Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for July 2023

Breast cancer

Has anyone been told they can't have biological medicine after radiation and chemo?

Has anyone been told they can't have biological medicine after radiation and che...

Derek70

•9 months ago

3 Replies

cruise insurance

Hi, can anyone recommend cruise insurance companies who cater for Lupus, and related autoimmune disorders please. Many thanks Sandy 😊

Hi, can anyone recommend cruise insurance companies who cater for Lupus, and re...

frog

•9 months ago

13 Replies

Co Amoxiclav and anti biotics

After being given naproxen for hip pain I had an inflamed gall bladder and was given co Amoxiclav by cannula at the hospital .not long after I got home I...

After being given naproxen for hip pain I had an inflamed gall bladder and wa...

Janine159

•9 months ago

7 Replies

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Excellent article on fatigue

This is so good - contained some new research about fatigue as a consequence of the pandemic and long Covid. It's free for a few more hours I believe:...

This is so good - contained some new research about fatigue as a consequence of ...

Treetop33

•9 months ago

1 Reply

DRY MOUTH/ HORRIBLE TASTE

Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me...

Hi Everyone , December I had puffy red right cheek , sore to touch , no col...

TGSHJ71

•9 months ago

5 Replies

contrast dye

Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT scan on my lungs with contrast dye. I suffer with many allergies and wondered if...

Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT s...

Barbs52

•9 months ago

9 Replies

Help us update our "Lupus and the Skin" booklet

Help us update our “Lupus and the Skin” information booklet to ensure it meets the needs of all people with lupus by telling us what you think about our...

Help us update our “Lupus and the Skin” information booklet to ensure it meets t...

Debbie_kinsey

Administrator•9 months ago

13 Replies

osteoporosis

hi I don’t have lupus but I did have osteopenia (One step away from osteoporosis.) I took Fosomax pills and it increased my bone density tremendously. I...

hi I don’t have lupus but I did have osteopenia (One step away from osteoporos...

Clarinda

•9 months ago

4 Replies

Neuropsychiatric symptoms in conditions like lupus

A study has found that neuropsychiatric symptoms are very common in conditions like lupus, but the symptoms are often under-reported and under-recorded....

A study has found that neuropsychiatric symptoms are very common in conditions l...

Debbie_kinsey

Administrator•9 months ago

22 Replies

Osteoporosis

Hi guys, so I saw my doctor last night for a 2-year review of my osteoporosis. I was diagnosed 2 years ago after a low-trauma fall fractured my shoulder, and I...

Hi guys, so I saw my doctor last night for a 2-year review of my osteoporosis. I...

MusicalFurbaby

•9 months ago

18 Replies

Investigating gut health in SLE - findings from a LUPUS UK funded study

A recent study, funded by LUPUS UK, found that people with SLE may have a "leaky gut", also called "higher gut permeability". The researchers plan to do...

A recent study, funded by LUPUS UK, found that people with SLE may have a "leaky...

Debbie_kinsey

Administrator•9 months ago

5 Replies

Spare some time to complete this survey about exercise & lifestyle (research funded by LUPUS UK)

LUPUS UK is funding an exciting study looking into exercise and lifestyle in people with SLE. Please spare some time to complete this important survey to help...

LUPUS UK is funding an exciting study looking into exercise and lifestyle in peo...

Chanpreet_Walia

LUPUS UK•9 months ago

2 Replies

has anyone else had breathing problems

hi before Xmas I ended up in hospital with pneumonia I don’t remember as I was so iLL and wasn’t conscious the doctor wanted to see my partner and told him...

hi before Xmas I ended up in hospital with pneumonia I don’t remember as I was s...

Liz2468

•9 months ago

2 Replies

lupus

Dear guys, i have SLE which was diagnosed 2 months ago! How did I find out? Anemia, hair loss and swelling of the joints. Doctors gave me therapy plaquenil 2...

Dear guys, i have SLE which was diagnosed 2 months ago! How did I find out? Anem...

SpreadWing

•9 months ago

5 Replies

Amlodipine for Hypertension

Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment,...

Hi, community. I have a (new) diagnosis of hypertension, which means yet anothe...

skylark15

•9 months ago

33 Replies

MCTD & UCTD

Hi there Can anyone tell me the difference between MCTD and UCTD? I have UCTD but cannot seem to find what MCTD is or what the first initial (M) stands for....

Hi there Can anyone tell me the difference between MCTD and UCTD? I have UCTD ...

Bakbre

•9 months ago

25 Replies

Excrime pancreas insufficient

Excrime pancreas insufficient any knowledge?

Derek70

•9 months ago

1 Reply

Lupus

Has anyone else dealt with EPI or breast cancer with lupus?

Derek70

•9 months ago

6 Replies

Metoject

Hi folks 🤗🦋I have successfully transferred from oral to injectable Methotrexate after a few teething problems I think I actually got the hang of it last...

Hi folks 🤗🦋I have successfully transferred from oral to injectable Methotrexat...

Krazykat26

•9 months ago

16 Replies

lupus and cancer

hello to all of you warriors, I haven’t posted in a long time but do read daily posts. I have had lupus for over 30 years but the last few have been...

hello to all of you warriors, I haven’t posted in a long time but do read daily ...

sally10

•9 months ago

19 Replies

SLE diagnosis, potential PTSD

I was diagnosed SLE last year. Recovery and getting on meds was going pretty well, returning to work etc. more recently I’ve returned to counselling due to a...

I was diagnosed SLE last year. Recovery and getting on meds was going pretty wel...

Bossingit

•9 months ago

9 Replies

MCTD and gastritis

Anyone else suffer with gastritis and MCTD? Just getting over a really bad flare up of gastritis and hadn't realised that it comes under the heading of auto...

Anyone else suffer with gastritis and MCTD? Just getting over a really bad flar...

SecondLife

•9 months ago

38 Replies

Dermaplaning

hi anyone on here had this treatment ? I have lupus tumidus , but contemplating it

hi anyone on here had this treatment ? I have lupus tumidus , but contemplating...

Dressgirl52

•9 months ago

7 Replies

Losing Lupus diagnosis

I was diagnosed in 2010 with lupus, and 2012 with secondary sjogrens, raynauds and antiphospholipid syndrome. I was also badly affected by light...

I was diagnosed in 2010 with lupus, and 2012 with secondary sjogrens, raynauds a...

linda96

•9 months ago

23 Replies

Scottish Medicines appraisal of voclosporin

Do you live in Scotland? Do you have lupus nephritis or care for someone with lupus nephritis? The Scottish Medicines Consortium (SMC) are currently...

Do you live in Scotland? Do you have lupus nephritis or care for someone with lu...

Debbie_kinsey

Administrator•9 months ago

Be the first to reply

Just to make you smile

Our beautiful boy Finlay was 1 yesterday. He has brought us so much joy, laughter and holes in our lawn. He is the best medicine. I hope you are all as well as...

Our beautiful boy Finlay was 1 yesterday. He has brought us so much joy, laughte...

CecilyParsley

•9 months ago

27 Replies

30-minute yoga and breathing session available online

Hi everyone, Komal Dadlani aka Kom Yogi has teamed up with LUPUS UK to provide a 30-minute yoga and breathing session that you can do from the comfort of your...

Hi everyone, Komal Dadlani aka Kom Yogi has teamed up with LUPUS UK to provide ...

Chanpreet_Walia

LUPUS UK•9 months ago

17 Replies

advice from all you angels

I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦‍♀️. I Saw...

I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of th...

Tiggywoos

•9 months ago

70 Replies

Please don’t forget ……

hi folks haven’t posted in such a long time but came across this and thought I would share - big love to everyone ❤️

hi folks haven’t posted in such a long time but came across this and thought I w...

svfarmer

•10 months ago

38 Replies

My story so far.

So my story starts in 2014 I was referred to the rheumatology clinic for joint pain, mouth sores, I did display some inflammation in joints and was given...

So my story starts in 2014 I was referred to the rheumatology clinic for joint p...

JCM1992

•10 months ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2023

Breast cancer

cruise insurance

Co Amoxiclav and anti biotics

Excellent article on fatigue

DRY MOUTH/ HORRIBLE TASTE

contrast dye

Help us update our "Lupus and the Skin" booklet

osteoporosis

Neuropsychiatric symptoms in conditions like lupus

Osteoporosis

Investigating gut health in SLE - findings from a LUPUS UK funded study

Spare some time to complete this survey about exercise & lifestyle (research funded by LUPUS UK)

has anyone else had breathing problems

lupus

Amlodipine for Hypertension

MCTD & UCTD

Excrime pancreas insufficient

Lupus

Metoject

lupus and cancer

SLE diagnosis, potential PTSD

MCTD and gastritis

Dermaplaning

Losing Lupus diagnosis

Scottish Medicines appraisal of voclosporin

Just to make you smile

30-minute yoga and breathing session available online

advice from all you angels

Please don’t forget ……

My story so far.

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