Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for December 2023

road to diagnosis

Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in...

Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so...

RA_123

•4 months ago

3 Replies

colonoscopy query

I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass...

I’m scheduled to endure a colonoscopy on 16th January. We are booked on a fligh...

Stills

•4 months ago

25 Replies

Finger misbehaving (!) ...Ulnar Deviation

Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people...

Hello, I recently noticed my middle finger has gone bent towards the pinky fing...

Paprika60

•4 months ago

16 Replies

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Latest re -Lupus and Covid?

Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My...

Hello All - I hope you all had a very happy Christmas. Does anyone know the lat...

BeeManShrop

•4 months ago

16 Replies

Diagnosis Journey

I was wondering if anybody else experienced frustration and gaslighting along their diagnosis journey. After being bounced from specialist to specialist...

I was wondering if anybody else experienced frustration and gaslighting along th...

AnxiousOwl4

•4 months ago

8 Replies

Piriformis Syndrome

HiHas anyone had any experience with, had or has Piriformis Syndrome please? TIA X

HiHas anyone had any experience with, had or has Piriformis Syndrome please? TI...

Wytchylady

•4 months ago

1 Reply

low lymphocytes in blood. High white cells in urine. Should I be worried?

Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And +++ Leukocytes in urine. As well as low vitamin D & low ferritin. I take Vit...

Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And...

Beau2016

•4 months ago

4 Replies

Hello

Hi, have read many things on this site, nice to feel not so isolated with this difficult often misunderstood illness. It’s a pity I can’t see details for a...

Hi, have read many things on this site, nice to feel not so isolated with this d...

Bichon2023

•4 months ago

4 Replies

Kidney Problems possibly due to zinc intake

I have Lupus and secondary AI of Sjogrëns. I decided years ago to treat it without meds and am improving. Slowly, but improving. Everyone keeps pushing zinc as...

I have Lupus and secondary AI of Sjogrëns. I decided years ago to treat it witho...

Hidden

•4 months ago

8 Replies

Merry Christmas and Happy New Year to everyone!! 🎄🦌🎅❄️🛷🎁

Hope everyone had a wonderful day 🎄

Graystar

•4 months ago

Be the first to reply

Merry Christmas everyone 🎄🎄🎄

Have a wonderful Christmas 🎅 🎄everyone

Jerg

•4 months ago

1 Reply

Merry Christmas

Wishing you all a merry Christmas. I hope your 2024 is a good year.

Duchess1088

•4 months ago

3 Replies

Covid

hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just...

hi all, I have been diagnosed with tumid lupus and am currently being investiga...

JLAR01

•4 months ago

4 Replies

Merry Christmas Everyone 🎄🎁🍾🥂🎉❤️

Wishing you wonderful people the happiest of Christmases. I hope the festivities go well and do not tire you, that your family and friends will shower you with...

Wishing you wonderful people the happiest of Christmases. I hope the festivities...

CecilyParsley

•4 months ago

13 Replies

Merry Christmas

hi folks, I haven’t posted in a while but just wanted to wish everyone a very happy Christmas- lots of love Bea & Mira 🎄🎄😘

hi folks, I haven’t posted in a while but just wanted to wish everyone a very ha...

svfarmer

•4 months ago

27 Replies

Merry Christmas

Hello. I just want to wish all you beautiful, strong people a lovely peaceful Christmas. Also thank you for your love and support of me and everyone else in...

Hello. I just want to wish all you beautiful, strong people a lovely peaceful Ch...

MonicaT

•4 months ago

6 Replies

Armpit swelling

Anyone else have armpit swelling that never completely goes away? I have had this on one side only for around 4 years now. Seen by breast clinic twice, no...

Anyone else have armpit swelling that never completely goes away? I have had thi...

bathouse

•4 months ago

18 Replies

Severe back pain

Hi fellow Lupies, There have been one or two posts about back pain which I was keen to read as I've just, at last, after long standing back problems for around...

Hi fellow Lupies, There have been one or two posts about back pain which I was k...

LuluM25

•4 months ago

9 Replies

Bleeding issue...

Hi, Diagnosed with lupus profundus 10 years or more now but in recent visits to the doc to check bloods etc, I end up bleeding a lot. Doc took blood then put...

Hi, Diagnosed with lupus profundus 10 years or more now but in recent visits to...

Montysmum1

•4 months ago

8 Replies

spinal haematoma

hi there lovely people , was just wondering has anyone had bleeding on the spinal cord ? I am paralysed at the moment as I had a sharp pain in my back &...

hi there lovely people , was just wondering has anyone had bleeding on the spina...

tremarel

•4 months ago

15 Replies

Terrible pain

Oh I feel for you I had this years ago but remember the pain I found the splints made mine worse I had a nerve conduction test and it showed that I had severe...

Oh I feel for you I had this years ago but remember the pain I found the splints...

Mumcon

•4 months ago

Be the first to reply

We're recruiting for a new Social Media & Projects Officer!

If you are passionate about working with our fantastic community to create engaging online content to raise awareness of #lupus, you can find out more about...

If you are passionate about working with our fantastic community to create eng...

Alida_Bennett

Partner•4 months ago

Be the first to reply

CARPEL TUNNEL

Hi, wonder if anyone has any tips on severe carpel tunnel pain during the night early morning. I wear splint at night but when 3 fingers on right hand go numb...

Hi, wonder if anyone has any tips on severe carpel tunnel pain during the night ...

Haired

•4 months ago

16 Replies

Car-T cell therapy might cure Systemic Autoimmune Diseases

Hi my dear lupies, I hope you are well. Another promising article about car-T cell therapy 😍🙏💚💜:...

Hi my dear lupies, I hope you are well. Another promising article about car-T c...

Naladog

•4 months ago

5 Replies

Living with sceladerma

Hi there I have sceladerma and as I get older my problems increase. I have a part time job ( I wish I could work more) as this is all I can manage. I'm a...

Hi there I have sceladerma and as I get older my problems increase. I have a par...

Pixieluna1

•4 months ago

8 Replies

Is it possible for me to get back to skateboard with autoimmune disease ever?Or do I need to give it up forever?

Hi everyone I have an autoimmune disease they say it might be lupus and myosis and Systemic Sclerosis. I don't even now which one it is or if it's all of them...

Hi everyone I have an autoimmune disease they say it might be lupus and myosis a...

Crow9

•4 months ago

11 Replies

Latest results from the INSPIRE project - how doctors diagnose neuropsychiatric symptoms in lupus

A new study has found that doctors have a variety of opinions on whether different neuropsychiatric symptoms are directly caused by lupus. Doctors rated their...

A new study has found that doctors have a variety of opinions on whether differe...

Debbie_kinsey

Administrator•4 months ago

4 Replies

Microblading eyebrows

HiHas anyone with Lupus Profundus got microblading to replace eyebrows ? Wondering if it's a possibility....fed up drawing them in everyday. Thanks...

HiHas anyone with Lupus Profundus got microblading to replace eyebrows ? Wonder...

Montysmum1

•4 months ago

4 Replies

Hydroxychloroquine and Antibiitics

Hi, just wondering if people stop taking hydroxychloroquine when taking a course of antibiotics?

Hi, just wondering if people stop taking hydroxychloroquine when taking a course...

LynnDeeLou

•4 months ago

11 Replies

Dr John Campbell - Vitamin D

”Why aren’t we shouting it from the rooftops” ? Now conclusive This is for everything https://youtu.be/x5sc7G4s4CY?si=lVLVjfPasxtRJFHG

”Why aren’t we shouting it from the rooftops” ? Now conclusive This is for e...

Polaris

•4 months ago

26 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2023

road to diagnosis

colonoscopy query

Finger misbehaving (!) ...Ulnar Deviation

Latest re -Lupus and Covid?

Diagnosis Journey

Piriformis Syndrome

low lymphocytes in blood. High white cells in urine. Should I be worried?

Hello

Kidney Problems possibly due to zinc intake

Merry Christmas and Happy New Year to everyone!! 🎄🦌🎅❄️🛷🎁

Merry Christmas everyone 🎄🎄🎄

Merry Christmas

Covid

Merry Christmas Everyone 🎄🎁🍾🥂🎉❤️

Merry Christmas

Merry Christmas

Armpit swelling

Severe back pain

Bleeding issue...

spinal haematoma

Terrible pain

We're recruiting for a new Social Media & Projects Officer!

CARPEL TUNNEL

Car-T cell therapy might cure Systemic Autoimmune Diseases

Living with sceladerma

Is it possible for me to get back to skateboard with autoimmune disease ever?Or do I need to give it up forever?

Latest results from the INSPIRE project - how doctors diagnose neuropsychiatric symptoms in lupus

Microblading eyebrows

Hydroxychloroquine and Antibiitics

Dr John Campbell - Vitamin D

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