Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2023

Osteitis pubis

Hi just wondered if anybody with SLE and hypermobility syndrome has ever been diagnosed with this just had the results of an MRI scan of the pelvis and they've...

Hi just wondered if anybody with SLE and hypermobility syndrome has ever been di...

sunshine16

•1 year ago

4 Replies

Clubbing of fingers & toes

My daughter has PH & Mixed Connective Tissue Disease.Lately she noticed clubbing of her fingers & toes. She mentioned it to the Rheumatologist & PH Dr and they...

My daughter has PH & Mixed Connective Tissue Disease.Lately she noticed clubbing...

Wangpaupau

•1 year ago

3 Replies

[b]Important survey needing more responses from people from ETHNIC MINORITIES and non-white ethnicities please. [/b]

The University of Cambridge study into quality of life, neurological and mental health systems, and medical relationships from rheumatology patients had a...

The University of Cambridge study into quality of life, neurological and mental ...

Chanpreet_Walia

LUPUS UK•1 year ago

5 Replies

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Radiotherapy

Hello ; I've posted on this previously ; I thought I would try again , in the hope some members might see it this time that may have missed it last time : I...

Hello ; I've posted on this previously ; I thought I would try again , in the ho...

jamesroybuck

•1 year ago

12 Replies

Lupas rash butterfly? Wondering if any one can help, share advice or has similar to this?

Hi all I hope you are all keeping well. So I have this rash on my cheeks it's less noticeable morning, come mid afternoon i can feel it coming come evening...

Hi all I hope you are all keeping well. So I have this rash on my cheeks it's le...

Danimccrea

•1 year ago

21 Replies

Concerned from Canada

Hi All, Hope it's okay to post here as I've yet to find a community of this type in Canada. I've struggled with chronic nausea and vomiting since I was a kid....

Hi All, Hope it's okay to post here as I've yet to find a community of this type...

Soph_Locs

•1 year ago

1 Reply

Gel nails & UV lamps

Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed with SLE and retinal vasculitis. As it’s very new to her, we are trying to...

Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed...

Gooner786

•1 year ago

2 Replies

lupus and exercise

Hey, I have recently been diagnosed with lupus after suffering with joint shin pains for 9 months. I used to do sport, especially the gym but haven’t done any...

Hey, I have recently been diagnosed with lupus after suffering with joint shin ...

Yellowsun111

•1 year ago

9 Replies

Lupus Eyes

Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the...

Its been sometime since I have contacted Health unlocked about My BP/Asthma and ...

just-typing

•1 year ago

1 Reply

No go on my x-rays so disapointed

Saw info on my x-rays no atheritus showing knee and ankle I whent on my crutches. I said but look walked up and down .and they have made appointment for...

Saw info on my x-rays no atheritus showing knee and ankle I whent on my crutches...

minka

•1 year ago

18 Replies

life insurance

hi could I have names of life insurance companies which accept people lupus I’m on steroids as well. Thank you

hi could I have names of life insurance companies which accept people lupus I’m ...

Jollei

•1 year ago

4 Replies

Lupus/Rheumatoid arthritis & subcutaneous nodules.

Hello. I hope you’re all doing well. 5 years ago, whilst living in the midlands, I was diagnosed with negative ana lupus and rheumatoid arthritis. I was...

Hello. I hope you’re all doing well. 5 years ago, whilst living in the midland...

Jasmine22

•1 year ago

5 Replies

vertigo and antibiotics

hi, does anyone else get vertigo quite badly during a course of (penicillin) antibiotics for an eye infection. Was on day 5 of 7 and have felt faint,...

hi, does anyone else get vertigo quite badly during a course of (penicillin) ant...

Laz2

•1 year ago

19 Replies

Flare up after rheumy stopped my hydroxy, anyone else had the same?

Hi all, I’ve been on hcq for the last four years while rheumatology try to figure out whether or not what I have is lupus or APS ( it runs in the family and I...

Hi all, I’ve been on hcq for the last four years while rheumatology try to figu...

TwitchyM

•1 year ago

7 Replies

RAMADAN & LUPUS Webinar tomorrow, 19th March from 10-11am on Zoom

Hi everyone, LUPUS UK are hosting a 1-hour webinar with Professor Anisur Rahman from UCLH about Ramadan and lupus. The webinar is free to join. Professor...

Hi everyone, LUPUS UK are hosting a 1-hour webinar with Professor Anisur Rahman...

Chanpreet_Walia

LUPUS UK•1 year ago

3 Replies

Hearing loss post covid

Has anyone else had hearing loss post Covid? I’ve had this now for about six weeks, accompanied by head and neck pains and a sore mouth; also a kind of object...

Has anyone else had hearing loss post Covid? I’ve had this now for about six wee...

Neriah

•1 year ago

2 Replies

Learning to validate myself

I wanted to quickly get on here and share some thoughts. I have struggled with my health since I was 15, I am now 25. It is honestly hard for me to imagine not...

I wanted to quickly get on here and share some thoughts. I have struggled with m...

Hidden

•1 year ago

27 Replies

Maintenance dose of Prednisolone? Essential or just convenient?

I've been taking steroids since September 2013, when I was officially diagnosed with SLE (CNS). After years of various doses depending on the severity of my...

I've been taking steroids since September 2013, when I was officially diagnosed ...

lupieibbie

•1 year ago

21 Replies

PARE webinar with Prof Schneider on treatment of lupus

In case you are interested, you can watch a recording of Professor Matthias Schneider delivering a webinar called "Latest advances in treatment and management...

In case you are interested, you can watch a recording of Professor Matthias Schn...

Debbie_kinsey

Administrator•1 year ago

2 Replies

Red painful sores on fingers

I am wondering if anyone has had anything similar to what I am experiencing and would be grateful for any insights. I accidentally cut my finger whilst...

I am wondering if anyone has had anything similar to what I am experiencing and ...

Genealogy66

•1 year ago

27 Replies

How to manage demanding career with Lupus / connective tissue disease

Hello, I am a front office finance professional with undifferentiated connective tissue disease, with strong risk to develop lupus as it runs in the family....

Hello, I am a front office finance professional with undifferentiated connectiv...

wiselyfair

•1 year ago

16 Replies

An indicator in the blood could guide lupus treatment

A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using...

A clinical trial (called “BEAT-Lupus”) has found that using a combination of two...

Debbie_kinsey

Administrator•1 year ago

2 Replies

Research into experience of psychological therapies by those with medically unexplained symptoms in long term/chronic conditions

We have been contacted by a Counselling Psychologist-in-training at the University of Roehampton who is looking to interview individuals who are living with...

We have been contacted by a Counselling Psychologist-in-training at the Universi...

Alida_Bennett

Partner•1 year ago

9 Replies

Well it's all go Friday to next week in appointments.

Friday I got some teeth out Monday I go back about my knee and ankle especially when I showed podiatry it was twisting.,when I put my foot down scarey stuff to...

Friday I got some teeth out Monday I go back about my knee and ankle especially ...

minka

•1 year ago

Be the first to reply

CONFUSION

Hi everyone I was dx with SLE in 2001 which came as a complete shock. My 1st visit to my rheumy was shortly afterwards, but sadly there were two specialists...

Hi everyone I was dx with SLE in 2001 which came as a complete shock. My 1st vis...

MandieR

•1 year ago

11 Replies

Covid NHS message regarding anti viral medication

l too received the email yesterday just after I tested positive. I thought the message said l could have flow tests from them and not have to buy and they...

l too received the email yesterday just after I tested positive. I thought the m...

Cohan

•1 year ago

7 Replies

Have SLE and Anti viral for covid

I have just received a text to say I qualify for the anti viral for covid, I was diagnosed with SLE 4 years ago, can't understand why it's taken so long, im...

I have just received a text to say I qualify for the anti viral for covid, I was...

MrGrey1234

•1 year ago

56 Replies

Pleurasy

Last year my Lupus doctor suggested that discomfort / sense of chest pain was likely to be pleurasy.Over the last months this has spread , and now my chest...

Last year my Lupus doctor suggested that discomfort / sense of chest pain was li...

Rosiaz

•1 year ago

10 Replies

New BSR guidelines to support prescribing during pregnancy for patients with rheumatic conditions

In November 2022, the British Society for Rheumatology published two new guidelines containing evidence and best practice for prescribing rheumatology...

In November 2022, the British Society for Rheumatology published two new guideli...

Debbie_kinsey

Administrator•1 year ago

Be the first to reply

Do these numbers mean anything to anyone?

I’ve had my blood fest results back and this time it has a test that wasn’t on previous ones. Serum C reactive protein level was 12.6mg. GFR 84ml. I...

I’ve had my blood fest results back and this time it has a test that wasn’t on p...

rareoldme

•1 year ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2023

Osteitis pubis

Clubbing of fingers & toes

[b]Important survey needing more responses from people from ETHNIC MINORITIES and non-white ethnicities please. [/b]

Radiotherapy

Lupas rash butterfly? Wondering if any one can help, share advice or has similar to this?

Concerned from Canada

Gel nails & UV lamps

lupus and exercise

Lupus Eyes

No go on my x-rays so disapointed

life insurance

Lupus/Rheumatoid arthritis & subcutaneous nodules.

vertigo and antibiotics

Flare up after rheumy stopped my hydroxy, anyone else had the same?

RAMADAN & LUPUS Webinar tomorrow, 19th March from 10-11am on Zoom

Hearing loss post covid

Learning to validate myself

Maintenance dose of Prednisolone? Essential or just convenient?

PARE webinar with Prof Schneider on treatment of lupus

Red painful sores on fingers

How to manage demanding career with Lupus / connective tissue disease

An indicator in the blood could guide lupus treatment

Research into experience of psychological therapies by those with medically unexplained symptoms in long term/chronic conditions

Well it's all go Friday to next week in appointments.

CONFUSION

Covid NHS message regarding anti viral medication

Have SLE and Anti viral for covid

Pleurasy

New BSR guidelines to support prescribing during pregnancy for patients with rheumatic conditions

Do these numbers mean anything to anyone?

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