Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for May 2023

good news

Yesterday I had the good news - I don't have any evidence of ILD and the breathing problems I have are down to the bad TB infection I had 19 years ago. So I...

Yesterday I had the good news - I don't have any evidence of ILD and the breath...

redmaggie

•11 months ago

5 Replies

Biopsy update

Hi I don't know if any of you remember that a few weeks ago I had a biopsy done for skin cancer. Today got my results back and it is all clear. I just had that...

Hi I don't know if any of you remember that a few weeks ago I had a biopsy done ...

Cal66

•11 months ago

37 Replies

Gluten intolerance/allergies linked to SLE gut issues inflammation of gut and all over from it.

Hi Everyone,I thought I had to share this with you I recently had to come off gluten totally including GF Oats and barley. As unable to tolerate them. I was...

Hi Everyone,I thought I had to share this with you I recently had to come off gl...

KnitSewPurl

•11 months ago

13 Replies

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Hello

Hello everyone. I am sorry that I haven’t posted recently. I have been struggling with lots of issues, medical and otherwise which have made me sad, frustrated...

Hello everyone. I am sorry that I haven’t posted recently. I have been strugglin...

CecilyParsley

•11 months ago

49 Replies

Company income protection claim

Hi guys I am new to this forum and to the idea of possibly having Lupus as a white male, age 47. However, I am not new to symptoms having had many of them...

Hi guys I am new to this forum and to the idea of possibly having Lupus as a wh...

Wolfus

•11 months ago

10 Replies

Breathing problem had it twice

Struggling with knee and ankle Enthesis at moment.But last night woke up sweat at back of head and feeling like I could not get my breath. Anyone had this...

Struggling with knee and ankle Enthesis at moment.But last night woke up sweat a...

minka

•11 months ago

5 Replies

Sums me up perfectly.....

A fellow crocheter posted this on crochet UK and I just had to share....im sure some of you can relate xxx

A fellow crocheter posted this on crochet UK and I just had to share....im sure ...

Spanielmadlady

•11 months ago

23 Replies

hearing/ear issues

Hi, I’ve developed hearing loss/tinnitus in one ear and am waiting for an MRI to exclude an acoustic neuroma. I have mixed connective tissue disease and so one...

Hi, I’ve developed hearing loss/tinnitus in one ear and am waiting for an MRI to...

Mindfullmum

•11 months ago

10 Replies

rituximab nerves!

so, I have lupus and i'm due to have my first infusion of rituximab in the next month and I am extremely nervous- I'm not keen on this at all and not entirely...

so, I have lupus and i'm due to have my first infusion of rituximab in the next ...

maeows

•11 months ago

9 Replies

Denied Covid-19 Vaccination

01/05/2023 - Received NHS email to book Spring Covid-19 Vaccination 25/05/2023 - Attended 4pm appointment at our own GP surgery with Husband who has...

01/05/2023 - Received NHS email to book Spring Covid-19 Vaccination 25/05/2023...

Turquoise-1

•11 months ago

68 Replies

Mood swings

I just need to ask as I think I'm going mad... I have been diagnosed with UCTD and secondary Fybromyalgia and struggle with what I call 'mood swings'. I am 62...

I just need to ask as I think I'm going mad... I have been diagnosed with UCTD a...

Mctd

•11 months ago

15 Replies

prednisolone

Hi, I have quite mild lupus fortunately but recently I have had a lot of stress in my life and am having an awful flare. I do not take any medication. I went...

Hi, I have quite mild lupus fortunately but recently I have had a lot of stress ...

fifi6

•11 months ago

21 Replies

Thank you!

I just wanted to thank you for responding to my to my last post and for your advice and caring comments. I am sorry that I couldn’t respond to you all...

I just wanted to thank you for responding to my to my last post and for your adv...

April2018

•11 months ago

1 Reply

Palpitations after rituximab?

hi everyone, I am just wondering if anyone who has had rituximab experienced fast heart rate and palpitations after their infusions? And if so was it anything...

hi everyone, I am just wondering if anyone who has had rituximab experienced fas...

nada28

•11 months ago

1 Reply

Head pins and needles

Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted to ask if anyone has pins and needles, especially in the head. I am having...

Hi all, I hope you're all hanging on in there. I am newly diagnose and wanted t...

bubbatetley

•11 months ago

9 Replies

hydroxychloroquine

I’m having problems which I’m sure are caused by hydroxychloroquine - breathlessness and muscle weakness are terrible. I’m thinking of asking rheumatologist...

I’m having problems which I’m sure are caused by hydroxychloroquine - breathless...

BK47

•11 months ago

9 Replies

Mycophenolate or Azathioprine ?

Hi friends, Some of you will remember that in February I had an intolerably itchy rash my Rheumy didn’t recognise as being a Lupus rash but was confirmed by...

Hi friends, Some of you will remember that in February I had an intolerably itc...

Spotty-ewe

•11 months ago

36 Replies

Discoid in mouth

Anyone ever experienced discoid rash in the Roof of their Mouth?? I'm asking as I get them during flares ups but I haven't found this answer anywhere else...

Anyone ever experienced discoid rash in the Roof of their Mouth?? I'm asking as ...

Doolallywoo

•11 months ago

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Flucloxacillin, Fexofenadine > ANA result.

What medications could possibly affect a lupus diagnosis blood test? I'm having the ANA and anti - ds/DNA blood test in 2 days to see if all my symptoms are...

What medications could possibly affect a lupus diagnosis blood test? I'm having ...

Doolallywoo

•11 months ago

Be the first to reply

Hello and thank you for having me!

Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to...

Hello all, Thank you for having me on your forum and for sharing information. ...

Hollyinthewild

•11 months ago

16 Replies

Survey on the impact of lupus and the ability to work - Please take part!

PhD student (Birkbeck College, London) is conducting a study on the impact of lupus on people’s ability to work and absenteeism among people who are employed....

PhD student (Birkbeck College, London) is conducting a study on the impact of lu...

Chanpreet_Walia

LUPUS UK•11 months ago

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Somebody else must have this problem. PLEASE help!

Teeth, gums, mouth - I don't know any more. Nobody seems to know. Maybe I'm describing it badly. Years ago, way before any lupus diagnosis but probably while...

Teeth, gums, mouth - I don't know any more. Nobody seems to know. Maybe I'm desc...

Whippet_lady

•11 months ago

17 Replies

Working with Lupus

I work in the police control room and my lupus is managed by me very well. However, the sickness system is based on ‘periods of absence’ and although I am only...

I work in the police control room and my lupus is managed by me very well. Howev...

AnyHill89

•11 months ago

37 Replies

Urticaria to sun exposure

Hi. I don't have any diagnosis yet but i'm paying for a private rhumato this week. I start having spot on my hand for three month almost each day and the first...

Hi. I don't have any diagnosis yet but i'm paying for a private rhumato this wee...

Shadow35

•11 months ago

4 Replies

Trainers Recommendation

Hi Everyone, Looking for some advice please. My feet have still not recovered from walking around in what used to be very comfortable trainers. They still...

Hi Everyone, Looking for some advice please. My feet have still not recovered f...

CavendishCool

•11 months ago

44 Replies

Hydroxychloroquine and Azithromycin.

Hi everyone, I would just like to have your thoughts on the following.....I was diagnosed with Cutaneous Lupus an Sjogren's Syndrome 8yrs. ago. I was...

Hi everyone, I would just like to have your thoughts on the following.....I was ...

Biddy47

•11 months ago

14 Replies

New diagnosis

So I have recently been diagnosed with discoid lupus after a 3 year battle. I feel relieved in a sense to know that I was not going crazy with the symptoms I...

So I have recently been diagnosed with discoid lupus after a 3 year battle. I fe...

Quuen

•11 months ago

7 Replies

hydroxy brand change symptoms

Hello everyone, I have a quick question for anyone who can help - when I was first put on hydroxychloroquine last year I was put on Zentiva and then an...

Hello everyone, I have a quick question for anyone who can help - when I was f...

Tinylittlemac

•11 months ago

5 Replies

help with skin burning/rash

hi, my mum has just been diagnosed and is currently being weaned off the meds and steroids that aren’t doing her any good (they didn’t know what was wrong with...

hi, my mum has just been diagnosed and is currently being weaned off the meds an...

Maggie8403

•11 months ago

9 Replies

MS or Lupus

Hi All This is my first post and I appreciate that you may not have the answers just looking for guidance. I was diagnosed with Optic Neuritis in February...

Hi All This is my first post and I appreciate that you may not have the answer...

Gossygirl76

•11 months ago

39 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2023

good news

Biopsy update

Gluten intolerance/allergies linked to SLE gut issues inflammation of gut and all over from it.

Hello

Company income protection claim

Breathing problem had it twice

Sums me up perfectly.....

hearing/ear issues

rituximab nerves!

Denied Covid-19 Vaccination

Mood swings

prednisolone

Thank you!

Palpitations after rituximab?

Head pins and needles

hydroxychloroquine

Mycophenolate or Azathioprine ?

Discoid in mouth

Flucloxacillin, Fexofenadine > ANA result.

Hello and thank you for having me!

Survey on the impact of lupus and the ability to work - Please take part!

Somebody else must have this problem. PLEASE help!

Working with Lupus

Urticaria to sun exposure

Trainers Recommendation

Hydroxychloroquine and Azithromycin.

New diagnosis

hydroxy brand change symptoms

help with skin burning/rash

MS or Lupus

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