Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for November 2023

normal test results - somehow frustrating!

I should be glad that my lung function tests this week are called normal - but I certainly don't feel or function normally! Is it wrong to feel upset that...

I should be glad that my lung function tests this week are called normal - but I...

redmaggie

•5 months ago

3 Replies

new meds

12 months ago my methotrexate was upped to 25 ml from 20 ml injections.first 4 months ok then terrible acne around my mouth managed to she my mixed connective...

12 months ago my methotrexate was upped to 25 ml from 20 ml injections.first 4 m...

Ianrussell69

•5 months ago

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Financial planning webinar now available on YouTube

Hi all The financial planning webinar we held with The Stonewood Group last week is now available to watch on our YouTube channel here:...

Hi all The financial planning webinar we held with The Stonewood Group last wee...

Debbie_kinsey

Administrator•5 months ago

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White fingers

Hi just wondering if any one else gets white fingers . I used to get it now and again but recently it's most of the time .

Hi just wondering if any one else gets white fingers . I used to get it now and ...

Diannecat

•5 months ago

16 Replies

Colds and flu…🧐🥹?

”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family...

”Why don’t lupus patients catch cold? Many, many patients comment on this observ...

Suvi8901

•5 months ago

33 Replies

Next Oxfordshire Lupus Group meeting - 6th December 2pm!

Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at...

Following a successful first meeting for the Oxfordshire Lupus Group, we are thr...

michaellasmith

Administrator•5 months ago

2 Replies

Adenomynosis treatment with CTD-SLE/Raynaud's & C4 deficiency

Hi Lupies and Debbie_kinsey , I have just been told by ultrasound that I have adenomynosis. I'm not surprised because of the extreme pain and heavy periods...

Hi Lupies and Debbie_kinsey , I have just been told by ultrasound that I have a...

Naladog

•5 months ago

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Updates to the EULAR guidelines on managing lupus

The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how...

The European Alliance of Associations for Rheumatology (EULAR) have updated thei...

Debbie_kinsey

Administrator•5 months ago

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In a sexual relstionship with someone who has Lupus type SLE.

How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate...

How do i maintain a healthy sexual relationship with someone who has Lupus. At ...

Tameeka723

•5 months ago

2 Replies

indentations appear anywhere

has anyone had these indentations appearing I’ve had on face arms hands feet and these in legs. Terrible acheing legs then these appear . Only thing I can find...

has anyone had these indentations appearing I’ve had on face arms hands feet and...

stiff19

•5 months ago

7 Replies

Thoughts and Help

Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can...

Hello all! I am new here. I know this is a lupus / autoimmune group, but before ...

Hidden

•5 months ago

20 Replies

ulcers and inflammed gums

Hey guys I’m having a flare , I have bleeding gums that are inflame and ulcers all on the roof of my mouth and all inside my mouth , it’s so painful can anyone...

Hey guys I’m having a flare , I have bleeding gums that are inflame and ulcers a...

Tigerlilly20

•5 months ago

27 Replies

South and East Scotland Lupus Group - Virtual meeting and Christmas Quiz - 16th December 10am-12pm

Come and join the South and East Scotland Lupus Group for a combined Christmas virtual meeting across all areas, with coffee and a quiz on Saturday 16th...

Come and join the South and East Scotland Lupus Group for a combined Christmas v...

michaellasmith

Administrator•5 months ago

2 Replies

Musselburgh Coffee and Chat meeting - 2nd December!

Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton...

Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturda...

michaellasmith

Administrator•5 months ago

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Gabapentin for lupus pain

Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.

Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if...

BonnyB

•5 months ago

21 Replies

Migraines

Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have...

Hello lovely community, I was in hospital yesterday with a flare-up; we now thin...

MusicalFurbaby

•5 months ago

16 Replies

Where to next?

Hi all, I am posting on behalf of my brother in hope of some advice or signposting. I’ll try and keep it as brief as possible - my brother became unwell ten...

Hi all, I am posting on behalf of my brother in hope of some advice or signpos...

Lahodges10

•5 months ago

26 Replies

New research about SLE

The immune system activation through XIST and TLR7 is female-specific, helping explain the observation that lupus is so much more common in women compared to...

The immune system activation through XIST and TLR7 is female-specific, helping e...

Naladog

•5 months ago

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Worried

hi I joined this group over a year ago I often read some of the posts and find them informative. I’m a bit of a technophobe and this is my first time posting...

hi I joined this group over a year ago I often read some of the posts and find t...

Pennypip

•5 months ago

13 Replies

Problems with muscle weakness

I was diagnosed with Lupus in 2014 but have had it for much longer. Myalgia and Myositis have been long standing problems for me. It was Myalgia, muscle pain...

I was diagnosed with Lupus in 2014 but have had it for much longer. Myalgia and ...

Wytchylady

•5 months ago

2 Replies

Sharp pains in head - lupus related or something else?

Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains...

Hi all, I have general nerve pain in my head ever since I had concussion and...

Treetop33

•5 months ago

16 Replies

Palpitations

Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 hour . Of course it had stopped by the time I was monitored, so they didn't...

Hi all. Just had a horrible weekend , fast irregular heart rate, lasted over 1 h...

Potatoheat

•5 months ago

4 Replies

Doggit - has anyone had huge problem with bloating when on HRT? Have been on bio identical and recently changed to Body identical.

has anyone had problems with bloating when taking HRT? Was on bio identical

doggit

•5 months ago

1 Reply

Cutie Twosome

Hello everyoneHope your all keeping as well as possible. Just had to show you these two cuties. They're harvest mice who have made their home a plant pot in...

Hello everyoneHope your all keeping as well as possible. Just had to show you th...

misty14

•5 months ago

34 Replies

kali9

Hello everyone, I was diagnosed with lupus in March this year. My blood test show that I am positive for SLE and Mixed Connective Tissue Disorder. I am not...

Hello everyone, I was diagnosed with lupus in March this year. My blood test sh...

kali9

•5 months ago

14 Replies

Mouth dryness no saliva

Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have...

Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastille...

KnitSewPurl

•5 months ago

36 Replies

Flu and Covid vaccine

I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone...

I was diagnosed with lupus in March this year. I dont know if I should take the ...

kali9

•5 months ago

16 Replies

change of meds

Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus...

Been having a bad year. Ive been unwell since July and was eventually hospitalis...

mitty

•5 months ago

6 Replies

NEW GROUP - Derbyshire Lupus Group - first Coffee and Chat meeting on the 11th December at 2pm!

We are launching a new Coffee and Chat group in Derbyshire; the first meeting will be virtual and will take place on Monday 11th December at 2pm. This is a...

We are launching a new Coffee and Chat group in Derbyshire; the first meeting wi...

michaellasmith

Administrator•5 months ago

3 Replies

Tacrolimus/Protopic

Hi, I was diagnosed with lupus in 2019 and informed that it is actually chilblain lupus earlier this year. I have been prescribed Tacrolimus/Protopic...

Hi, I was diagnosed with lupus in 2019 and informed that it is actually chilbla...

pattypatchwork

•5 months ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2023

normal test results - somehow frustrating!

new meds

Financial planning webinar now available on YouTube

White fingers

Colds and flu…🧐🥹?

Next Oxfordshire Lupus Group meeting - 6th December 2pm!

Adenomynosis treatment with CTD-SLE/Raynaud's & C4 deficiency

Updates to the EULAR guidelines on managing lupus

In a sexual relstionship with someone who has Lupus type SLE.

indentations appear anywhere

Thoughts and Help

ulcers and inflammed gums

South and East Scotland Lupus Group - Virtual meeting and Christmas Quiz - 16th December 10am-12pm

Musselburgh Coffee and Chat meeting - 2nd December!

Gabapentin for lupus pain

Migraines

Where to next?

New research about SLE

Worried

Problems with muscle weakness

Sharp pains in head - lupus related or something else?

Palpitations

Doggit - has anyone had huge problem with bloating when on HRT? Have been on bio identical and recently changed to Body identical.

Cutie Twosome

kali9

Mouth dryness no saliva

Flu and Covid vaccine

change of meds

NEW GROUP - Derbyshire Lupus Group - first Coffee and Chat meeting on the 11th December at 2pm!

Tacrolimus/Protopic

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