Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2023

Abatacept (Orencia)

I’m currently taking methotrexate and leflunamide. My rheumatologist wants to put me on Abatacept. Does anyone have any experience of this drug?

I’m currently taking methotrexate and leflunamide. My rheumatologist wants to p...

•1 year ago

thyroid elevated

Happy new year to all M upset n disappointed that my thyroid has been elevated I m doing my best regarding food exercise meds Also have high blood......

Happy new year to all M upset n disappointed that my thyroid has been elevated ...

•1 year ago

Visit the next drop in of our West Midlands Lupus Support Group in Coseley on Thursday 12th January from 2 to 4 p.m.

Our West Midlands Lupus Support Group are holding their next drop-in on Thursday 12th January from 2 to 4 p.m. at Silver Jubilee Park Hub, Mason Street,...

Our West Midlands Lupus Support Group are holding their next drop-in on Thursday...

Partner•1 year ago

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Scared now

I'm having real trouble walking on knee and ankle today and groin and back a bit feels really bad. Got podiatry tomorrow hope someone can help me.

I'm having real trouble walking on knee and ankle today and groin and back a bit...

•1 year ago

Lupus Rash

Hi everyone Hope everyone is well I have been experiencing on and off lupus rash/butterfly rash on my face for years now. But for the past few years, it has...

Hi everyone Hope everyone is well I have been experiencing on and off lupus r...

•1 year ago

Menstrual Cycle and Symptoms

Hi everyone, This question will be directed toward my lady friends. I have noticed an upswing in symptoms a couple of weeks before and about 3 days into my...

Hi everyone, This question will be directed toward my lady friends. I have not...

•1 year ago

Weaning off steroids causing mood changes?

Afternoon all, I am on 7mg steroids at the moment and I have been weaning off steroids steadily for about a year or more I would say. I have been on...

Afternoon all, I am on 7mg steroids at the moment and I have been weaning off ...

•1 year ago

Mycophenolate and turmeric supplement

Hi, anyone taking Mycophenolate also taking turmeric supplement for inflammation and if so any good? Thanks 😊

Hi, anyone taking Mycophenolate also taking turmeric supplement for inflammation...

•1 year ago

Exercise

Hello thank you for the comforting replies, they really do help.I wanted to ask about exercise. I try to go out walking a couple of times a week. However, I...

Hello thank you for the comforting replies, they really do help.I wanted to ask ...

•1 year ago

Inflammation

Anyone else's inflammation doing this and docs not doing much? ESR?

Anyone else's inflammation doing this and docs not doing much? ESR?

•1 year ago

Ginkgo Biloaba

Has anyone tried Ginkgo Biloba for brain fog and also circulation?

Has anyone tried Ginkgo Biloba for brain fog and also circulation?

•1 year ago

New Diagnosis

Hello I'm Donna, I've been recently diagnosed with Lupus. For approximately 6 years my GP has been treating me for different associated or similar conditions...

Hello I'm Donna, I've been recently diagnosed with Lupus. For approximately 6 ye...

•1 year ago

Lactic Acid

Has anyone here , suffered from Lactic Acidosis, ? Thanks

Has anyone here , suffered from Lactic Acidosis, ? Thanks

larainehudson49

•1 year ago

Profundus and swelling joints

I was diagnosed with lupus profundus 15 years ago now after I lost tissue in both arms. I take hydroxychloroquine and have only had 1 bad skin flare up since....

I was diagnosed with lupus profundus 15 years ago now after I lost tissue in bot...

•1 year ago

tacrolimus

happy New Year everyone! I am about to start tacrolimus and was wondering if anyone had any experience of using this drug. Were there any side effects? Did it...

happy New Year everyone! I am about to start tacrolimus and was wondering if any...

•1 year ago

Bit of a vain question about fake nails

I can't seem to keep either fake acrylic nails or Gel nails on for more than a day or two. I've tried lots of different gel brands and been to different nail...

I can't seem to keep either fake acrylic nails or Gel nails on for more than a d...

•1 year ago

Had anyone had to stop Hydroxy for it causing mild toxicity in your eyes?

wondering if anyone has been told by the eye hospital to stop Hydroxycloroquine and that they’d noticed very mild changes in your eyes due to the Hydroxy? Did...

wondering if anyone has been told by the eye hospital to stop Hydroxycloroquine ...

•1 year ago

Happy New Year, Fatigue and Second ECG Appointment (First 8 years ago)

Hello everyone Happy New Year to you all. I hope you are all doing as well as you can be and were able to enjoy Christmas. I know it's such a busy time and so...

Hello everyone Happy New Year to you all. I hope you are all doing as well as y...

•1 year ago

An interesting read and another reason to monitor lupus patients well. Cardiovascular health.

Someone sent me this article regarding cardiovascular risks and findings. Best wishes Wendy https://www.medscape.com/viewarticle/986381

Someone sent me this article regarding cardiovascular risks and findings. Bes...

•1 year ago

should I worry, I am worried but should I

Before my question BEST WISHES FOR THE NEW YEAR TO ALL 🕊 Amongst many symptoms ,varied and up and down and still no appointment with neurologist after years...

Before my question BEST WISHES FOR THE NEW YEAR TO ALL 🕊 Amongst many symptoms...

•1 year ago

prednisolone and weight gain

From June last year I started to increase my dose from the usual 5mgs, until in early October I went up to 40mgs of Prednisolone for about two weeks. Since...

From June last year I started to increase my dose from the usual 5mgs, until i...

•1 year ago

Reaction to Methotrexate?

Hello everyone, I was wondering if anyone else has experienced this reaction to taking Methotrexate... I started Methotrexate 3 weeks ago and last week I...

Hello everyone, I was wondering if anyone else has experienced this reaction to ...

•1 year ago

Is this another lupus flare ?

I’m a newbie, and am really happy to join this group. Thankyou. I was diagnosed with lupus 12 years ago at a time of stress. Last March I had surgery, and...

I’m a newbie, and am really happy to join this group. Thankyou. I was diagnosed...

•1 year ago

Pain, exercise and weight gain

Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed...

Hi I have tried and failed with trying to be active and managing pain. I have st...

•1 year ago

Rheumatology appointments - where have you gone?!

Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I see a Rheumatologist at Addenbrookes and have done for 7 years. After...

Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I...

•1 year ago

abdominal pain, could it be pancreatitis?

hi all, I have what the drs would call mild Lupus SLE, I’m having a gastric/abdominal pain flare up after thinking I could get away with eating the naughty...

hi all, I have what the drs would call mild Lupus SLE, I’m having a gastric/abdo...

•1 year ago

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