Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2023

Help with blood results

Morning everyone, I wonder if any of you could help me. I have many symptoms of lupus for years but also symptoms of fibromyalgia. I have been diagnosed with...

Morning everyone, I wonder if any of you could help me. I have many symptoms of...

Sammy114

•8 months ago

13 Replies

Webinar on the STRAVINSKY study

The STRAVINSKY study team are holding a webinar to share their plans for research investigating whether antibody levels can predict risk of covid-19 infection...

The STRAVINSKY study team are holding a webinar to share their plans for researc...

Debbie_kinsey

Administrator•8 months ago

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biopsy help ?

hi everyone , I’m new to posting here. I would be delighted for any advice . I have been reading many of the posts which have been more than helpful,...

hi everyone , I’m new to posting here. I would be delighted for any advice . I...

Milliesal

•8 months ago

7 Replies

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sacroilitis-advice please

Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75 Ikervis eye drops having the most awful sacroilitis, steroids helped but off them...

Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75 Iker...

bathouse

•8 months ago

7 Replies

hrt/menopause and lupus

hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on...

hi everyone. I've just joined and I'm desperate for advice or experience please....

Babycakes1971

•8 months ago

11 Replies

Steroids _ I hate them!

I have been on prednisolone for 12 years because of Lupus, I am on 5mg daily. Two years ago I started Sarilumab SC injection once a fortnight which...

I have been on prednisolone for 12 years because of Lupus, I am on 5mg daily. ...

rubybelle12

•8 months ago

31 Replies

flare and steroids

hi I’m only on hydroxycholoquine and currently having a flare- a lot of muscle and neck pain and GI pain- Will taking a course of steroids help? thanks 🙏

hi I’m only on hydroxycholoquine and currently having a flare- a lot of muscle...

TillyO

•8 months ago

4 Replies

New to forums - Zentiva (??)

First Post... In a thumbnail I've been prescribed Hydroxy by Rheumy 12 months ago after Lupus diagnosis 18 months ago. I find (found) denial is/ was a great...

First Post... In a thumbnail I've been prescribed Hydroxy by Rheumy 12 months ag...

Wolfie_at_the_door

•8 months ago

8 Replies

yay, Zentiva was issued!!

I am elated, prescription went into chemist from GP, hubby goes up to collect with trepidation, was given my huge bag of meds and inside was a pink and white...

I am elated, prescription went into chemist from GP, hubby goes up to collect wi...

Poshcards

•8 months ago

9 Replies

Antibody levels of immunosuppressed people following covid-19 vaccination - results of the MELODY study

A study measuring the antibody levels of immunosuppressed people (including those with lupus) after having covid-19 vaccination found that about 4 in 5 people...

A study measuring the antibody levels of immunosuppressed people (including thos...

Debbie_kinsey

Administrator•8 months ago

3 Replies

zentiva

hydroxychloquin zentiva have had no trouble to now getting in chemist. I’ve been given Ipca is this any good anyone had problems with it..

hydroxychloquin zentiva have had no trouble to now getting in chemist. I’ve b...

chaimee

•8 months ago

1 Reply

What to ask!

I have got my 1st appointment with the pre pregnancy planning clinic next Friday 22nd September. I am very excited yet overwhelmed. After 3 miscarriages and...

I have got my 1st appointment with the pre pregnancy planning clinic next Friday...

Tnmagnet

•8 months ago

5 Replies

Rheumatologist

Hi Hope everyone is doing ok am looking for a bit of advice as getting nowhere with rheumatologist or gp I have had very little voice & quite breathless I...

Hi Hope everyone is doing ok am looking for a bit of advice as getting nowhere ...

Murp17

•8 months ago

18 Replies

Myositis - been wondering for a while if I’m experiencing symptoms of this

Hello everyone I’m having a PJ day today. Had a UTI come on yesterday that I’m trying to shake off myself. Plenty of experience with that over the years. Plus...

Hello everyone I’m having a PJ day today. Had a UTI come on yesterday that I’m ...

Wendy39

•8 months ago

14 Replies

Hello

Has anyone had anything similar? Very itchy...relief when itched...had for 2 weeks.

Has anyone had anything similar? Very itchy...relief when itched...had for 2 wee...

Assii

•8 months ago

3 Replies

Hello

Was curious what ever happened with this rash??

Assii

•8 months ago

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Unexplained Vertigo

Hi .I have Lupus and MS. I only take hydroxychlorequin .but since the end of july beginning of August i have been suffering with vertigo, its been over 6...

Hi .I have Lupus and MS. I only take hydroxychlorequin .but since the end of jul...

jahlioness

•8 months ago

11 Replies

patches of goosebumps

I’m curious if anyone’s experienced symptoms like this. ^ it’s been hard to get good pictures. But… My whole left leg tingles (comes and goes) and I get...

I’m curious if anyone’s experienced symptoms like this. ^ it’s been hard to get ...

thisismyusername13

•8 months ago

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No diagnosis but lots of symptoms

I have been diagnosed with hypothyroidism and am only a very low dosage of levothyroxine - which I don't think is managing my symptoms. However, I think that I...

I have been diagnosed with hypothyroidism and am only a very low dosage of levot...

scool

•8 months ago

6 Replies

Taking hydroxychloroquine but I’ve just found out that I cannot get the Autumn Covid booster with my GP

I booked my flu jab this morning and was told I was no longer eligible for an autumn Covid booster, which I thought odd as I was always invited early for other...

I booked my flu jab this morning and was told I was no longer eligible for an au...

PrincessPearl

•8 months ago

9 Replies

Unexplained vertigo

Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was...

Hi everyone This morning I had vertigo all of a sudden out of nowhere . About ...

sunmoon_

•8 months ago

8 Replies

Full body bone scan

Hi, I am in a flare with my autoimmune MCDT. I was previously on hydroxychloroquine which I had an allergic reaction to. I had a gap of 4 months. I was then...

Hi, I am in a flare with my autoimmune MCDT. I was previously on hydroxychloroqu...

Awwy

•8 months ago

3 Replies

Update on CT coronary angiogram - totally confused by results, anyone had this experience?

Hello everyone How are you all? I just wanted to update you all quickly. As you know I had experiencing symptoms like a racing heart beat, chest pain,...

Hello everyone How are you all? I just wanted to update you all quickly. As ...

Wendy39

•8 months ago

27 Replies

Immunocompromised people aged 50+ are now eligible for the shingles vaccine

Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk...

Immunocompromised people aged 50 and over are now eligible for the shingles vacc...

Debbie_kinsey

Administrator•8 months ago

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covid autumn vaccine

Has anyone heard or know how long we should leave between spring/autumn vaccines? I can’t find anything on the nhs/gov websites.I’m starting to hear quite a...

Has anyone heard or know how long we should leave between spring/autumn vaccines...

Chris21

•8 months ago

14 Replies

Hydroxychloroquine not made a difference

Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them?...

Hi there, I have undifferentiated connective tissue disease and sjogrens syndrom...

DogsMakeLifeGood

•8 months ago

12 Replies

duel diagnoses Lupus SLE and Hemochromatosis

Anyone else on here have Lupus SLE and Hemochromatosis.

Moxie5

•8 months ago

8 Replies

New symptoms or normal?

Hi everyone, Just curious with a few things that have been going on for me recently. I was diagnosed with Lupus about a year or two ago and have managed...

Hi everyone, Just curious with a few things that have been going on for me r...

Orange9

•8 months ago

10 Replies

newly started Methotrexate

hi I have sub cutaneous lupus SLE my symptoms have progressed over the last year to abdominal bloating, mouth and nose ulcers, sore eyes trouble focusing,...

hi I have sub cutaneous lupus SLE my symptoms have progressed over the last year...

Hollo68

•8 months ago

7 Replies

Tiredness and feeling weak, any tips?

These last few days I've felt tired and weak, even after just waking up. Walking up the stairs is tiring, I took a short walk on Friday, and on the way back I...

These last few days I've felt tired and weak, even after just waking up. Walking...

poppies_are_red

•8 months ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2023

Help with blood results

Webinar on the STRAVINSKY study

biopsy help ?

sacroilitis-advice please

hrt/menopause and lupus

Steroids _ I hate them!

flare and steroids

New to forums - Zentiva (??)

yay, Zentiva was issued!!

Antibody levels of immunosuppressed people following covid-19 vaccination - results of the MELODY study

zentiva

What to ask!

Rheumatologist

Myositis - been wondering for a while if I’m experiencing symptoms of this

Hello

Hello

Unexplained Vertigo

patches of goosebumps

No diagnosis but lots of symptoms

Taking hydroxychloroquine but I’ve just found out that I cannot get the Autumn Covid booster with my GP

Unexplained vertigo

Full body bone scan

Update on CT coronary angiogram - totally confused by results, anyone had this experience?

Immunocompromised people aged 50+ are now eligible for the shingles vaccine

covid autumn vaccine

Hydroxychloroquine not made a difference

duel diagnoses Lupus SLE and Hemochromatosis

New symptoms or normal?

newly started Methotrexate

Tiredness and feeling weak, any tips?

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