

Hi. I was diagnosed with UCTD in October with a lupus rash (came on in July) and...

Mamasquidy

•4 months ago

12 Replies

Want to take advantage of all our features? Just log in!

Had anyone tried LDN?

I've been clear of all medicine for the last couple of years. However, my latest MRI of my hands and wrists has shown lots of inflammation around the tendons...

I've been clear of all medicine for the last couple of years. However, my latest...

HealthCoachLupus

•4 months ago

13 Replies

Various questions, sorry 🥹

I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively...

I hope you’re all doing as well as you can be 💜 this is going to be a long post...

JLAR01

•4 months ago

14 Replies

work requested report!

hi everyone I hope you’re coping as well as can be expected I have been off sick three months last year due to conditions lupus FM and UDCT. Now Covid...

hi everyone I hope you’re coping as well as can be expected I have been off s...

Geeforce99

•4 months ago

10 Replies

Something to celebrate

I just needed somewhere to share my elation!! I've been having regular flare ups of both lupus and rheumatoid even though I'm on the highest doses of...

I just needed somewhere to share my elation!! I've been having regular flare up...

Sunshine634

•4 months ago

6 Replies

pale faced

Hi I was diagnosed with SLE Lupus a year ago and am currently taking hydroxchloroquine . Does anyone else looked washed out all of the time. I used to have a...

Hi I was diagnosed with SLE Lupus a year ago and am currently taking hydroxchlor...

Chocolate1956

•4 months ago

3 Replies

Hydroxychlorquine

Hello! Me again 😬 I have a couple of questions. Do you take your hydroxychloroquine at night after food or lunch time/ breakfast? I find I am wide awake at...

Hello! Me again 😬 I have a couple of questions. Do you take your hydroxychloroq...

Whatafaff21

•4 months ago

60 Replies

I have SCLE Diagnosed in 2023

I never knew there is something like SCLE until I was diagnosed and things that one need to do in order to preserve ourselves. I am fairly new and need some...

I never knew there is something like SCLE until I was diagnosed and things that ...

Multiseed

•4 months ago

5 Replies

Vitamins for fatigue?

Another photo of the Whitwell area. On my good days I love to walk alone, with a friend or a group of friends. We go all over the Island, up the downs, along...

Another photo of the Whitwell area. On my good days I love to walk alone, with ...

IsleofWight1

•4 months ago

9 Replies

Are grey gums normal near the front of the teeth?

Are grey gums normal? I have SLE

Shine54

•4 months ago

2 Replies

travelling as Lupus patient

hi everyone, Been long time since I wrote here. please I will like some advice regarding travelling in Africa. I have been here in Europe for over 15 years...

hi everyone, Been long time since I wrote here. please I will like some advic...

Saralife

•4 months ago

6 Replies

Chilblain lupus and potential ulcerated blisters

Hi, I am in the middle of a chilblain lupus flare up and a couple of them appear to be infected. I have been to see my gp today ( at the rheumatology...

Hi, I am in the middle of a chilblain lupus flare up and a couple of them appear...

pattypatchwork

•4 months ago

7 Replies

A beautiful interlude

Some more local beauty

IsleofWight1

•4 months ago

3 Replies

colonoscopy update today

well the prep was easy and even the taste wasn’t too bad although I know there are different types. Hunger sparked a migraine this morning which prompted...

well the prep was easy and even the taste wasn’t too bad although I know there a...

Stills

•4 months ago

54 Replies

Newbie-lupus queries

Hello! I am newly diagnosed with SLE. I have a terrible rash on my face right now from taking the anti malarial medication. I wondered what spf cream brands...

Hello! I am newly diagnosed with SLE. I have a terrible rash on my face right no...

Whatafaff21

•4 months ago

51 Replies

Rheumatology consultant with specialist interest in Lupus

Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to...

Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologi...

Jenfy34

•4 months ago

8 Replies

help and support

Morning all, I just don’t know where to turn for support. I have basically left the house about 15 times in the last year due to my herniated disc , various...

Morning all, I just don’t know where to turn for support. I have basically lef...

M0wnt

•4 months ago

6 Replies

Thought you may enjoy some photos of my local area

Thought you may enjoy some photos of my local area, Isle of Wight.

IsleofWight1

•4 months ago

8 Replies

Frustrated...

Hi everyone, just looking for advice forca couple of issues. I'm am plagued with sinus issues having Sjogrens. My rheumatologist has prescribed me meds which...

Hi everyone, just looking for advice forca couple of issues. I'm am plagued with...

Mctd

•4 months ago

9 Replies

Confused and upset- scleroderma and esophagus

Hello, I hope everyone is staying warm if it is winter where you are ❤️ I am reaching out for support and possibly simalar experiences... Yesterday I went...

Hello, I hope everyone is staying warm if it is winter where you are ❤️ I am ...

AnimalLover115

•4 months ago

12 Replies

Weak positive

Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1...

Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no o...

Demilouise

•4 months ago

5 Replies

sudden high heart rate, extreme tiredness and low blood pressure

so this has happened a few times in a few different settings. On each occasion I’ve suddenly felt very vacant, like I’m watching myself in slow motion. I...

so this has happened a few times in a few different settings. On each occasio...

ManiKochar

•4 months ago

8 Replies

Groups in Gloucestershire

Hi all. Someone posted about wanting a group in Wales, and I was wondering if there is one in Glos? Since Covid I've felt quite isolated with the world...

Hi all. Someone posted about wanting a group in Wales, and I was wondering if...

Treetop33

•4 months ago

8 Replies

Lupus questions

Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist,...

Good afternoon, My doctor has been helping me with some ongoing symptoms, and f...

EllsBells591

•4 months ago

2 Replies

Declined lupus Centre help

Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to...

Hi all, hope you're all doing as well as you can be. Just thought I'd give you a...

Haylz2109

•4 months ago

14 Replies

Methotrexate or Azathioprine?

My diagnosis is UCTD. I’ve been on Hydroxychloriquine for a few years but my condition is worsening. Consultant has suggested changing to Methotrexate or...

My diagnosis is UCTD. I’ve been on Hydroxychloriquine for a few years but my co...

IsleofWight1

•4 months ago

8 Replies

asmatha

does anyone else have severe asthma and struggling with breathing issues I would really like to know as I’m not coping with it

does anyone else have severe asthma and struggling with breathing issues I would...

Liz2468

•4 months ago

1 Reply

Quinoric side effects

Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric...

Hi all, I hope you’re keeping tip top as best you can. So, I have been on hy...

BloominUterus

•4 months ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2024

Cervical disc

New meds

Alcohol flush

Had anyone tried LDN?

Various questions, sorry 🥹

work requested report!

Something to celebrate

pale faced

Hydroxychlorquine

I have SCLE Diagnosed in 2023

Vitamins for fatigue?

Are grey gums normal near the front of the teeth?

travelling as Lupus patient

Chilblain lupus and potential ulcerated blisters

A beautiful interlude

colonoscopy update today

Newbie-lupus queries

Rheumatology consultant with specialist interest in Lupus

help and support

Thought you may enjoy some photos of my local area

Frustrated...

Confused and upset- scleroderma and esophagus

Weak positive

sudden high heart rate, extreme tiredness and low blood pressure

Groups in Gloucestershire

Lupus questions

Declined lupus Centre help

Methotrexate or Azathioprine?

asmatha

Quinoric side effects

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive