Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2023

Possible lupus???

Had graves years ago, was brought on by pregnancy, it levelled itself out. I went to the doctors to get bloods as I thought it maybe back. My Thyriod has came...

Had graves years ago, was brought on by pregnancy, it levelled itself out. I wen...

RebeccaD1231

•7 months ago

1 Reply

Advise Please

Hi, If any of you could offer any opinions / advise on my blood tests it would be apricated. Bit of back ground: Underactive Thyroid for around 7 years...

Hi, If any of you could offer any opinions / advise on my blood tests it would ...

Belinda1136

•7 months ago

10 Replies

Ligting atudy

Filled in survey but won't accept my email. Sounds useful

catblue1865

•7 months ago

2 Replies

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Leeds Coffee and Chat - This Saturday - everyone welcome!

Don't forget to Join us this Saturday for our next LEEDS LUPUS UK Coffee & Chat Meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street,...

Don't forget to Join us this Saturday for our next LEEDS LUPUS UK Coffee & Chat ...

michaellasmith

Administrator•7 months ago

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Light sensitivity study

Hello all, I have only come across the subject of light sensitivity in connection with medical conditions such as lupus and migraines a few weeks ago and am...

Hello all, I have only come across the subject of light sensitivity in connecti...

hunkyd0ry

•7 months ago

10 Replies

YORK LUPUS GROUP Coffee and Chat meeting - This Saturday!

Don't forget to Join us this Saturday for our next YORK LUPUS GROUP Coffee & Chat Meeting at the Hidden Monkey Tea Rooms, 34 The Market Place, Malton, YO17...

Don't forget to Join us this Saturday for our next YORK LUPUS GROUP Coffee & Cha...

michaellasmith

Administrator•7 months ago

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York Lupus UK coffee morning this Saturday!

I am looking forward to seeing all of you Lupies in the York and surrounding areas in Malton this Saturday 14 October at Hidden Monkey coffee shop in Malton...

I am looking forward to seeing all of you Lupies in the York and surrounding are...

Riselikeaphoenix_123

•7 months ago

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London lupus specialist

Hi All me again, Hope you are all as well as you can be. So little update from me been on and off steroids since the start of this year they help a lot started...

Hi All me again, Hope you are all as well as you can be. So little update from m...

Haylz2109

•7 months ago

9 Replies

Nottingham research team looking for patients & carers

Are you living with lupus, scleroderma, myositis, or vasculitis? Do you live in the Nottingham area? The RECORDER team are looking for patients & carers to...

Are you living with lupus, scleroderma, myositis, or vasculitis? Do you live in ...

Debbie_kinsey

Administrator•7 months ago

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Voclosporin for lupus nephritis now approved in Scotland

We are very pleased that voclosporin, a treatment for lupus nephritis, has now been approved for use in Scotland. This follows approval for use in England and...

We are very pleased that voclosporin, a treatment for lupus nephritis, has now b...

Debbie_kinsey

Administrator•7 months ago

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Advice about using private health?

Hi I am looking for some advice on going private for rheumatology services. I recently paid for some rheumatology blood tests via the Nuffield private...

Hi I am looking for some advice on going private for rheumatology services. I ...

Punkysloth

•7 months ago

22 Replies

hair loss

Hi I still haven’t seen a rheumatologist so don’t know is I have Lupus or anything else. My Gp thinks it’s something autoimmune and I’ve had so many blood...

Hi I still haven’t seen a rheumatologist so don’t know is I have Lupus or anythi...

TheRedOnes

•7 months ago

22 Replies

Anti-nuclear factor levels

Hi all, this is my first time posting here. I'm wondering whether anyone can help me make sense of blood results. Anti-nuclear Factor DNA states positive....

Hi all, this is my first time posting here. I'm wondering whether anyone can hel...

Funkyweirdo

•7 months ago

8 Replies

Does Prednisolone cause anxiety, panic and depression?

I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on prednisone for 8 months, high dose 25 mg to start with now reduced considerably to...

I’ve been diagnosed with lupus end of Jan 2023. Since then I have been on predni...

TomatoEater

•7 months ago

21 Replies

Devon and Cornwall Lupus Group Information day - Saturday 14th October - Everyone welcome!

Come join the Devon and Cornwall Lupus Group for our next Information day, next Saturday. It will be a great opportunity to learn, network and support LUPUS...

Come join the Devon and Cornwall Lupus Group for our next Information day, next ...

michaellasmith

Administrator•7 months ago

3 Replies

North West Lupus Group - Virtual Coffee and Chat meeting Tuesday 10th October at 2pm!

Come join the North West Lupus Group on Tuesday the 10th October at 2.30pm, for our next virtual Coffee and Chat meeting, everyone welcome! If you would like...

Come join the North West Lupus Group on Tuesday the 10th October at 2.30pm, for ...

michaellasmith

Administrator•7 months ago

2 Replies

GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue

Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer...

Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter...

Wendy39

•7 months ago

44 Replies

Hello all!

I just wanted to pop in and say hi to everyone. 👋 I have been a member of Lupus uk since 1995 and have enjoyed the rollercoaster ride that is Lupus for...

I just wanted to pop in and say hi to everyone. 👋 I have been a member of Lup...

Linds70

•7 months ago

14 Replies

Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!

Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity...

Its almost time to celebrate Black History Month & Lupus Awareness Month, this S...

michaellasmith

Administrator•7 months ago

2 Replies

Help needed with muscle pain!

hi everyone, does anyone have severe muscle pain, stiffness, and rendered immobile due to how painful this is? I’m ok if I don’t do too much but that’s a fine...

hi everyone, does anyone have severe muscle pain, stiffness, and rendered immobi...

JMarshall

•7 months ago

3 Replies

The best supplements?

Hello 🤗 I have recently joined this group after a diagnosis of SLE. I was wondering if anyone had any information or recommendations for which supplements are...

Hello 🤗 I have recently joined this group after a diagnosis of SLE. I was wonde...

Loveanimals01

•7 months ago

6 Replies

Thank you and update 🙂

Just to say thank you to everyone who answered my multiple post earlier this year and in the summer. I’ve been taking Cellcept for 3 months now with no...

Just to say thank you to everyone who answered my multiple post earlier this ye...

Beau2016

•7 months ago

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Positive clonus and lupus

Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I...

Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus ove...

Sunshine634

•7 months ago

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Cutaneous Lupus

Hi all, having joined the forum today am giving a big HELLO and best wishes to all. A close family member has had cutaneous lupus for the past...

Hi all, having joined the forum today am giving a big HELLO and bes...

ExpatRay

•7 months ago

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Defeated

I have been diagnosed with DLE but have symptoms of SLE such as multiple joint pain and swelling and fatigue. I fractured my foot 18moths ago and it hasnt...

I have been diagnosed with DLE but have symptoms of SLE such as multiple joint p...

Quuen

•7 months ago

7 Replies

Coping with joint pain

hi all, I was wondering is anyone had good tips for dealing with joint pain. Mainly hands, wrists,, feet, ankles and elbows. Elbow pain sometimes wakes me up...

hi all, I was wondering is anyone had good tips for dealing with joint pain. Ma...

NewToHats

•7 months ago

27 Replies

Black History Month and Lupus Awareness Month Event - This Saturday 7th October - Tickets still available!

There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great...

There is still time to get your free ticket and join us this Saturday to celebra...

michaellasmith

Administrator•7 months ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2023

Possible lupus???

Advise Please

Ligting atudy

Leeds Coffee and Chat - This Saturday - everyone welcome!

Light sensitivity study

YORK LUPUS GROUP Coffee and Chat meeting - This Saturday!

York Lupus UK coffee morning this Saturday!

London lupus specialist

Nottingham research team looking for patients & carers

Voclosporin for lupus nephritis now approved in Scotland

Advice about using private health?

hair loss

Anti-nuclear factor levels

Does Prednisolone cause anxiety, panic and depression?

Devon and Cornwall Lupus Group Information day - Saturday 14th October - Everyone welcome!

North West Lupus Group - Virtual Coffee and Chat meeting Tuesday 10th October at 2pm!

GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue

Hello all!

Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!

Help needed with muscle pain!

The best supplements?

Thank you and update 🙂

Positive clonus and lupus

Cutaneous Lupus

Defeated

Coping with joint pain

Black History Month and Lupus Awareness Month Event - This Saturday 7th October - Tickets still available!

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