Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2023

Prescription Sun Cream Factor 50

I get terrible Polymorphic light eruptions all over anywhere my skin is exposed. I asked a pharmacist if factor 50 sun cream is allowed to be prescribed,...

I get terrible Polymorphic light eruptions all over anywhere my skin is exposed....

SLEepyhead123

•11 months ago

13 Replies

Depression and loniless

Does anyone or😔 have you in the past gone through any forms of depression or loneliness due to being ill with SLE? If "yes"✔️ How did you overcome it or does...

Does anyone or😔 have you in the past gone through any forms of depression or lo...

Butt3rf1y

•11 months ago

21 Replies

Allergic to the sun?

Hi, I've had lots of things go wrong over time, but this is new. I was doing a little gardening, and I mean a little, on Saturday, I felt my feet tingling in...

Hi, I've had lots of things go wrong over time, but this is new. I was doing a ...

Lulamay7

•11 months ago

39 Replies

Want to take advantage of all our features? Just log in!

hydroxychloroquine

What does of hydroxychloroquine do you need to be on in order to get an eye test?

What does of hydroxychloroquine do you need to be on in order to get an eye test...

Roya4

•11 months ago

34 Replies

Diagnosis Please

Hello all, I am currently 21 years old, and I have just been experiencing different changes that I will mention below in hopes of getting an appropriate...

Hello all, I am currently 21 years old, and I have just been experiencing diffe...

Studentpass123453

•11 months ago

1 Reply

What changes ANA results?

After nearly two whole years of unrelenting flare up, my GP has referred me to Bath Lupus Clinic and they've accepted referral 😀😀😀 , not sure how long it...

After nearly two whole years of unrelenting flare up, my GP has referred me to B...

Beau2016

•11 months ago

14 Replies

Reviewers needed for a Netflix Film about a lady with lupus

Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the...

Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about...

Chanpreet_Walia

LUPUS UK•11 months ago

6 Replies

Saphnelo infusion center in EU

I'm on a monthly Saphnelo infusion and will be un Europe for extended time. Any european country would be fine as I could take a trip to visit a new place for...

I'm on a monthly Saphnelo infusion and will be un Europe for extended time. Any ...

Tanitatani

•11 months ago

3 Replies

Chilblain Lupus and UVA sensitivity

I have finally received an official diagnosis, I have chilblain lupus with uva sensitivity. Has anyone else got this?

I have finally received an official diagnosis, I have chilblain lupus with uva ...

pattypatchwork

•11 months ago

18 Replies

The Wonky Potter

Hi everyone, I hope that you are all safe and well in this heat? Personally I went out this afternoon in the thunderstorm and stood in my garden until I was...

Hi everyone, I hope that you are all safe and well in this heat? Personally I we...

CecilyParsley

•11 months ago

37 Replies

Flowers

hi folks just thought I would share this pic of flowers in my garden .

svfarmer

•11 months ago

32 Replies

Doctors today what do I do

I have posted a few times on here I go to doctors today.To see if I can get to see a knee man and pay private,I can't go on verry longer with this knee...

I have posted a few times on here I go to doctors today.To see if I can get to s...

minka

•11 months ago

12 Replies

⛱️ Sunscreen⛱️

☀️Here’s an article I’ve read on BBC news regarding sunscreen☀️ ~ There’s a short video to watch too ~ Click on the link below, hopefully it will...

☀️Here’s an article I’ve read on BBC news regarding sunscreen☀️ ~ Ther...

Turquoise-1

•11 months ago

8 Replies

cutaneous lupus

I have got subacute cutaneous lupus and coeliac and my question is I got covid back in October and was quite poorly and I would say just over it now. As a...

I have got subacute cutaneous lupus and coeliac and my question is I got covid ...

No2Sunshine

•11 months ago

2 Replies

I got impetigo and I’m due to get my Covid booster

hi all, hope you are all enjoying the nice weather although from indoors. I was going to the gym up to last week and since Tuesday I got impetigo in my face....

hi all, hope you are all enjoying the nice weather although from indoors. I was ...

EG74

•11 months ago

1 Reply

A LUPUS UK funded study about exercise & lifestyle in SLE is recruiting now

As you know, lupus can affect people differently. Some researchers in Birmingham are conducting a survey to find out about exercise & lifestyle in people with...

As you know, lupus can affect people differently. Some researchers in Birmingham...

Debbie_kinsey

Administrator•11 months ago

6 Replies

Anyone else not got a 'formal' lupus diagnosis?

Back in January 2022, I saw a rheumatologist and had tonnes of tests done and she discussed lupus. However , the GP says this is not one my list of ailments...

Back in January 2022, I saw a rheumatologist and had tonnes of tests done and sh...

SLS2103

•11 months ago

15 Replies

Vitamin D suggestion

Dear all, I hope you are all well and not much in pain. Now my older daughter is also diagnosed with SLE, i feel life is a bit more challenging and she is a...

Dear all, I hope you are all well and not much in pain. Now my older daughter i...

LalSD

•11 months ago

22 Replies

Research into the challenges of reconnecting and reintegrating into society after shielding

We have been asked by a student at the University of Bristol who is completing a Masters degree in Sociology to share an opportunity to take part into their...

We have been asked by a student at the University of Bristol who is completing a...

Alida_Bennett

Partner•11 months ago

Be the first to reply

Meniscus damage in both knees…within 15-16 months …...anyone else?

Hello I’ve posted about my left knee previously, as I ended up in A&E earlier this year. It was a form of bursitis I concluded at the time, most likely pes...

Hello I’ve posted about my left knee previously, as I ended up in A&E earlier ...

Wendy39

•11 months ago

20 Replies

Autoantibody confusion

Hi. Looking at blood results the gp has tested for dna binding auto antibodies and dsdna binding auto antibodies. Are these connected or separate things?...

Hi. Looking at blood results the gp has tested for dna binding auto antibodies a...

purplesnowflake

•11 months ago

2 Replies

Men with lupus - we need your feedback to improve our services

Hi everyone, If you are a male living with lupus, please spare 2-5 minutes to send me an email at chanpreet@lupusuk.org.uk about how LUPUS UK can improve...

Hi everyone, If you are a male living with lupus, please spare 2-5 minutes to s...

Chanpreet_Walia

LUPUS UK•11 months ago

Be the first to reply

Diagnosis ,please

I have been seeing a rheumatologist for 3 years now. The one I was seeing retired and I have a younger Dr. that seems to care . I was told by him that my ANA...

I have been seeing a rheumatologist for 3 years now. The one I was seeing retire...

420pain

•11 months ago

37 Replies

Rash?

Hello, I hope you're all keeping as well as possible. I'm looking for some advice please: I have been spending a little bit of time in my garden (hat on and...

Hello, I hope you're all keeping as well as possible. I'm looking for some advic...

_jenc_

•11 months ago

7 Replies

Ultra processed foods are harmful: BBC Panorama

https://www.bbc.co.uk/iplayer/episode/m001mp67/panorama-ultraprocessed-food-a-recipe-for-ill-health#xtor=CS8-1000-%5BEditorialPromo_Box%5D-%5BNewsEditorial_Prom

https://www.bbc.co.uk/iplayer/episode/m001mp67/panorama-ultraprocessed-food-a-re...

Betty909090

•11 months ago

24 Replies

New research suggests that increasing the number of specialist rheumatology staff benefits patients while saving the NHS money

Some new research by the British Society for Rheumatologists (BSR) has found that increasing the numbers of specialist rheumatology staff improves patient...

Some new research by the British Society for Rheumatologists (BSR) has found tha...

Debbie_kinsey

Administrator•11 months ago

8 Replies

Lupus Rash?

Hi, I have Lupus SLE and have had this rash on my shin for sometime now - also on my elbows and underneath my breast. I showed it to my rheumatologist at my...

Hi, I have Lupus SLE and have had this rash on my shin for sometime now - also o...

SamRigs

•11 months ago

21 Replies

Hey all

Hey all, I just wanted to thank you guys for all the help you have given its really been appreciated 💕 Found out after 2 weeks of having really bad symptoms,...

Hey all, I just wanted to thank you guys for all the help you have given its rea...

Haylz2109

•11 months ago

10 Replies

Coronation Cuties

Hello EveryoneSorry for delayed 'cutie pics' but have had tech problems that have luckily been sorted. These sygnets are very special as they are the first...

Hello EveryoneSorry for delayed 'cutie pics' but have had tech problems that hav...

misty14

•11 months ago

20 Replies

20 years in a catatonic state cause SLE

Hi All Just thought you may be interested in the following link. Woman was 20 years in a catatonic state until they found she had lupus attacking her brain....

Hi All Just thought you may be interested in the following link. Woman was 20 ye...

BeeManShrop

•11 months ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2023

Prescription Sun Cream Factor 50

Depression and loniless

Allergic to the sun?

hydroxychloroquine

Diagnosis Please

What changes ANA results?

Reviewers needed for a Netflix Film about a lady with lupus

Saphnelo infusion center in EU

Chilblain Lupus and UVA sensitivity

The Wonky Potter

Flowers

Doctors today what do I do

⛱️ Sunscreen⛱️

cutaneous lupus

I got impetigo and I’m due to get my Covid booster

A LUPUS UK funded study about exercise & lifestyle in SLE is recruiting now

Anyone else not got a 'formal' lupus diagnosis?

Vitamin D suggestion

Research into the challenges of reconnecting and reintegrating into society after shielding

Meniscus damage in both knees…within 15-16 months …...anyone else?

Autoantibody confusion

Men with lupus - we need your feedback to improve our services

Diagnosis ,please

Rash?

Ultra processed foods are harmful: BBC Panorama

New research suggests that increasing the number of specialist rheumatology staff benefits patients while saving the NHS money

Lupus Rash?

Hey all

Coronation Cuties

20 years in a catatonic state cause SLE

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive