Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2023

Lupus and COVID Vaccine

Hi everyone. hope you are all well I have had the 3 vaccines and my doctor reccomends me to take the 4th vaccine, but I don’t know how I feel about it. I...

Hi everyone. hope you are all well I have had the 3 vaccines and my doctor re...

Turquoise1999

•1 year ago

30 Replies

teeth implants

I am having a lot of problems with swollen gums and I think I am going to lose a few teeth , can you have implants with lupus ?

I am having a lot of problems with swollen gums and I think I am going to lose a...

daffodill2

•1 year ago

10 Replies

Getting Covid antivirals when traveling

Firstly thanks to everyone who responded to my last question about Covid. You really helped me get through the week, whilst I worried that I had Covid. I’m...

Firstly thanks to everyone who responded to my last question about Covid. You re...

LilyMistri2

•1 year ago

17 Replies

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swollen legs

Every evening my lower legs swell and feel really sore. I take hydroxychloroquine and sulfasalazine. I am diabetic but the GP has stopped all diabetic...

Every evening my lower legs swell and feel really sore. I take hydroxychloroquin...

JamieWth

•1 year ago

5 Replies

Nephrotic syndrome and lupus aanyone else suffer this awful situation please any answers would help feeling fed up

Nephrotic syndrome and lupus please

Danimccrea

•1 year ago

5 Replies

NICE publish draft recommendation for Evusheld

Earlier this week, NICE published their draft recommendation for Evusheld. They are currently recommending that it should not be used by the NHS for the...

Earlier this week, NICE published their draft recommendation for Evusheld. They ...

Paul_Howard

Partner•1 year ago

3 Replies

What meds can I take

Hi everyone, I need some advice please 🙏I'm currently in a flare and have sle which has caused kidney damage and was advised not to take naproxen is there an...

Hi everyone, I need some advice please 🙏I'm currently in a flare and have sle w...

Zeberdee1

•1 year ago

4 Replies

going through lupus diagnosis

Hello everyone, I’m in the process of seeing doctors and getting tests done for a diagnosis.. I’ve been researching into lupus and I wanted to share my...

Hello everyone, I’m in the process of seeing doctors and getting tests done for ...

littledove97

•1 year ago

3 Replies

Doxycycline

Hi everyone, I’ve been suffering with a sinus infection for 2 weeks now. My GP has just prescribed me some Doxycycline. Having taken some this morning, I...

Hi everyone, I’ve been suffering with a sinus infection for 2 weeks now. My GP...

CharlotteGB

•1 year ago

12 Replies

Reoccurring chest rash

Hello all. I am not diagnosed for have been generally unwell with fatigue/joint problems for some years. In August 2021 I became very ill with fever, rash,...

Hello all. I am not diagnosed for have been generally unwell with fatigue/joint ...

Alisha6653

•1 year ago

21 Replies

Cutie at Chester Zoo (Part 2)

Hello everyoneJust popping up to show you another new cutie born at Chester Zoo. This one is a rare tree kangaroo joey emerging from his mother's pouch!....

Hello everyoneJust popping up to show you another new cutie born at Chester Zoo....

misty14

•1 year ago

43 Replies

Update and cautionary tale

Hello lovelies I've not been active here for a while, but thought it might be useful to update on some issues. The main one being that after complaining of a...

Hello lovelies I've not been active here for a while, but thought it might be u...

whisperit

•1 year ago

26 Replies

Joint pain and neuropathy at night making it very difficult to sleep - any suggestions?

I’ve been experiencing a lot of joint pain and neuropathy symptoms at night. It’s making sleeping very difficult. I fall asleep in pain (due only to pure...

I’ve been experiencing a lot of joint pain and neuropathy symptoms at night. It’...

Hidden

•1 year ago

7 Replies

Hypermobility/HEDS recommendation?

Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed...

Hi there. Thanks for taking the time to read my post. I posted on the EDS forum ...

Winter_night

•1 year ago

11 Replies

Azathioprine?

I'd love to hear some of your experiences with azathioprine. I'm being switched to it as mmf seems to have stopped working for me xxx

I'd love to hear some of your experiences with azathioprine. I'm being switched ...

Dogportraitartist

•1 year ago

7 Replies

Reducing Joint inflammation: anything you have tried that actually helps?

Hi all,(Asking for my husband who has terrible knee pain and the start of arthritis. He is looking for something other than naproxine/iboprofane, and...

Hi all,(Asking for my husband who has terrible knee pain and the start of arthri...

Blue_feather

•1 year ago

6 Replies

How to get Covid antiviral?

I may have Covid, I’ll know tomorrow when I do another lateral flow test. As it’s the weekend it has been very difficult to get info from 111 and 119. A doctor...

I may have Covid, I’ll know tomorrow when I do another lateral flow test. As it’...

LilyMistri2

•1 year ago

24 Replies

Lichen sclerosus

Hi there. I have SLE, sjogrens and lichen sclerosus.My question is, is there anyone out there suffering with LS on any other part of their body apart from down...

Hi there. I have SLE, sjogrens and lichen sclerosus.My question is, is there any...

Hidden

•1 year ago

10 Replies

Rituximab side effect or stomach bug?

Hi All, My younger sister has been diagnosed with a rare and very progressive form of SLE, that’s affected her organs and vision. She’s had some intensive...

Hi All, My younger sister has been diagnosed with a rare and very progressive f...

Gooner786

•1 year ago

17 Replies

Cycloporine

Hi I'm new here just need some advice on cycloporine eyes drops I'm using 1 drop b4 bed side effects?are quite bad is this normal ?

Hi I'm new here just need some advice on cycloporine eyes drops I'm using 1 drop...

Jimbob1303

•1 year ago

7 Replies

Join our new LUPUS UK Coffee & Chat group in GOODMAYES on Monday 20th February at 5 p.m.

We are pleased to announce the first meeting of the LUPUS UK Coffee & Chat Group in Goodmayes on Monday 20th February at 5 p.m. - a very friendly and informal...

We are pleased to announce the first meeting of the LUPUS UK Coffee & Chat Group...

Alida_Bennett

Partner•1 year ago

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Is your condition affected by the cold? Would you be happy to be interviewed by BBC Wales?

We have been contacted by BBC Wales who are looking to interview someone with a long term health condition which is affected by the cold, who may be struggling...

We have been contacted by BBC Wales who are looking to interview someone with a ...

Alida_Bennett

Partner•1 year ago

2 Replies

Cold feet feeling

What do you do if your feet start to look blueishAny one get this and dont panic. Some one must know this.

What do you do if your feet start to look blueishAny one get this and dont panic...

minka

•1 year ago

44 Replies

First RH appointment tomorrow

I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could...

I am absolutely beside myself at the moment. After being seriously unwell for 3 ...

Alicexo

•1 year ago

12 Replies

VOLUNTEERS NEEDED - LEARNING BY EXPERIENCE – Opportunity to support the work of Leeds University by sharing your experience

Dr Lucy Ziegler, Lead for Student Education at the University of Leeds School of Medicine, is again looking for volunteers to be a part of their Long Term...

Dr Lucy Ziegler, Lead for Student Education at the University of Leeds School of...

Alida_Bennett

Partner•1 year ago

2 Replies

LUPUS UK awareness survey - only takes 3 minutes to complete!

Hi everyone, Please take part in our 3-minute anonymous survey asking you to share details of when you first heard of lupus. Data from the survey will help...

Hi everyone, Please take part in our 3-minute anonymous survey asking you to sh...

Chanpreet_Walia

LUPUS UK•1 year ago

8 Replies

Anyone want to contribute?

Hi everyone, I am currently the UK youth ambassador for International adolescence health week (IAHW). As part of my role with that, I've chosen to try and...

Hi everyone, I am currently the UK youth ambassador for International adolesce...

LouLamb

•1 year ago

29 Replies

Hi everyone

Hi everyone! I just wanted to introduce myself as I'm a new member of the Lupus UK team. My name is Debbie and I'm in a new role as Health Information...

Hi everyone! I just wanted to introduce myself as I'm a new member of the Lupus...

Debbie_kinsey

Administrator•1 year ago

13 Replies

2 questions

hi, I’m new here but I was diagnosed in 2007. First question is. 1. As a black African … does anyone have recommendations on lotions to use other than sun...

hi, I’m new here but I was diagnosed in 2007. First question is. 1. As a blac...

Lovely_29

•1 year ago

8 Replies

Methotrexate help please

I started taking this last Wednesday and side effects hit with aggression on Friday. SO tired, indigestion, headaches and my tummy was violently ill on Friday...

I started taking this last Wednesday and side effects hit with aggression on Fri...

puffyface

•1 year ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2023

Lupus and COVID Vaccine

teeth implants

Getting Covid antivirals when traveling

swollen legs

Nephrotic syndrome and lupus aanyone else suffer this awful situation please any answers would help feeling fed up

NICE publish draft recommendation for Evusheld

What meds can I take

going through lupus diagnosis

Doxycycline

Reoccurring chest rash

Cutie at Chester Zoo (Part 2)

Update and cautionary tale

Joint pain and neuropathy at night making it very difficult to sleep - any suggestions?

Hypermobility/HEDS recommendation?

Azathioprine?

Reducing Joint inflammation: anything you have tried that actually helps?

How to get Covid antiviral?

Lichen sclerosus

Rituximab side effect or stomach bug?

Cycloporine

Join our new LUPUS UK Coffee & Chat group in GOODMAYES on Monday 20th February at 5 p.m.

Is your condition affected by the cold? Would you be happy to be interviewed by BBC Wales?

Cold feet feeling

First RH appointment tomorrow

VOLUNTEERS NEEDED - LEARNING BY EXPERIENCE – Opportunity to support the work of Leeds University by sharing your experience

LUPUS UK awareness survey - only takes 3 minutes to complete!

Anyone want to contribute?

Hi everyone

2 questions

Methotrexate help please

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