Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2023

Abdominal pain

I am still awaiting a diagnosis of suspected lupus but i experience really bad abdominal pains which can occur at any random time of the day. No specific...

I am still awaiting a diagnosis of suspected lupus but i experience really bad a...

Quuen

•1 year ago

11 Replies

Red watering eyes

Hi all, I have been getting these strange eye symptoms maybe in the last six months. Every so often I will wake up with extremely red eyes bilaterally with...

Hi all, I have been getting these strange eye symptoms maybe in the last six m...

lwowkwin

•1 year ago

2 Replies

Spf and Uvf clothing

Is it necessary to always wear sun protective and ultra light protective clothing if you suffer from lupus?🥺🦋

Is it necessary to always wear sun protective and ultra light protective clothin...

Butt3rf1y

•1 year ago

19 Replies

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Benefits

I am still not sure if you can get benefits if you have lupus?🤔 Any information would be helpful❤️🧡💛💚💙💜🌈

I am still not sure if you can get benefits if you have lupus?🤔 Any information...

Butt3rf1y

•1 year ago

22 Replies

Single female

I am not sure this is the right place but am going to stay hopeful. As with any illness it has its draw backs and I have found it hard to find a partner who...

I am not sure this is the right place but am going to stay hopeful. As with any ...

Butt3rf1y

•1 year ago

4 Replies

Is it lupus

Hi, on feb 12th this year a small circular spot appeared on my neck then 2 weeks later I had 2 ring shaped legions on my neck so assumed it was ringworm but...

Hi, on feb 12th this year a small circular spot appeared on my neck then 2 weeks...

Stephanie1980

•1 year ago

10 Replies

A Special Cutie

Hello EveryoneThis is a different 'cutie pics' this week specially for my friend Kayhimm who you all know very well. She's been thru a tough procedure and...

Hello EveryoneThis is a different 'cutie pics' this week specially for my friend...

misty14

•1 year ago

40 Replies

Alternative to methotrexate

Hello all - I have lupus and was prescribed methotrexate by my rheumatologist last year. I took it for 6 months, but it really disagreed with me, so I stopped...

Hello all - I have lupus and was prescribed methotrexate by my rheumatologist la...

Ophelia1

•1 year ago

8 Replies

Portal?

Sorry another question. If I set up the portal will I get hospital letters for appointments only on it? Or can I also see the consultants letter to myself and...

Sorry another question. If I set up the portal will I get hospital letters for a...

BonnyB

•1 year ago

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Fatigue and pacing

Hi everyone, I have posted before about fatigue but here I am again!!I am seriously struggling with fatigue, exhaustion and also depression and anxiety atm....

Hi everyone, I have posted before about fatigue but here I am again!!I am serio...

Sara_A

•1 year ago

28 Replies

diagnosis

because I dont have mouth ulcers I am not getting access to a centre for clinical excellence. i have many other symptoms associated with this...

because I dont have mouth ulcers I am not getting access to a centre for...

Champ84

•1 year ago

12 Replies

lupus and shingles

Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed...

Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has ...

Krishny18

•1 year ago

14 Replies

Immunosepresent and when call doctor

I guysThoughs on immunosepresents Inc biologicals when do you call doctors about stopping if you ill at any sign or when your start to struggle? Think I'm...

I guysThoughs on immunosepresents Inc biologicals when do you call doctors about...

Sammyb246

•1 year ago

7 Replies

Discoid Lupus

hi I was wondering if fatigue and mind fog are associated with discoid lupus? Or is it just with systemic lupus?

hi I was wondering if fatigue and mind fog are associated with discoid lupus? O...

Bhudhi

•1 year ago

2 Replies

Phisio assessment

Well I got checked yesterday. And was given some more exercise. Even though it's hard to walk and ligaments in ankle and knee are really playing me up. And...

Well I got checked yesterday. And was given some more exercise. Even though it's...

minka

•1 year ago

4 Replies

Gabapentin

Anyone have any experience of gabapentin? Uctd Sjogrens, with lupus features Current medication- hydroxychloquine. The pain in my hands and feet, going up...

Anyone have any experience of gabapentin? Uctd Sjogrens, with lupus features C...

BonnyB

•1 year ago

49 Replies

Awaiting diagnosis

About 10 years ago i was diagnosed with asthma, lactose intolerance and IBS in my late teens. I muddled through, managing the symptoms as they came and...

About 10 years ago i was diagnosed with asthma, lactose intolerance and IBS in m...

Quuen

•1 year ago

5 Replies

Are you interested in helping with the design of a piece of research looking at infections in people with lupus?

We have been contacted by a Clinical Research Fellow at the University of Manchester who is looking for 5 or 6 volunteers, who would be willing and able to...

We have been contacted by a Clinical Research Fellow at the University of Manche...

Alida_Bennett

Partner•1 year ago

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Spring Covid Booster

Hello everyone. Hope you’ve had a good Easter 🐣 I’ve had a text from my GP inviting me for my spring booster. I have SLE. I’ve had 4 vaccines already and...

Hello everyone. Hope you’ve had a good Easter 🐣 I’ve had a text from my GP invi...

Loopy1971

•1 year ago

20 Replies

finger joint pain

Hi everyone, hope you all had a lovely Easter. Starting with finger rashes, chill blins and cold fingers, I now have have finger joint pain particularly in...

Hi everyone, hope you all had a lovely Easter. Starting with finger rashes, chi...

NY22

•1 year ago

3 Replies

Lupus Information Day - Sat, 13th May in Cardiff, Wales

LUPUS UK will be having their Lupus Information Day in Cardiff, Wales on Saturday 13th May. The information day event is open to anyone, providing they book a...

LUPUS UK will be having their Lupus Information Day in Cardiff, Wales on Saturda...

Chanpreet_Walia

LUPUS UK•1 year ago

1 Reply

Update on covid-19 treatments & eligibility

We've updated our article on the COVID-19 treatments and their eligibility, which you can read here: https://www.lupusuk.org.uk/covid-19-treatments/ Most of...

We've updated our article on the COVID-19 treatments and their eligibility, whic...

Debbie_kinsey

Administrator•1 year ago

3 Replies

It’s Mira,s the pandemic pups Birthday today 🐶🎂

hi folks, it’s been a while since I last posted, 3 years ago today it was the first week we went into full lockdown and it was a very scary time for all of us...

hi folks, it’s been a while since I last posted, 3 years ago today it was the fi...

svfarmer

•1 year ago

38 Replies

Hand issues

Does anyone have issues with thier hands. I think I have raynauds my hands can and feet can get really cold. But after a shower or when my hands get warm the...

Does anyone have issues with thier hands. I think I have raynauds my hands can a...

Sammyb246

•1 year ago

3 Replies

Struggling but COVID not bad now.

Ankle is getting worse red hot feet .3 hrs sleep and better leg hip and ankle starting now. And to top all that off better leg foot bones seems to be bulging...

Ankle is getting worse red hot feet .3 hrs sleep and better leg hip and ankle st...

minka

•1 year ago

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Ibuprofen with methotrexate and azathioprine

Hi all, I was wondering if anyone can help me. I am on methotrexate and reducing the azathioprine for my lupus. The trouble is I was told by the pharmacist...

Hi all, I was wondering if anyone can help me. I am on methotrexate and reducin...

cakerbaker

•1 year ago

10 Replies

Happy Easter everyone

Happy Easter everyone, hope you all get lots of Easter eggs

Cal66

•1 year ago

4 Replies

Sun exposure

Sorry i know i keep posting. New to sle lupus with hlh taking lots of meds. I know the sun can affect us. But I was only in the sun for an hour washing my car...

Sorry i know i keep posting. New to sle lupus with hlh taking lots of meds. I kn...

Sammyb246

•1 year ago

36 Replies

Anyone used Accord Hydroxychloroquine?

I've been on Zenvita hydroxychloroquine for a number of years, I'm unable to tolerate other brands and have never had a problem obtaining Zenvita untill...

I've been on Zenvita hydroxychloroquine for a number of years, I'm unable to tol...

Jazz80

•1 year ago

11 Replies

long haul travel with refrigerated meds

Hi, I recently started Benlysta which needs to be kept in the fridge. I’ve done a few short flights & have a travel bag with ice packs which works well. I’m...

Hi, I recently started Benlysta which needs to be kept in the fridge. I’ve don...

SonyaNME

•1 year ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2023

Abdominal pain

Red watering eyes

Spf and Uvf clothing

Benefits

Single female

Is it lupus

A Special Cutie

Alternative to methotrexate

Portal?

Fatigue and pacing

diagnosis

lupus and shingles

Immunosepresent and when call doctor

Discoid Lupus

Phisio assessment

Gabapentin

Awaiting diagnosis

Are you interested in helping with the design of a piece of research looking at infections in people with lupus?

Spring Covid Booster

finger joint pain

Lupus Information Day - Sat, 13th May in Cardiff, Wales

Update on covid-19 treatments & eligibility

It’s Mira,s the pandemic pups Birthday today 🐶🎂

Hand issues

Struggling but COVID not bad now.

Ibuprofen with methotrexate and azathioprine

Happy Easter everyone

Sun exposure

Anyone used Accord Hydroxychloroquine?

long haul travel with refrigerated meds

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