Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2023

WE'RE RECRUITING!

If you are interested in joining LUPUS UK's staff team in the new role of Young People & Family Support Officer, please take a look at the job advert and apply...

If you are interested in joining LUPUS UK's staff team in the new role of Young ...

Alida_Bennett

Partner•6 months ago

1 Reply

Join us in signing a joint letter asking the PM to remove VAT from factor 30+ sunscreen

Join LUPUS UK and other charities, clinicians & patients to ask the Prime Minister to remove VAT from factor 30+ sunscreen. Sunscreen is an essential...

Join LUPUS UK and other charities, clinicians & patients to ask the Prime Minist...

Debbie_kinsey

Administrator•6 months ago

4 Replies

dizzy spells

does anyone else experience dizzy spells on lying down? I’ve had my eyes tested and my ears checked but can’t find a reason for the awful dizziness I...

does anyone else experience dizzy spells on lying down? I’ve had my eyes tested ...

BK47

•6 months ago

13 Replies

Want to take advantage of all our features? Just log in!

well, long time no see. A little update and some advice please

Well, it's been a while. A very very long while. So for a little update within the last 4 years that I think I last posted I have had a baby 🫣😨. About 19...

Well, it's been a while. A very very long while. So for a little update within ...

Karm

•6 months ago

6 Replies

York Lupus Group Coffee and Chat meeting - 9th December at 11.30

Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield,...

Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th D...

michaellasmith

Administrator•6 months ago

Be the first to reply

Zentiva rears it's ugly head

Looks like it's here we go again, I could only get 7 of my 56 tabs last Friday and today the pharmacy, which is a Well pharmacy says my hubby will have to...

Looks like it's here we go again, I could only get 7 of my 56 tabs last Friday a...

Poshcards

•6 months ago

9 Replies

Trying not to panic

Good morning all, I need your positive vibes/prayers/rainbows/cat and puppy photos please. I have been experiencing shortness of breath with fever the past 3...

Good morning all, I need your positive vibes/prayers/rainbows/cat and puppy phot...

MusicalFurbaby

•6 months ago

48 Replies

Tooting virtual coffee and chat meeting - Wednesday 22nd at 2pm!

The South London Lupus Group are launching a coffee and chat group in Tooting, the first meeting will be virtual, with view for meetings to go face-to-face...

The South London Lupus Group are launching a coffee and chat group in Tooting, t...

michaellasmith

Administrator•6 months ago

2 Replies

HRT and Lupus

I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and...

I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple o...

RachelMaryS

•6 months ago

17 Replies

Ulcerative colitis

Does anyone have experience of this, please? I have had SLE/Lupus for 38 years (I am now 74) and am waiting for an urgent referral for a possible colonoscopy....

Does anyone have experience of this, please? I have had SLE/Lupus for 38 years (...

Larks0ng

•6 months ago

18 Replies

Sjogrens - Tooth Loss, Gum Disease

Hello, I'm new to this and hoping someone can help. I have Sjogrens and a couple of other autoimmune conditions. I experienced a dramatic deterioration with...

Hello, I'm new to this and hoping someone can help. I have Sjogrens and a coupl...

Crystal68

•6 months ago

29 Replies

Foot/mouth hand or something else??

Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes...

Does anyone know what this is. It started with red burning spots then turned int...

Shine54

•6 months ago

6 Replies

Interdisciplinary Research Could Lead to New Targeted Treatments for Rheumatoid Arthritis - No more guess and test 🙏

Good morning 🌞 📖👩‍🔬 https://news.cuanschutz.edu/medicine/research-could-lead-to-new-targeted-treatments-for-rheumatoid-arthritis #RheumatoidArthritis...

Good morning 🌞 📖👩‍🔬 https://news.cuanschutz.edu/medicine/research-could-lea...

Naladog

•6 months ago

Be the first to reply

Sjogrens

Hi Everyone, does anyone with Sjogrens also get conjunctivitis. My eyes over last couple of months have been feeling dryer than normal and in the last 4 weeks...

Hi Everyone, does anyone with Sjogrens also get conjunctivitis. My eyes over las...

Zeberdee1

•6 months ago

11 Replies

Lupus and ECT teacher

I'm a 26 year old First year ECT and I'm really struggling with my mild lupus at the moment. I was thinking of leaving teaching after my ECT years are finished...

I'm a 26 year old First year ECT and I'm really struggling with my mild lupus at...

WellReadHead

•6 months ago

8 Replies

Webinar on financial planning with lupus

Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information,...

Monday 20th November at 5:30pm we are hosting a webinar with specialist financia...

Debbie_kinsey

Administrator•6 months ago

2 Replies

Rash on Feet

hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in...

hello everyone, I recently just joined after discovering this. For the last few ...

Hidden

•6 months ago

6 Replies

ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and...

There was a great response to the invite for interviewees for zoom or email inte...

RupertW-SUMS

•6 months ago

1 Reply

Lupus information and stories

https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with...

https://lupusnewstoday.com/category/news/ This link works I hope. If you are ...

MrsMarigold

•6 months ago

Be the first to reply

What is the best app for lupus diet.

I’m struggling with my weight and what to avoid .

Gabriel8

•6 months ago

5 Replies

Do anyone have a movement disorder?

I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like...

I haven't got lupus but have aps and from what I've been told you can have a mov...

Charts

•6 months ago

5 Replies

Hand rash/chicken pox

Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I had burning red spots on my hand then started getting patchy rashes on hands then...

Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I ha...

Shine54

•6 months ago

9 Replies

Malar rash?

it lasted a few days. It burned especially when I was warm or sweaty. No joint pain, but I had neck and back muscle soreness. History of hashimotos and...

it lasted a few days. It burned especially when I was warm or sweaty. No joint p...

Userunknownlupus

•6 months ago

1 Reply

Advice please 😌

Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I...

Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people ...

Rocinante_89

•6 months ago

11 Replies

updated Sjögren’s leaflet

https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!

https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-informat...

weathervane

•6 months ago

9 Replies

CANCELLED - North Wales LG Get Together

Hi all, Unfortunately we have had to cancel the North Wales Lupus Group Get Together this Sunday. We will announce a new date soon as soon as we can. Warm...

Hi all, Unfortunately we have had to cancel the North Wales Lupus Group Get Tog...

michaellasmith

Administrator•6 months ago

Be the first to reply

Anyone else taking Hydorxychloroquine above guidelines for weight.

After 18 months of taking 400mg of HYX (100mg above recommendations for my weight) I have been asked to reduce dose to 300mg. I was put on 400mg to get my...

After 18 months of taking 400mg of HYX (100mg above recommendations for my weigh...

RosieA

•6 months ago

19 Replies

Zentiva

Hi all. I don't believe it but Zentiva has gone walk about again. My pharmacist said , no problem last time, it will be OK now. Guess what , I got IPCA again...

Hi all. I don't believe it but Zentiva has gone walk about again. My pharmacist ...

Potatoheat

•6 months ago

9 Replies

Shingles - to vacc or not to vacc

Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map...

Morning wonderful hive mind. Wonder if I can pick your brains... I've received...

Wolfie_at_the_door

•6 months ago

18 Replies

Vertigo

anyone has any tips for vertigo as m having surgery for knee surgery on Tuesday and just not getting any better I m doing the exercises and Betahishine m now...

anyone has any tips for vertigo as m having surgery for knee surgery on Tuesday ...

Mystik

•6 months ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2023

WE'RE RECRUITING!

Join us in signing a joint letter asking the PM to remove VAT from factor 30+ sunscreen

dizzy spells

well, long time no see. A little update and some advice please

York Lupus Group Coffee and Chat meeting - 9th December at 11.30

Zentiva rears it's ugly head

Trying not to panic

Tooting virtual coffee and chat meeting - Wednesday 22nd at 2pm!

HRT and Lupus

Ulcerative colitis

Sjogrens - Tooth Loss, Gum Disease

Foot/mouth hand or something else??

Interdisciplinary Research Could Lead to New Targeted Treatments for Rheumatoid Arthritis - No more guess and test 🙏

Sjogrens

Lupus and ECT teacher

Webinar on financial planning with lupus

Rash on Feet

ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

Lupus information and stories

What is the best app for lupus diet.

Do anyone have a movement disorder?

Hand rash/chicken pox

Malar rash?

Advice please 😌

updated Sjögren’s leaflet

CANCELLED - North Wales LG Get Together

Anyone else taking Hydorxychloroquine above guidelines for weight.

Zentiva

Shingles - to vacc or not to vacc

Vertigo

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive