Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2023

Anyone taking Xeljanz?

I have been taking this drug two times and the first time I had to discontinue it because it gave the worst flu ever because it lowers the immune system. I’m...

I have been taking this drug two times and the first time I had to discontinue i...

•1 year ago

Be the first to reply

Spring covid booster

I have Lupus, im just on hydroxychloroquine, also just been diagnosed with hypothyroidism, does anyone know if we will get called up for spring covid...

I have Lupus, im just on hydroxychloroquine, also just been diagnosed with hyp...

•1 year ago

One-sided butterfly rash from driving

Yesterday, I drove across town in the sunshine and got one-sided malar rash Think this has happened before and wondered if others noticed this happening...

Yesterday, I drove across town in the sunshine and got one-sided malar rash Thin...

StriatedCaracara

•1 year ago

Want to take advantage of all our features? Just log in!

or

Knee replacement & lupus

Hello. Im due to have a whole knee replacement very soon. I was wondering has anybody else had one,and any advice or tips for a good recovery.Thanks so much...

Hello. Im due to have a whole knee replacement very soon. I was wondering has an...

•1 year ago

PEMF Mat

Hi all, just wondering if anyone has used the PEMF mat (pulse electro-magnetic field) and if it has benefited them with their symptoms of lupus? I’ve had lupus...

Hi all, just wondering if anyone has used the PEMF mat (pulse electro-magnetic f...

•1 year ago

Be the first to reply

Prednisolone

Hi guys sorry me again. I'm currently trying taking prednisolone 30 mg have been for about a month now. The last couple of weeks I keep feeling weird sort of...

Hi guys sorry me again. I'm currently trying taking prednisolone 30 mg have bee...

•1 year ago

Lupus and theme parks

Sorry really new to lupus if this is a stupid question. I want to take my kids to a theme park but am unsure how the roller coasters would affects me...

Sorry really new to lupus if this is a stupid question. I want to take my kids t...

•1 year ago

New study investigating how young people experience rheumatic pain

A new study is looking for young people aged 5-19 with chronic musculoskeletal conditions to share their experiences of chronic pain, and they’re keen to hear...

A new study is looking for young people aged 5-19 with chronic musculoskeletal c...

Administrator•1 year ago

Leeds Coffee & Chat - Saturday 15th April 2023

Join us for our next Coffee & Chat get-together in Leeds - see poster for full details ...

Join us for our next Coffee & Chat get-together in Leeds - see poster for full ...

Partner•1 year ago

Be the first to reply

suspected lupus

Hi all, just looking for any advice on your own experiences when you suspected lupus. My dr thinks I either have lupus or CFS however I have a lot of symptoms...

Hi all, just looking for any advice on your own experiences when you suspected l...

•1 year ago

cutaneous lupus

Hi, is anyone taking the immunosuppressant mycophenolate for cutaneous lupus /discoid lupus ? If so, has it worked and what side effects ? Many thanks

Hi, is anyone taking the immunosuppressant mycophenolate for cutaneous lupus /di...

•1 year ago

New issue: cubital tunnel syndrome

Hi guys, looks like I’m about to get diagnosed with a new problem: cubital tunnel syndrome. I didn’t know what this was until about 2 days ago, when I got...

Hi guys, looks like I’m about to get diagnosed with a new problem: cubital tunne...

•1 year ago

Help!

My daughter is 20 and we suspect she has lupus as has recently had a positive anti-dsDNA test. It began with what we thought was a sun allergy about 5 years...

My daughter is 20 and we suspect she has lupus as has recently had a positive an...

•1 year ago

Driving licence renewal medical conditions

I was just wondering if anyone had had any problems with their driving licence? I was diagnosed with peripheral neuropathy 3 years ago and dutifully informed...

I was just wondering if anyone had had any problems with their driving licence? ...

•1 year ago

Diet and nutrition

Does anyone have any advice on how they are managing their condition through diet and nutrition? Thank you

Does anyone have any advice on how they are managing their condition through die...

•1 year ago

Night Sweats

Has anyone got any ideas of making night sweats more bearable. I get them most nights and are getting very bad. Bed covers end up soaking wet. I have Lupus...

Has anyone got any ideas of making night sweats more bearable. I get them most ...

•1 year ago

1
2
3