Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2023

Collating members posts about Zentiva

Hello lupies Just a quick one . This Zentiva issue is a nightmare. What would you think about collating posts , not displaying names obvs, and sending...

Hello lupies Just a quick one . This Zentiva issue is a nightmare. What wou...

kt11

•9 months ago

15 Replies

Rash/swollen lips

Hi all me again, thought I would ask here as you've all been so helpful to me during all of my investigations.So update I'm currently on hydroxychloroquine...

Hi all me again, thought I would ask here as you've all been so helpful to me du...

Haylz2109

•9 months ago

26 Replies

ZENTIVA, again!

I have had a frustrating morning .(read tearing my hair out, well what's left of it) I am trying to source my Zentiva Hydroxychloroquine from local...

I have had a frustrating morning .(read tearing my hair out, well what's left of...

kalas2008

•9 months ago

8 Replies

Want to take advantage of all our features? Just log in!

How to cope when appointments are so delayed.

I have SLE and am under cardiology for investigation due to tachycardia. My Rheumatologists think it may be PoTS. The cardiologists have done loads of tests...

I have SLE and am under cardiology for investigation due to tachycardia. My Rhe...

eescvc

•9 months ago

12 Replies

Is this a lupus rash?

Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve had 2 courses of steroids. I am also on hydroxychloroquine which I’ve been...

Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve...

elizabeth-57

•9 months ago

8 Replies

ANA Blood Test Results

I’m new to this forum, hoping for some answers, advice, reassurance. Could someone explain, until I can get to speak to my GP which may well not be until...

I’m new to this forum, hoping for some answers, advice, reassurance. Could so...

Riven0322

•9 months ago

9 Replies

Our ADAPT Study needs you NOW! Let’s improve mental health & quality of life for patients with our Dr Melanie Sloan & Co

Our ADAPT study is investigating ways to support the mental health of people with lupus, and is run by the same team that conducted the recent INSPIRE study...

Our ADAPT study is investigating ways to support the mental health of people wit...

Barnclown

•9 months ago

16 Replies

zentiva

It would seem that someone somewhere has decided that we are not allowed the zentiva brand because it is not a generic medication. probably some jobsworth...

It would seem that someone somewhere has decided that we are not allowed the zen...

treacle9

•9 months ago

14 Replies

Recruitment for the ADAPT study is now open

Following my post yesterday, the ADAPT study is now live, and you can sign up via this link if you would like to take part:...

Following my post yesterday, the ADAPT study is now live, and you can sign up vi...

Debbie_kinsey

Administrator•9 months ago

Be the first to reply

Zentiva update 15th August

Hi all Just received the following email from Zentiva in last few minutes "Dear Judith, Thank you for providing further information on your situation. We...

Hi all Just received the following email from Zentiva in last few minutes "Dea...

cobsie

•9 months ago

9 Replies

flare .. joint pain ???

hi there not sure if awful joint pain is a flare up? I have lupus tumidus and Sjorgens .. feel flu like .. dizziness too ? advice please 😔

hi there not sure if awful joint pain is a flare up? I have lupus tumidus and...

Dressgirl52

•9 months ago

4 Replies

ADAPT study will start recruiting this week

The ADAPT study is investigating ways to support the mental health of people with lupus, and is run by the same team that conducted the study about...

The ADAPT study is investigating ways to support the mental health of people wit...

Debbie_kinsey

Administrator•9 months ago

6 Replies

what do I do

my partner was diagnosed with SLE during pregnancy. We had a little boy 21/06/22 who has neonatal lupus and congenital heart block, he had a pacemaker fitted...

my partner was diagnosed with SLE during pregnancy. We had a little boy 21/06/22...

JamesF87

•9 months ago

11 Replies

Hello

Hi, I’m 20 and going into my last year of University. I was diagnosed last year, but the symptoms were mild so I didn’t really pay attention to it. I didn’t...

Hi, I’m 20 and going into my last year of University. I was diagnosed last yea...

poppies_are_red

•9 months ago

16 Replies

Share your experiences of clinical trials

Have you taken part in a clinical trial? Would you be willing to share your experiences with others? LUPUS UK are planning to develop a range of new...

Have you taken part in a clinical trial? Would you be willing to share your expe...

Debbie_kinsey

Administrator•9 months ago

2 Replies

Repeat Prescription Queues

Dear All I have just read the string following Cobsie's post re Zentiva supply problems. It seems we are all caught in the "only allowed to prescribe one...

Dear All I have just read the string following Cobsie's post re Zentiva supply ...

BeeManShrop

•9 months ago

41 Replies

Covid

It was my understanding that if you had an underlying health condition like Lupus you could be prescribed anti viral medication if you tested positive with...

It was my understanding that if you had an underlying health condition like Lupu...

Sarahze

•9 months ago

24 Replies

Zentiva UK contact

Hi Following on from my various posts, I thought you might like to know the following- Zentiva have emailed me to follow up on safety issues as I told them I...

Hi Following on from my various posts, I thought you might like to know the fol...

cobsie

•9 months ago

45 Replies

Eligibility for autumn 2023 COVID-19 booster jabs

We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group...

We have updated our page on COVID-19 vaccinations to include information about w...

Debbie_kinsey

Administrator•9 months ago

3 Replies

Volunteers needed!

Dr. Chris Wincup, a Consultant Rheumatologist at King's College Hospital, London, is working on research into the current therapies for SLE. He is looking for...

Dr. Chris Wincup, a Consultant Rheumatologist at King's College Hospital, London...

michaellasmith

Administrator•9 months ago

Be the first to reply

Does knitting count as exercise? 🤔

Hello everyone, This post contains more than one topic …. My Rheumy’s assumptions, exercise, fatigue, medication expectations + knitting! I...

Hello everyone, This post contains more than one topic …. My Rheumy’s assumpti...

Turquoise-1

•9 months ago

33 Replies

Does knitting count as exercise? 🤔

Hello everyone, This post contains more than one topic …. My Rheumy’s assumptions, exercise, fatigue, medication expectations + knitting! I...

Hello everyone, This post contains more than one topic …. My Rheumy’s assumpti...

Turquoise-1

•9 months ago

17 Replies

always ANA positive with lupus?

hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said...

hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my curre...

Foodman500

•9 months ago

16 Replies

L00pyL0021

hi I’m unsure how this site works struggling on pasting tips - have no idea on apple iPhone? Need to know has anyone had dvla medical and know what google...

hi I’m unsure how this site works struggling on pasting tips - have no idea on a...

Hidden

•9 months ago

1 Reply

L00pyL0021

anyone had dvla medical assessment?

Hidden

•9 months ago

1 Reply

Azathioprine vs ciclosporina

Hi fighter people,Is anyone here who has xperience with azathioprine or ciclosporina , I have been moved to methotrexate to azathioprine , I'm really...

Hi fighter people,Is anyone here who has xperience with azathioprine or ci...

Land1234

•9 months ago

8 Replies

Newly diagnosed and a little overwhelmed.

Hello :) New to the group so hello :) I'm 33 and have been recently diagnosed with rheumatoid arthritis and lupus. I was only diagnosed with the additional...

Hello :) New to the group so hello :) I'm 33 and have been recently diagnosed w...

Sunshine634

•9 months ago

27 Replies

…….left hand, top view

….. top view of my left hand Thanks a lot xxx

MEGS53

•9 months ago

4 Replies

is this typical of OA?

Hi lovely people. I’ve posted a photo of my left hand. I can’t extend/ straighten my thumb any further than shown. Is this typical of OA? Or perhaps the...

Hi lovely people. I’ve posted a photo of my left hand. I can’t extend/ straight...

MEGS53

•9 months ago

30 Replies

MTX injections

Hi I'm 57 and have SLE,can I get the shingles injection? There are ads everywhere but my surgery say that although I'm immune compromised I don't qualify as...

Hi I'm 57 and have SLE,can I get the shingles injection? There are ads everywher...

kate47

•9 months ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2023

Collating members posts about Zentiva

Rash/swollen lips

ZENTIVA, again!

How to cope when appointments are so delayed.

Is this a lupus rash?

ANA Blood Test Results

Our ADAPT Study needs you NOW! Let’s improve mental health & quality of life for patients with our Dr Melanie Sloan & Co

zentiva

Recruitment for the ADAPT study is now open

Zentiva update 15th August

flare .. joint pain ???

ADAPT study will start recruiting this week

what do I do

Hello

Share your experiences of clinical trials

Repeat Prescription Queues

Covid

Zentiva UK contact

Eligibility for autumn 2023 COVID-19 booster jabs

Volunteers needed!

Does knitting count as exercise? 🤔

Does knitting count as exercise? 🤔

always ANA positive with lupus?

L00pyL0021

L00pyL0021

Azathioprine vs ciclosporina

Newly diagnosed and a little overwhelmed.

…….left hand, top view

is this typical of OA?

MTX injections

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