Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for January 2024

Practical Weight loss advice whilst on steroids and MMF

Ugggghhh. Steroid weight gain has been a real thing and I was already “fluffy” before I started high dose steroids back in November. I’d lost 18 pounds when I...

Ugggghhh. Steroid weight gain has been a real thing and I was already “fluffy” b...

LalaH52

•3 months ago

9 Replies

any help

hi everyone hope you’re coping today I have lupus and Fibromyalgia had Covid over Christmas new year still off what seems like chest or respiratory infection...

hi everyone hope you’re coping today I have lupus and Fibromyalgia had Covid o...

Geeforce99

•3 months ago

1 Reply

St. Helens, IOW

A beach i kayak from in the summer. I’ll try to remember to just take a book instead ☺️

A beach i kayak from in the summer. I’ll try to remember to just take a book ins...

IsleofWight1

•3 months ago

6 Replies

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Lupus specialist Gloucestershire, or Somerset, Oxfordshire

Hi, new here, newly diagnosed with renal involvement. I live in Gloucestershire....any recommendations for the best specialists in my area? Would be willing to...

Hi, new here, newly diagnosed with renal involvement. I live in Gloucestershire....

Severn770

•3 months ago

3 Replies

wrist pain and redness

hey lovelies I was just wondering if anyone can relate to wrist pain on pinkie side , redness and swelling ? No numbness or pins and needles . More painful...

hey lovelies I was just wondering if anyone can relate to wrist pain on pinkie...

Tiggywoos

•3 months ago

14 Replies

Private Rheumatology appointment

After waiting months for an appointment on NHS I've decided to go privately. This is a lot of money for me and so am really keen to get the most out of it....

After waiting months for an appointment on NHS I've decided to go privately. Th...

Funkyweirdo

•3 months ago

8 Replies

To come off Hydroxychoroquine with No alternative drug replacement for it.

Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some...

Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 cri...

KnitSewPurl

•3 months ago

17 Replies

I can’t accept this new life.

Just that really. The days of being unable to do anything, then the days of rest necessary to recover. The fatigue in between flares. For a few years I’ve...

Just that really. The days of being unable to do anything, then the days of res...

IsleofWight1

•3 months ago

35 Replies

Uv gloves recommendations needed

Hi, I am uv sensitive and have to wear uv gloves when not in the house.The ones I currently get are from amazon, £5 a pair. Does anyone also need to wear uv...

Hi, I am uv sensitive and have to wear uv gloves when not in the house.The ones ...

pattypatchwork

•3 months ago

17 Replies

fatigue

Hi folks I haven’t posted for a while but saw this on my Facebook feed and know it will resonate with many people in this group. keep smiling 😘

Hi folks I haven’t posted for a while but saw this on my Facebook feed and know ...

svfarmer

•3 months ago

11 Replies

Skin spots

In addition to the red spots on my fingers I get them on my nails. Although I've been getting them on and off for a long time now, I recently had quite a few...

In addition to the red spots on my fingers I get them on my nails. Although I'v...

Brychni

•3 months ago

3 Replies

Triplet cuties

Hello everyoneJust thought i'd show you these three cutie sets of triplet lambs born on a farm near Swindon this week. Hopefully they will give you all a boost...

Hello everyoneJust thought i'd show you these three cutie sets of triplet lambs ...

misty14

•3 months ago

33 Replies

Is this a lupus rash

Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for...

Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia,...

Peppermints

•3 months ago

7 Replies

is this a lupus rash?

Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and...

Just wanted to add: I’m not taking anything anyone says as a diagnosis or medica...

Lostnthought00

•3 months ago

29 Replies

How long for ANA/ENA results?

I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I...

I've had quite a few symptoms of what my GP suspects might be a CTD, spanning ba...

Helzipop

•3 months ago

27 Replies

Lleswyl Festival - Friday 23rd February 2024

Lleswyl 2024, brought to you by Welsh charity Daring to Dream, is the only festival that shines a light on people in Wales living with #physicalillness. It is...

Lleswyl 2024, brought to you by Welsh charity Daring to Dream, is the only festi...

michaellasmith

Administrator•3 months ago

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D Mannose

Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had...

Hello everyone Just wondered if anyone here has used D Mannose tablets to man...

RosaD

•3 months ago

18 Replies

Confused and scared and looking for insights :-)

Hi all :) I'm a little confused about what's happening in my body and am in the middle of investigations. To cut my story as short as possible: - Last May...

Hi all :) I'm a little confused about what's happening in my body and am in th...

Pinyet

•3 months ago

15 Replies

Test results show no inflammation

I posted here 4 months ago and got my blood tested by the GP. There are no inflammatory markers in my blood, but I have a constant sore throat and dry eyes...

I posted here 4 months ago and got my blood tested by the GP. There are no infla...

scool

•3 months ago

16 Replies

Disability claim

Hi, my name is Jolita. Recently I was diagnosed with Lupus. I live in Gloucestershire, would like to connect with people who have the same disease like me. I...

Hi, my name is Jolita. Recently I was diagnosed with Lupus. I live in Gloucest...

JolitaW

•3 months ago

2 Replies

Endoscopy

Can anyone tell me if as a Lupus patient with other complex health issues whether I should take antibiotics as a cover in case of infection prior to...

Can anyone tell me if as a Lupus patient with other complex health issues whethe...

posthinking01

•3 months ago

16 Replies

Going abroad

HiAll I'm going on holiday in July to Portugal with my family. I normally just holiday in England so it's a first. I have 2 questions. With my medication do I...

HiAll I'm going on holiday in July to Portugal with my family. I normally just h...

Bull5160

•3 months ago

23 Replies

Iloprost infusions

Hello, community. I live in the UK and I have lupus, Raynaud's and Erythromelalgia. The EM causes me great pain and distress, particularly at night, when the...

Hello, community. I live in the UK and I have lupus, Raynaud's and Erythromelal...

skylark15

•3 months ago

5 Replies

Does hydroxychloroquine cause low platelets?

Or is it something else?

Brychni

•3 months ago

4 Replies

Lupus diagnosis yesterday

Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD....

Hello everyone, been a tricky few months. You all know what it's like.just wan...

BonnyB

•3 months ago

15 Replies

Teeth sensitivity at the dentist

I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m...

I have been diagnosed with SLE Lupus for a year now. Does anyone find their te...

Chocolate1956

•3 months ago

7 Replies

Fatigue

Hello everyone, here again looking for advice with regard to fatigue. As most people on here fatigue is a real issue. Some days are quite good but other days I...

Hello everyone, here again looking for advice with regard to fatigue. As most pe...

Mctd

•3 months ago

28 Replies

🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus

Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking...

Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive...

Naladog

•3 months ago

1 Reply

SLE medication.

Hi I have SLE had it for 27 years and have not taken any thing for it just started taking Plaquenil. (Hydroxychloroquine) Is there anyone out there that has...

Hi I have SLE had it for 27 years and have not taken any thing for it just start...

Elise3457

•3 months ago

15 Replies

Multiple chemical sensitivity (MCS)

Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung...

Hi everyone, I hope this post finds everyone as well as they can be right now. I...

field

•3 months ago

21 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2024

Practical Weight loss advice whilst on steroids and MMF

any help

St. Helens, IOW

Lupus specialist Gloucestershire, or Somerset, Oxfordshire

wrist pain and redness

Private Rheumatology appointment

To come off Hydroxychoroquine with No alternative drug replacement for it.

I can’t accept this new life.

Uv gloves recommendations needed

fatigue

Skin spots

Triplet cuties

Is this a lupus rash

is this a lupus rash?

How long for ANA/ENA results?

Lleswyl Festival - Friday 23rd February 2024

D Mannose

Confused and scared and looking for insights :-)

Test results show no inflammation

Disability claim

Endoscopy

Going abroad

Iloprost infusions

Does hydroxychloroquine cause low platelets?

Lupus diagnosis yesterday

Teeth sensitivity at the dentist

Fatigue

🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus

SLE medication.

Multiple chemical sensitivity (MCS)

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