Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2023

Lupus and the lungs

My wife was formally diagnosed with SLE in 2019 after struggling with her health for many years. One the curious things about how SLE impacts my wife is how...

My wife was formally diagnosed with SLE in 2019 after struggling with her health...

•8 months ago

Red hot hands & excessive sweating

Hello, I’ve been to the doctors several times with this and have no answers, so I’m posting this in the hope someone else can help… I have lupus SLE nephritis...

Hello, I’ve been to the doctors several times with this and have no answers, so ...

•8 months ago

NHS Fife virtual Coffee and Chat meeting - 16th September

Join us for the next virtual meeting of the LUPUS UK NHS Fife area group - an opportunity to meet with others with lupus in your area - friends and family are...

Join us for the next virtual meeting of the LUPUS UK NHS Fife area group - an op...

Administrator•8 months ago

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Hyperhomocysteinemia or lack of vitamin 12

has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and...

has anyone suffered from inability to absorb vitamin B12 due to either the Lupus...

•8 months ago

Headache post update 🤕

Dear lovely forum friends I hope you’re being kind to yourselves 💕 Wanted to give you an update on the 4 year waking headache 🥱. Saw excellent ENT...

Dear lovely forum friends I hope you’re being kind to yourselves 💕 Wanted to ...

•8 months ago

Advice please on how to ask the rheumatologist for a more formal diagnosis

A few weeks ago, I shared that my latest appointment had me more confused than ever and the doctor I saw asked me why I wanted a formal diagnosis as "it makes...

A few weeks ago, I shared that my latest appointment had me more confused than e...

•8 months ago

New Family Member

Hello everyone, I hope that you are all as well as you can be and coping with the sunshine? I thought you might like to see our new family member Skye. He is...

Hello everyone, I hope that you are all as well as you can be and coping with th...

•8 months ago

Mobility scooter advice

Hiya, I am quite young and have put off getting a mobility scooter as I was so worried what others' thought and neighbours etc seeing me! I realise now it...

Hiya, I am quite young and have put off getting a mobility scooter as I was so w...

DogsMakeLifeGood

•8 months ago

Supplements for Lupus Rash

Has anyone taken any organic sulfur for lupus rashes.

Has anyone taken any organic sulfur for lupus rashes.

•8 months ago

finally diagnosed! Advice on Hydroxy pls??

hi, after what feels like a lifetime, I was yesterday diagnosed with mild lupus by a rheumatologist. He said he couldn’t understand why I’ve been left so long...

hi, after what feels like a lifetime, I was yesterday diagnosed with mild lupus ...

•8 months ago

Has anyone tried Hyperbaric oxygen therapy?

I've been going 2 to 3 times per week for four months, and it's made a massive difference in my energy levels 🔋✅

I've been going 2 to 3 times per week for four months, and it's made a massive d...

HealthCoachLupus

•8 months ago

Hydroxychloroquine supplies

Hello all, Is anyone else still having problems with Black Rock supplies? I haven't had any for 3-4 months now, some places can get hold of 300mg but I'm on...

Hello all, Is anyone else still having problems with Black Rock supplies? I have...

•8 months ago

Twisted ankle and foot

HiDoes anyone know if injuring your foot and ankle by twisting it takes longer to heal when you have lupus? On the 24th I slipped on the narrow step trying to...

HiDoes anyone know if injuring your foot and ankle by twisting it takes longer t...

•8 months ago

Ped in right eye

I got the results from my recent eye check at the hospital and, although there are no sign of hydroxychloroquine toxicity, I have signs of PED in my right...

I got the results from my recent eye check at the hospital and, although there a...

•8 months ago

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