Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for February 2023

pain that moves !

Hi lovely forum friends ! Writing this post to check my sanity really 😳 Can any one relate to pain that moves around the body ? For example I’ll have...

Hi lovely forum friends ! Writing this post to check my sanity really 😳 Can...

Tiggywoos

•1 year ago

63 Replies

Early diagnosis and monitoring of lupus nephritis -- on your smartphone !!

I love when technology helps in diseases prevention and diagnosis.🥰 A team of researchers at the University of Houston is reporting the success of their new...

I love when technology helps in diseases prevention and diagnosis.🥰 A team of ...

Naladog

•1 year ago

1 Reply

Do you live in the Inverness area? Would you like to join us for our first Inverness Coffee & Chat meeting on Saturday 4th March?

Would you like to meet others with lupus or an associated condition at a friendly and relaxed Coffee & Chat group meeting? Friends and family are also...

Would you like to meet others with lupus or an associated condition at a friendl...

Alida_Bennett

Partner•1 year ago

2 Replies

Want to take advantage of all our features? Just log in!

We are delighted to announce that our Strathclyde Lupus Group are resuming face to face meetings from Friday 3rd March!

Join us for the restart of our Strathclyde Lupus Group face to face meetings on Friday 3rd March from 12.30 to 2.30 at The Alliance, Venlaw Building, 349 Bath...

Join us for the restart of our Strathclyde Lupus Group face to face meetings on ...

Alida_Bennett

Partner•1 year ago

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Radiotherapy

Hello everyone , I have had SLE and APS for around 25 years ; I took Hydroxy. for the first 4 years and then had to stop due vision problems. I was diagnosed...

Hello everyone , I have had SLE and APS for around 25 years ; I took Hydroxy. fo...

jamesroybuck

•1 year ago

4 Replies

constantly ill

my 19 year old daughter has had a probable diagnosis of fibromyalgia! Think this is a diagnosis you get when you want a diagnosis but they still aren’t sure!...

my 19 year old daughter has had a probable diagnosis of fibromyalgia! Think thi...

Claudette1

•1 year ago

16 Replies

Advice on Rituximab

Hi everyone, I'm struggling a bit with making a decision and I'd really appreciate some thoughts on this. I saw the registrar a few weeks ago and my rash...

Hi everyone, I'm struggling a bit with making a decision and I'd really apprecia...

BookishVibes

•1 year ago

7 Replies

Steroid cards - Do all people have them who need them?

Just wondered what the current rules are about steroid cards. Who issues them? Just wondered what...

Just wondered what the current rules are about steroid cards. ...

StriatedCaracara

•1 year ago

22 Replies

Heartbroken

Our beautiful dog Bonny was too poorly for this world and we had to say goodnight to her on Tuesday. We are all so upset and missing her dearly. My home feels...

Our beautiful dog Bonny was too poorly for this world and we had to say goodnigh...

BonnyB

•1 year ago

38 Replies

Small Nerves Issues and Hair Loss Advice Sought.

Hi everyone. Really hope this message finds you all keeping as well as you can. 🤞 Having been diagnosed with UCTD a year ago, my main issues, amongst...

Hi everyone. Really hope this message finds you all keeping as well as you can. ...

RMC17

•1 year ago

14 Replies

Agony in the sole of my feet

My feet is an agony. Especially the sole of my feet. It's even painful without stepping on the floor. I am on Gabapentin and amytriptylin for my neuropathy. I...

My feet is an agony. Especially the sole of my feet. It's even painful without s...

ijeasike

•1 year ago

11 Replies

A huge Thank You and rash update

I want to thank everybody who supported and reassured me on my post two days ago. Thank you all for sharing your own experiences with me and to Barbara and...

I want to thank everybody who supported and reassured me on my post two days ago...

Spotty-ewe

•1 year ago

61 Replies

Email

Good morning. Does anyone know why when I tried to look at the forum this morning I was unable to? A box popped up saying welcome back! I'm on the forum...

Good morning. Does anyone know why when I tried to look at the forum this mornin...

CarolMcl

•1 year ago

8 Replies

Is it possible to request for a particular brand of medication

Hello everyone. I am new to the group, and i need help on how to go about this medication issue. I have been trying to request for a particular brand of...

Hello everyone. I am new to the group, and i need help on how to go about this m...

LittleAngle

•1 year ago

21 Replies

Research project update: COVID-19 vaccine responses in lupus patients

We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read...

We have an update from one of the research projects LUPUS UK funded, which was l...

Debbie_kinsey

Administrator•1 year ago

9 Replies

SLE and disk surgery

anyone with Systemic lupus had disk surgery? Due surgery on C5/6 and C6/7 - abit scared more for afterwards. Having to come off mycophenolate for week...

anyone with Systemic lupus had disk surgery? Due surgery on C5/6 and C6/7 - ab...

Kelbol1

•1 year ago

4 Replies

Joint pain at night waking me up

Hi everyone, I have been experiencing quite bad joint pain at night, to the point where it is waking me up and making it very hard to sleep. I've noticed...

Hi everyone, I have been experiencing quite bad joint pain at night, to the po...

Hidden

•1 year ago

2 Replies

thrombocytopaenia and antiphospholipid antibodies

Hello all So, in addition to antiphospholipid antibodies which, apparently thicken the blood I also have (and have had before) low platelets which,...

Hello all So, in addition to antiphospholipid antibodies which, apparently thic...

Brychni

•1 year ago

2 Replies

Join us for our first (rescheduled) Aberdeen Coffee & Chat meeting on Sunday 5th March

Join us for our first Aberdeen face to face Coffee & Chat group meeting on Sunday 5th March (rescheduled from February) at 11 a.m. at Pret (coffee shop), 234...

Join us for our first Aberdeen face to face Coffee & Chat group meeting on Sunda...

Alida_Bennett

Partner•1 year ago

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Join us for our re-scheduled first Fort William Coffee & Chat meeting on Wednesday 1st March at 11 a.m.

Join us for our first Fort William Coffee & Chat group meeting on Wednesday 1st March (re-scheduled from February) at 11 a.m. at New Connections, Waverley...

Join us for our first Fort William Coffee & Chat group meeting on Wednesday 1st ...

Alida_Bennett

Partner•1 year ago

3 Replies

I have podiatry tomorrow what should I say

I have podiatry tomorrow and you can see my ankle giving way and their is sort of a banging feeling to the foot. I bought some inserts to try on ebay. Not...

I have podiatry tomorrow and you can see my ankle giving way and their is sort o...

minka

•1 year ago

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Lupus & Ramadan

Hi everyone! We are looking to provide information for people with lupus who will be taking part in the holy month of Ramadan beginning next month. If you...

Hi everyone! We are looking to provide information for people with lupus who wi...

Chanpreet_Walia

LUPUS UK•1 year ago

11 Replies

Do you recognise this rash?

Hello all you lovely friends. I haven’t posted for some time as I’ve been having one thing go wrong after another. I was taken into hosptial on 23rd January...

Hello all you lovely friends. I haven’t posted for some time as I’ve been having...

Spotty-ewe

•1 year ago

81 Replies

NICE share draft final recommendations for COVID-19 treatments

Hi everyone, NICE has published their draft final recommendations for COVID-19 treatments. We are pleased that they have included sotrovimab for people who...

Hi everyone, NICE has published their draft final recommendations for COVID-19 ...

Paul_Howard

Partner•1 year ago

5 Replies

Young Persons (aged 10 - 18) event for WORD Day in London on Sat 11th March

LUPUS UK and Great Ormond Street Hospital (GOSH) are pleased to host a Lupus Café Family Event as part of World yOung Rheumatic Diseases (WORD) Day this year....

LUPUS UK and Great Ormond Street Hospital (GOSH) are pleased to host a Lupus Caf...

Chanpreet_Walia

LUPUS UK•1 year ago

Be the first to reply

Neuropathy treatments?

Hi everyone, I have been dealing with widespread neuropathy symptoms for a while now. My arms, hands, legs, feet, face, and mouth often itch, burn, tingle,...

Hi everyone, I have been dealing with widespread neuropathy symptoms for a whi...

Hidden

•1 year ago

9 Replies

Red rashes/tender lesions in fingers

Hi everyone, I have sub cutaneous lupus and am on HCQS. Have any of you experienced round red lesions in your fingers? These swell up and become painful so...

Hi everyone, I have sub cutaneous lupus and am on HCQS. Have any of you exper...

NY22

•1 year ago

7 Replies

‘Tame The Beast’ ….. I’m sharing for anyone who’s never seen this & am interested in your thoughts ….. https://youtu.be/ikUzvSph7Z4

I was told about this a few days ago by the APP (Advanced Physio Practitioner) at my GP surgery, (It may well be already on Lupus UK somewhere). Yes,...

I was told about this a few days ago by the APP (Advanced Physio Practitioner) a...

Turquoise-1

•1 year ago

4 Replies

Breast biopsy results

Hi everyone, wish me luck, I'm going to get the results of my breast biopsy today, feeling very nervous, my mum had breast cancer before dying from pancreatic...

Hi everyone, wish me luck, I'm going to get the results of my breast biopsy toda...

Lulamay7

•1 year ago

11 Replies

live vaccination

Am looking for some advice please if anyone could help me. My nephew needs to get his mmr jag this week and if it’s a live vaccine it says on the leaflet that...

Am looking for some advice please if anyone could help me. My nephew needs to ge...

Murp17

•1 year ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2023

pain that moves !

Early diagnosis and monitoring of lupus nephritis -- on your smartphone !!

Do you live in the Inverness area? Would you like to join us for our first Inverness Coffee & Chat meeting on Saturday 4th March?

We are delighted to announce that our Strathclyde Lupus Group are resuming face to face meetings from Friday 3rd March!

Radiotherapy

constantly ill

Advice on Rituximab

Steroid cards - Do all people have them who need them?

Heartbroken

Small Nerves Issues and Hair Loss Advice Sought.

Agony in the sole of my feet

A huge Thank You and rash update

Email

Is it possible to request for a particular brand of medication

Research project update: COVID-19 vaccine responses in lupus patients

SLE and disk surgery

Joint pain at night waking me up

thrombocytopaenia and antiphospholipid antibodies

Join us for our first (rescheduled) Aberdeen Coffee & Chat meeting on Sunday 5th March

Join us for our re-scheduled first Fort William Coffee & Chat meeting on Wednesday 1st March at 11 a.m.

I have podiatry tomorrow what should I say

Lupus & Ramadan

Do you recognise this rash?

NICE share draft final recommendations for COVID-19 treatments

Young Persons (aged 10 - 18) event for WORD Day in London on Sat 11th March

Neuropathy treatments?

Red rashes/tender lesions in fingers

‘Tame The Beast’ ….. I’m sharing for anyone who’s never seen this & am interested in your thoughts ….. https://youtu.be/ikUzvSph7Z4

Breast biopsy results

live vaccination

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