Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2023

Change of statin medication

I have been contacted by my GP to change my statin from simvastin 80 mg to astorvastin 20 mg. My estimated non HDL is currently at 2.7 and they want it at 2.5....

I have been contacted by my GP to change my statin from simvastin 80 mg to astor...

•9 months ago

still no Zentiva

following on from my last post and lots of helpful comments, my independent pharmacist has still not been able to obtain Zentiva hydroxy, I have tried phoning...

following on from my last post and lots of helpful comments, my independent phar...

•9 months ago

E bike for exercise

Hi fellow lupus warriors I think I've posted before about my joy in finding the electric bike. I was very active before getting lupus. I walked extensively...

Hi fellow lupus warriors I think I've posted before about my joy in finding the...

•9 months ago

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Starting Hydroxychloroquine advice….

hello lovely people, I’m starting Hydroxychloroquine this coming Thursday. I’m praying works as it should and helps my pain, rashes and tiredness etc. I’ve...

hello lovely people, I’m starting Hydroxychloroquine this coming Thursday. I’m ...

•9 months ago

Microbiome gut testing

I have SLE secondary sjorgrens and hypermobility and more! I was diagnosed with generalized dysmotility slow transit pseudo sacculation etc but at the moment...

I have SLE secondary sjorgrens and hypermobility and more! I was diagnosed with ...

•9 months ago

It’s an Update and a mud bath

Firstly this is my gorgeous boy Finlay, who has arrived back from his excursions with the dog walker absolutely filthy and now I can see why 😁He really makes...

Firstly this is my gorgeous boy Finlay, who has arrived back from his excursion...

•9 months ago

Been coughing for 3months

I have been coughing since 20th of May in what began as a mild sore throat. I have since hard 3 courses of antibiotics and a chest X-ray revealed a bit of...

I have been coughing since 20th of May in what began as a mild sore throat. I ha...

•9 months ago

Esophageal spasms, gastric spasms

Anyone else who gets these or similar gastric pains this with Lupus or other autoimmune conditions? I am doing ok on my new Enbrel prescription but this is the...

Anyone else who gets these or similar gastric pains this with Lupus or other aut...

SoooManyQuestions

•9 months ago

Can I work as a Nurse with Lupus ?

Hello everyone , First of all I’m so glad that I came through this supportive group. I was diagnosed with Lupus 3 days ago,I’m 23 years old .I couldn’t...

Hello everyone , First of all I’m so glad that I came through this supportive gr...

•9 months ago

multiple autoimmune

me too, I want to actually see an autoimmune specialist, I want to understand why my body is attacking itself, I want to be cured not just treated for my...

me too, I want to actually see an autoimmune specialist, I want to understand wh...

•9 months ago

Neuropsychiatric webinar.

Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus will be available to watch on YouTube. Can anyone from LUK confirm when it will be...

Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus wil...

•9 months ago

Zentiva hydroxychloroquine supply

Has anyone been successful in obtaining Zentiva brand hydroxy recently? I posted about this a couple of weeks ago and am still struggling. In desperation, I...

Has anyone been successful in obtaining Zentiva brand hydroxy recently? I poste...

•9 months ago

Recently diagnosed with lupus

hi I have recently been diagnosed with SLE and struggling with it at the moment . I have had symptoms for a very long time but it went undiagnosed . After been...

hi I have recently been diagnosed with SLE and struggling with it at the moment ...

•9 months ago

lupus itching

Hi I have recently been diagnosed with Lupus SLE I have been prescribed Hydroxychloroquine 200mg twice a day . I have become very sensitive to sunlight and my...

Hi I have recently been diagnosed with Lupus SLE I have been prescribed Hydroxyc...

•9 months ago

Methotrexate-induced neutropenia

Good Evening, I’ve been on methotrexate for 6 years and unlike many others I haven’t had many problems with it, until about 6 weeks ago when I had to stop...

Good Evening, I’ve been on methotrexate for 6 years and unlike many others I ha...

•9 months ago

prednisolone how long before taper & stop

hi all, I’ve recently started cellcept and prednisolone having been on HCQ for 7 yrs. Lupus is now affecting my skin, heart and lungs as well as joints, fever...

hi all, I’ve recently started cellcept and prednisolone having been on HCQ for 7...

•9 months ago

‼️ Anaphylaxis ‼️

https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis following a Depo-medrone Steroid injection whilst in the consulting room at my...

https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis followin...

•9 months ago

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