Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2023

Eligibility for the spring 2023 COVID-19 booster vaccine

We have updated our COVID-19 vaccination article with information about who will be eligible for the spring 2023 boosters. As far as we are aware, invitations...

We have updated our COVID-19 vaccination article with information about who will...

Debbie_kinsey

Administrator•1 year ago

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Covid, antivirals & methotrexate help please

Good morning, Well, it finally got me (and my husband). Three years of being ultra careful and I've got Covid. First positive was last Thursday after feeling...

Good morning, Well, it finally got me (and my husband). Three years of being ul...

Whippet_lady

•1 year ago

12 Replies

Root canal and teeth Implants

Hi all, I have an infected tooth, went to see d dentist n he said he will do a root canal for me, but I ve heard that Root canals are bad for lupus. Do anyone...

Hi all, I have an infected tooth, went to see d dentist n he said he will do a r...

Knowledgeispower1

•1 year ago

18 Replies

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Psoriatic Arthritis

Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that...

Does anyone have any experience with this? From my research from, yes, Dr. Goog...

CavendishCool

•1 year ago

11 Replies

Flying Fur

Hello everyoneJust thought it's time for a fun picture so I'm showing you this guy's golden retrievers Gus and Dora as they love going flying with him in...

Hello everyoneJust thought it's time for a fun picture so I'm showing you this ...

misty14

•1 year ago

31 Replies

Over diagnosis of psychiatric disease in unwell women

I thought that this opinion piece/letters in the Guardian today would make interesting, although not exactly comforting reading for all of us who have...

I thought that this opinion piece/letters in the Guardian today would make inter...

Hoofprints

•1 year ago

34 Replies

Inmigrating to the UK with Sjögren's, how to?

Hi! I hope I am not breaking any rule because this is about Sjörgen's and not Lupus, and I am writing this on behalf of my wife. We will move from the USA to...

Hi! I hope I am not breaking any rule because this is about Sjörgen's and not Lu...

arr_husband

•1 year ago

10 Replies

Coffee & Chat meeting in Pocklington - Saturday 18th March at 11.30 am

Join us in Pocklington for the second Coffee & Chat meeting in the area - everyone with a diagnosis of lupus or an associated condition, or on the path to...

Join us in Pocklington for the second Coffee & Chat meeting in the area - everyo...

Alida_Bennett

Partner•1 year ago

9 Replies

Symptoms of cutaneous lupus

Subacute cutaneous Lupus..hair loss and lupus chilblains!!

Joanus

•1 year ago

1 Reply

Flare Up Pain and Sleeping Advice

hi all - I have recently been diagnosed with Lupus this year and have been really struggling especially through the nights when I have a flare up. Does anybody...

hi all - I have recently been diagnosed with Lupus this year and have been reall...

mawe-3143

•1 year ago

3 Replies

No 200mg hydroxychloroquine!!

I live in the South West UK. Told by chemist that they couldn't obtain any 200mg hydroxychloroquine - any brand. Reason for this unknown by them. Thankfully,...

I live in the South West UK. Told by chemist that they couldn't obtain any 200m...

RosieA

•1 year ago

20 Replies

More stuff happening. It's new every day

Now more teeth want taking out because of gumI have flossed them every day makes no difference. And now I have a lump appearing in my wrist area. So that...

Now more teeth want taking out because of gumI have flossed them every day makes...

minka

•1 year ago

1 Reply

Has anyone else had flare up due to winter weather?

Hello 👋 I have a lupus flare up my arms and legs have inflamed connective tissue it’s so tight and uncomfortable it’s difficult to stand and walk it is now...

Hello 👋 I have a lupus flare up my arms and legs have inflamed connective tis...

Geeforce99

•1 year ago

8 Replies

First consultant rheumatologist appointment - tomorrow!

I have waited several months for this appointment since being referred by GP, not as long as I initially thought it would be, so that’s a bonus. I have...

I have waited several months for this appointment since being referred by GP, no...

Marzipan3468

•1 year ago

6 Replies

Minerals & help to choose the Multivitamins

Hi all, I diagnosed with lupus 3.5 years ago now I'm taking Mychophalanate, Hdroxycholorquine, Prednisolne 5MG, Adcal D3 Tablets, Lansoprazole1 tab per day...

Hi all, I diagnosed with lupus 3.5 years ago now I'm taking Mychophalanate, Hd...

FEEL-THE-BLUE

•1 year ago

11 Replies

Share your story this Plasma Donor Week (end of April)

NHS Blood and Transplant will be launching its first ever Plasma Donor Week at the end of April. Donated plasma will be made into immunoglobulin. NHSBT is...

NHS Blood and Transplant will be launching its first ever Plasma Donor Week at t...

Chanpreet_Walia

LUPUS UK•1 year ago

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My guts are still off movicol does make you guts twitch.

Taking movicol but I don't think I'm doing enough poo. And walking on this leg knee and ankle Is creating a problem in other bones. I'm wondering if I should...

Taking movicol but I don't think I'm doing enough poo. And walking on this leg k...

minka

•1 year ago

6 Replies

Help & Advice Needed

Good Afternoon All, Im just looking for some help & advice. I will be 3 years in august since my symptoms began and i still have no diagnosis. Flu like...

Good Afternoon All, Im just looking for some help & advice. I will be 3 years in...

charmel98

•1 year ago

2 Replies

Peripheral neuropathy

Hello everyone,Last time I spoke about my neuropathic pain. I finally saw a neurophysiologist yesterday. He did some needle test and another with a tuning...

Hello everyone,Last time I spoke about my neuropathic pain. I finally saw a neu...

ijeasike

•1 year ago

14 Replies

Update on availability of Blackrock hydroxychloroquine tablets

The 200mg Blackrock-branded hydroxychloroquine tablets are out of stock in the UK until May 2023, but the 300mg tablets remain in stock. You can read our...

The 200mg Blackrock-branded hydroxychloroquine tablets are out of stock in the U...

Debbie_kinsey

Administrator•1 year ago

2 Replies

70 th Birthday celebration 🎂🍾🥂

This weekend my hubby Neil was 70 and I bought him this t shirt which I thought might raise a smile. He loved it. I hope you are all as well as you can be and...

This weekend my hubby Neil was 70 and I bought him this t shirt which I thought ...

CecilyParsley

•1 year ago

40 Replies

Stomach Cramps

I'm currently yet to be diagnosed, but started on treatment for lupus/multi connective tissue disorder. I have a lot of symptoms from different autoimmune...

I'm currently yet to be diagnosed, but started on treatment for lupus/multi con...

NatalieMai

•1 year ago

6 Replies

Transferring Care

Hi all, my daughter whose 21 and in her final year at Newcastle University was diagnosed with SLE last June and under the care of a Newcastle hospital. When...

Hi all, my daughter whose 21 and in her final year at Newcastle University was d...

Ford7610

•1 year ago

12 Replies

Braking apart fast

This thing not content with a giving in ankles And taking out a knee. It's now moved into my back .I had a superb back 4 months ago. Now the thing feels like...

This thing not content with a giving in ankles And taking out a knee. It's now m...

minka

•1 year ago

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Contribute to an inquiry about musculoskeletal health inequalities

The Arthritis and Musculoskeletal Health Alliance are conducting a national inquiry about health inequalities in musculoskeletal health. You can find out what...

The Arthritis and Musculoskeletal Health Alliance are conducting a national inqu...

Debbie_kinsey

Administrator•1 year ago

2 Replies

Diagnosis Referral

Hi, I’m hoping someone can relate. About 10 years ago I started with pain in my joints and muscles and had a very bad episode of pleurisy. Since then I’ve...

Hi, I’m hoping someone can relate. About 10 years ago I started with pain in...

rareoldme

•1 year ago

12 Replies

Can lupus cause IBS?

Hi. I was diagnosed with lupus SLE about 10 years ago but until recently have been fortunate to suffer relatively mild symptoms.However, in the last few months...

Hi. I was diagnosed with lupus SLE about 10 years ago but until recently have be...

ViolinPlayer78

•1 year ago

7 Replies

Join us for coffee and a chat in Aberdeen TODAY - Sunday 5th March - at 11am at Pret, 234 Union Street, AB10 1TL

A reminder of our first Coffee & Chat meeting today in Aberdeen - join us for a very informal get-together. Anyone with a diagnosis of lupus, or an associated...

A reminder of our first Coffee & Chat meeting today in Aberdeen - join us for a ...

Alida_Bennett

Partner•1 year ago

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in case you need a little smile 😊

Prince T knows this is certainly not allowed 😂

Tiggywoos

•1 year ago

30 Replies

Join our first Coffee & Chat in INVERNESS - TODAY at 10.30 - Bad Girl Bakery, Victorian Market, Academy Street Inverness IV1 1JN

A reminder of our first Inverness Coffee & Chat Group which will be held at Bad Girl Bakery, Victorian Market, Academy Street, Inverness IN1 1JN, this morning...

A reminder of our first Inverness Coffee & Chat Group which will be held at Bad ...

Alida_Bennett

Partner•1 year ago

Be the first to reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2023

Eligibility for the spring 2023 COVID-19 booster vaccine

Covid, antivirals & methotrexate help please

Root canal and teeth Implants

Psoriatic Arthritis

Flying Fur

Over diagnosis of psychiatric disease in unwell women

Inmigrating to the UK with Sjögren's, how to?

Coffee & Chat meeting in Pocklington - Saturday 18th March at 11.30 am

Symptoms of cutaneous lupus

Flare Up Pain and Sleeping Advice

No 200mg hydroxychloroquine!!

More stuff happening. It's new every day

Has anyone else had flare up due to winter weather?

First consultant rheumatologist appointment - tomorrow!

Minerals & help to choose the Multivitamins

Share your story this Plasma Donor Week (end of April)

My guts are still off movicol does make you guts twitch.

Help & Advice Needed

Peripheral neuropathy

Update on availability of Blackrock hydroxychloroquine tablets

70 th Birthday celebration 🎂🍾🥂

Stomach Cramps

Transferring Care

Braking apart fast

Contribute to an inquiry about musculoskeletal health inequalities

Diagnosis Referral

Can lupus cause IBS?

Join us for coffee and a chat in Aberdeen TODAY - Sunday 5th March - at 11am at Pret, 234 Union Street, AB10 1TL

in case you need a little smile 😊

Join our first Coffee & Chat in INVERNESS - TODAY at 10.30 - Bad Girl Bakery, Victorian Market, Academy Street Inverness IV1 1JN

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