Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for September 2023

Extra Special Cutie

Hello everyoneJust thought i'd pop up to show you all this Extra Special little cutie. He's an African Wild Ass , one of the rarest mammals on the planet. This...

Hello everyoneJust thought i'd pop up to show you all this Extra Special little ...

misty14

•7 months ago

44 Replies

lupus flare

hi all, I have been diagnosed with tumid lupus with possible SLE. I haven’t been investigated for that and haven’t been seen my rheumatologist yet. I was just...

hi all, I have been diagnosed with tumid lupus with possible SLE. I haven’t bee...

JLAR01

•7 months ago

6 Replies

Do you log your ongoing symptoms and or flares with your GP?

Hi everyone A little about me for background.. I was diagnosed with APS 6 years ago and then Lupus SLE not too long after that. I take warfarin,...

Hi everyone A little about me for background.. I was diagnosed with APS 6 year...

Bobbydoodle

•7 months ago

4 Replies

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Study investigating journeys to diagnosis recruiting people with lupus, Sjögren’s, and/or UCTD

A new study is investigating why it takes some people a long time to get diagnosed with systemic autoimmune rheumatic diseases (SARDs) like lupus, UCTD, and...

A new study is investigating why it takes some people a long time to get diagnos...

Debbie_kinsey

Administrator•7 months ago

7 Replies

Constantly tired

I was diagnosed with lupus 4 years ggo, I also have fibromyalgia, and hypothyroidism, im on hydroxychloroquine 400/200 alternative days, I am tired all the...

I was diagnosed with lupus 4 years ggo, I also have fibromyalgia, and hypothyroi...

MrGrey1234

•7 months ago

7 Replies

Travelling with a flare

Hi everyone, hope you are doing OK today—and if not, hope you are managing to survive somehow. I recently went on a holiday (that’s why I’ve been absent for...

Hi everyone, hope you are doing OK today—and if not, hope you are managing to su...

MusicalFurbaby

•7 months ago

9 Replies

Pneumonia vaccine

Hi all I have Lupus SLE, and numerous other thing, just wondering how often do we need the pneumonia vaccine TIA

Hi all I have Lupus SLE, and numerous other thing, just wondering how often do w...

MrGrey1234

•7 months ago

36 Replies

Tinnitus with HCQ?

Hi there, has anyone experienced increased tinnitus or new onset tinnitus with hydroxychloroquine? I have had tinnitus for 15 years, and have recently...

Hi there, has anyone experienced increased tinnitus or new onset tinnitus with ...

redmaggie

•7 months ago

19 Replies

Would you like to give feedback on a new "healthy eating with lupus" booklet for Lupus UK?

A team at University College London (UCL) have been working hard on a new version of Lupus UK's diet & healthy eating booklet. They have a first draft and...

A team at University College London (UCL) have been working hard on a new versio...

Debbie_kinsey

Administrator•7 months ago

3 Replies

never ending Zentiva!

Not posted for a while as hoping the availability of Zentiva hydroxychloroquine would all be a ‘past’ issue. Wells pharmacy eventually fulfilled the odd...

Not posted for a while as hoping the availability of Zentiva hydroxychloroquine...

cobsie

•7 months ago

16 Replies

From RA to Lupus. High dose pred questions.

Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most...

Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 ...

Chickenkeeper2015

•7 months ago

5 Replies

Progression of SCLE to SLE

Hello, I've had SCLE for many years now and I have several over autoimmune issues. But, more recently I had been feeling really odd (more than usual), very...

Hello, I've had SCLE for many years now and I have several over autoimmune issue...

Purple-hedgehog

•7 months ago

5 Replies

covid

Hi I have Lupus plus another couple of auto immune disorders. My question is to anyone who has had Covid. I’m on my 14th day positive. How long has anyone...

Hi I have Lupus plus another couple of auto immune disorders. My question is t...

Tregarron

•7 months ago

29 Replies

lupus ?

I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,low grade fevers ,photosensitivity ,hair loss and generally feeling rubbish and...

I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,l...

shell9518

•7 months ago

9 Replies

lupus rash

I would like to know has anyone got a rash on their legs and arms that looks like burn marks. And there so bad on my right leg that my leg has swollen up. And...

I would like to know has anyone got a rash on their legs and arms that looks lik...

lesadiana

•7 months ago

2 Replies

Intercranial hypertension

Hi All,I recently have had issues with migraines. I have had two in the past 8 weeks. The first my vision went blurry in right eye and now I have had a Blind...

Hi All,I recently have had issues with migraines. I have had two in the past 8 ...

BellaC79

•7 months ago

5 Replies

Flu and lupus flare

Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep...

Hi everyone hope this finds you as well as can be expected, Has anyone had the ...

Geeforce99

•7 months ago

2 Replies

Join us for a Black History Month & Lupus Awareness Month event on 7th October

Join us for a combined Black History Month & Lupus Awareness Month event on 7th October! A great opportunity to meet other people with lupus & learn more about...

Join us for a combined Black History Month & Lupus Awareness Month event on 7th ...

Debbie_kinsey

Administrator•7 months ago

6 Replies

Serotonin Syndrome

Hello everyone, I really hope that you are all as well as you can be. Autumn has arrived wet and windy here in Wales. Some of you know that for the past five...

Hello everyone, I really hope that you are all as well as you can be. Autumn has...

CecilyParsley

•7 months ago

20 Replies

Drug brands - following on from Treetops's post

Following on from Treetop's post about drug brands and side effects I found this article about hydroxy. I know I am better on Zentiva and that others are...

Following on from Treetop's post about drug brands and side effects I found this...

lupime

•7 months ago

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Mira Monday 🐶🐶💕

Good morning folks thought I would post a pic of Mira with her mum Bea as haven’t posted for a while. These girls make me smile every day , our pets are so...

Good morning folks thought I would post a pic of Mira with her mum Bea as haven’...

svfarmer

•7 months ago

34 Replies

Having a Covid Booster vaccination and Flu vaccination at the same time with Lupus (SLE)

Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in...

Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The W...

MariaVT

•7 months ago

15 Replies

Drug brand substitutions - dangerous?

Hi all. I got one of my critical drugs, clopidogrel, from the chemist and there was something about it that made me think it was a cheap, slightly dodgy brand....

Hi all. I got one of my critical drugs, clopidogrel, from the chemist and there ...

Treetop33

•7 months ago

19 Replies

Questions about rituximab experience

Hello! My doctor has recommended that I try rituximab if I have another flare-up of arthritis, and it would also help my low platelets. I'm going into my third...

Hello! My doctor has recommended that I try rituximab if I have another flare-up...

poppies_are_red

•7 months ago

7 Replies

Breath in

I'm so glad I saw all these posts. Even though it's like years later. I've had the breathing issue for so long and been trying to Google search my symptom but...

I'm so glad I saw all these posts. Even though it's like years later. I've had t...

Hypochondriac_mom

•7 months ago

1 Reply

LEEDS LUPUS UK Coffee and Chat meeting - 14th October 12pm!

Join us for our next LEEDS LUPUS UK Coffee & Chat Meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL, on Saturday 14th...

Join us for our next LEEDS LUPUS UK Coffee & Chat Meeting at Starbucks (Leeds Ci...

michaellasmith

Administrator•7 months ago

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Struggling to manage work with Lupus

I was diagnosed with Lupus at beginning of this year. Suffered from tremendous pain everywhere and mental challenges. Had been suicidal and depressed. My...

I was diagnosed with Lupus at beginning of this year. Suffered from tremendous p...

TomatoEater

•7 months ago

9 Replies

Discoid Lupus itchy scalp more bald patches what to do to ease it?

After a biopsy in 2021 which confirmed lupus (scalp) I was prescribed Plaquenil (hydroxychloroquine sulfate). Having a long history of being prescribed very...

After a biopsy in 2021 which confirmed lupus (scalp) I was prescribed Plaquenil ...

carorueil

•7 months ago

14 Replies

Shoulder pain and lupus

I was diagnosed with antiquagulant lupus last year and am suffering with severe shoulder pain. Physio doesn't help. Any advice would be great

I was diagnosed with antiquagulant lupus last year and am suffering with severe ...

Barbeydo

•7 months ago

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dizziness and lupus

hey all, I hope you’re all as well as you possibly can be. I feel so bad moaning when I know I could be a lot worse but I was recently diagnosed with Tumid...

hey all, I hope you’re all as well as you possibly can be. I feel so bad moani...

JLAR01

•7 months ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2023

Extra Special Cutie

lupus flare

Do you log your ongoing symptoms and or flares with your GP?

Study investigating journeys to diagnosis recruiting people with lupus, Sjögren’s, and/or UCTD

Constantly tired

Travelling with a flare

Pneumonia vaccine

Tinnitus with HCQ?

Would you like to give feedback on a new "healthy eating with lupus" booklet for Lupus UK?

never ending Zentiva!

From RA to Lupus. High dose pred questions.

Progression of SCLE to SLE

covid

lupus ?

lupus rash

Intercranial hypertension

Flu and lupus flare

Join us for a Black History Month & Lupus Awareness Month event on 7th October

Serotonin Syndrome

Drug brands - following on from Treetops's post

Mira Monday 🐶🐶💕

Having a Covid Booster vaccination and Flu vaccination at the same time with Lupus (SLE)

Drug brand substitutions - dangerous?

Questions about rituximab experience

Breath in

LEEDS LUPUS UK Coffee and Chat meeting - 14th October 12pm!

Struggling to manage work with Lupus

Discoid Lupus itchy scalp more bald patches what to do to ease it?

Shoulder pain and lupus

dizziness and lupus

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