Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2023

Recovery after having covid

I had covid at Christmas. I wasn't to bad thankfully due to the vaccines. I am however struggling post covid. I was wondering how long it has taken anybody...

I had covid at Christmas. I wasn't to bad thankfully due to the vaccines. I am ...

JCZW

•1 year ago

8 Replies

Rheumatology Appointment

Hi beautiful people. I hope that you are all keeping safe and warm in this cold snap. Finlay just loves the snow. He races and skids around the garden,...

Hi beautiful people. I hope that you are all keeping safe and warm in this cold ...

CecilyParsley

•1 year ago

38 Replies

Life insurance

Hello everyone,Please I live an advise of getting a life insurance. I have tried a few times since I was 33 and now am 37. They normally say in their adverts...

Hello everyone,Please I live an advise of getting a life insurance. I have tried...

ijeasike

•1 year ago

9 Replies

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Deep Vein Thrombosis

hi all well 2023 has started badly for me. I had Covid, for the second time, quite badly at Christmas. Following that I had horrendous pain and swelling in my...

hi all well 2023 has started badly for me. I had Covid, for the second time, qui...

BK47

•1 year ago

6 Replies

Update and how do you cope being sociable?

Hey all, I'm not as active as I used to be on here anymore. I'm finally getting back to myself. I've come to realise over the last year that I have changed as...

Hey all, I'm not as active as I used to be on here anymore. I'm finally getting...

LouLamb

•1 year ago

42 Replies

Covid anxiety

Hi everyone. I'm Mags. I'm a 48 year woman who lives in London and with SLE and APS, which I developed when I nearly died of pneumonia. In the last 2 years,...

Hi everyone. I'm Mags. I'm a 48 year woman who lives in London and with SLE and ...

magSLE

•1 year ago

8 Replies

Discoid Lupus Erythematosus

Dermatologist and GP not able to advise with anything. My Lupus has gone from inflammation of the left cheek to hair and teeth loss in patches. My fatigue and...

Dermatologist and GP not able to advise with anything. My Lupus has gone from in...

Clueless79

•1 year ago

4 Replies

PTSD from chronic illness?

Hello lovely people, I’ve been reading recently about the trauma resulting from living with chronic illness. It seems there is a growing body of research...

Hello lovely people, I’ve been reading recently about the trauma resulting from ...

MusicalFurbaby

•1 year ago

10 Replies

Targeting iron metabolism in immune system cells may offer a new approach for treating systemic lupus erythematosus (SLE)

T cells may exhibit multiple metabolic abnormalities in SLE patients. Excess iron may damage mitochondria and this may contribute to lupus. US researchers...

T cells may exhibit multiple metabolic abnormalities in SLE patients. Excess iro...

Naladog

•1 year ago

5 Replies

Symptoms Progressing - Should I talk with my primary care doctor?

Hi everyone, Over the past 2 or 3 weeks my symptoms have been getting noticeably worse. The worst ones have been: Extreme fatigue (like, difficult to...

Hi everyone, Over the past 2 or 3 weeks my symptoms have been getting noticeab...

Hidden

•1 year ago

6 Replies

travel insurance

Hi folks, can anyone recommend a good company for travel insurance? I have tried a few and either been refused outright or quoted a very high premium....

Hi folks, can anyone recommend a good company for travel insurance? I have tri...

redmaggie

•1 year ago

20 Replies

Ongoing symptoms, Weak positive ANA, waiting results for ds dna and rhf, what does it mean and how long till test results?

Hi everyone, I’m not sure if I’m posting in the right place but I googled and lupus came up. I’ve had various symptoms for a long time mainly feeling...

Hi everyone, I’m not sure if I’m posting in the right place but I googled and ...

Amber83

•1 year ago

11 Replies

FREE Joint Pain Programme for people with chronic pain provided by Nuffield Health

Nuffield Health, the UK's largest healthcare charity, has launched a new Joint Pain Programme designed to help people better self-manage their chronic joint...

Nuffield Health, the UK's largest healthcare charity, has launched a new Joint P...

Chanpreet_Walia

LUPUS UK•1 year ago

15 Replies

Flushed cheeks

I have a constant flush to my cheeks that goes up to my temples and makes like a triangle shape on my cheeks but doesn't reach across my nose. Is this still a...

I have a constant flush to my cheeks that goes up to my temples and makes like ...

KateM1985

•1 year ago

2 Replies

Do you live in ROCHESTER or the surrounding area? Join us for our first LUPUS UK Coffee & Chat Group meeting on Saturday 21st January

Join us for our first Rochester Coffee & Chat group on Saturday 21st January at 10 a.m. at St Justus Church, The Fairway, Rochester, Kent ME1 2LT. The meeting...

Join us for our first Rochester Coffee & Chat group on Saturday 21st January at ...

Alida_Bennett

Partner•1 year ago

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Gradual but significant hair loss/thinning with SLE, any help or advice would be amazing!

Hi all! This is my first post on here as I've only just discovered this amazing community exists! It's so reassuring to find it's here. I was diagnosed with...

Hi all! This is my first post on here as I've only just discovered this amazing...

chescatorri

•1 year ago

28 Replies

Support Group in the Cambridge area?

Hi there, I live in Ely Cambridgeshire. Is there a support group covering this area please as I would be interested in joining. Thanks.

Hi there, I live in Ely Cambridgeshire. Is there a support group covering this ...

Purplebox

•1 year ago

1 Reply

Possible Uveitis

Hello all - I'd welcome your input regarding possible Uveitis. As you'll see from my profile, I have a diagnosis of lupus. My main problems are fatigue and...

Hello all - I'd welcome your input regarding possible Uveitis. As you'll see fr...

Ophelia1

•1 year ago

9 Replies

Diagnosis query

Has anyone been diagnosed with SLE without a rash? I have the markers in my blood. Every other symptom but the rash and rheumatologist has decided it’s...

Has anyone been diagnosed with SLE without a rash? I have the markers in my b...

Hidden

•1 year ago

14 Replies

stopping mycophenalate when you are unwell?

hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to stop mycophenalate by rheum for 7 days due to gastro problem. I should also have...

hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to s...

Andfiona

•1 year ago

8 Replies

Access to Work

Hi I am self employed and have applied to access to work for help with aids for managing my symptoms and make working easier. Does anyone know what kind of...

Hi I am self employed and have applied to access to work for help with aids for...

Bobbydoodle

•1 year ago

11 Replies

Prickly Cutie

Hello everyoneJust had to show you this young hedgehog who has an injured back leg. He was taken in by Tiggywinkles Wildlife Hospital in Buckinghamshire and...

Hello everyoneJust had to show you this young hedgehog who has an injured back l...

misty14

•1 year ago

21 Replies

medication

Hi everyone thanks for letting me join I’ve just been diagnosed with Lupas in November and started on methotrexate in the middle of December. I contacted my...

Hi everyone thanks for letting me join I’ve just been diagnosed with Lupas in No...

Murp17

•1 year ago

13 Replies

cellcept tiredness or your side effects?

hi guys I’ve been really poorly lately had the worst flare ended up with fluid on my lung! They have now put me on cellcept and had a depo steroid I’m so tired...

hi guys I’ve been really poorly lately had the worst flare ended up with fluid o...

Sammymoat1986

•1 year ago

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Join the next meeting of our Darlington Coffee & Chat Group on Monday 16th January at 10.30

The next meeting of our Darlington Coffee & Chat group will be taking place on Monday 16th January at 10.30 - see image for further details.

The next meeting of our Darlington Coffee & Chat group will be taking place on M...

Alida_Bennett

Partner•1 year ago

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Hydroxychloriquine side effects

Hi everyone, I’m new to this forum. I was diagnosed with SLE 8 years ago and this is the first support group I have joined. I would appreciate some advice...

Hi everyone, I’m new to this forum. I was diagnosed with SLE 8 years ago and th...

aweebitoflove

•1 year ago

13 Replies

Hello from a newbie

Hi all! After 15 years of Lupus, I've decided to join the forum. I'm one of the 10% males who have the disease. I'm not sure what I expect to get from the...

Hi all! After 15 years of Lupus, I've decided to join the forum. I'm one of the ...

mudglutton

•1 year ago

18 Replies

TMJ/TMD Temporomandibular joint disorder - Jaw problems

Does anyone suffer with this and what strategies do you use to alleviate it? I have been experiencing this pain and stiffness in my jaw recently, to the extent...

Does anyone suffer with this and what strategies do you use to alleviate it? I h...

Larks0ng

•1 year ago

25 Replies

Cold feet

Anyone relate to cold feet and red hot feetThey could not get a pulse at podiatry so I got to go for tests that in the position front part of the foot ankle...

Anyone relate to cold feet and red hot feetThey could not get a pulse at podiatr...

minka

•1 year ago

6 Replies

Genetics Specialist??? Why?

Hey all! I hope all is well. So a bit of backstory. I am DX'd with Lupus (beginning stages but on Meds etc). I have had crazy reactions to CT Scan iodine...

Hey all! I hope all is well. So a bit of backstory. I am DX'd with Lupus (be...

GottaAsk

•1 year ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2023

Recovery after having covid

Rheumatology Appointment

Life insurance

Deep Vein Thrombosis

Update and how do you cope being sociable?

Covid anxiety

Discoid Lupus Erythematosus

PTSD from chronic illness?

Targeting iron metabolism in immune system cells may offer a new approach for treating systemic lupus erythematosus (SLE)

Symptoms Progressing - Should I talk with my primary care doctor?

travel insurance

Ongoing symptoms, Weak positive ANA, waiting results for ds dna and rhf, what does it mean and how long till test results?

FREE Joint Pain Programme for people with chronic pain provided by Nuffield Health

Flushed cheeks

Do you live in ROCHESTER or the surrounding area? Join us for our first LUPUS UK Coffee & Chat Group meeting on Saturday 21st January

Gradual but significant hair loss/thinning with SLE, any help or advice would be amazing!

Support Group in the Cambridge area?

Possible Uveitis

Diagnosis query

stopping mycophenalate when you are unwell?

Access to Work

Prickly Cutie

medication

cellcept tiredness or your side effects?

Join the next meeting of our Darlington Coffee & Chat Group on Monday 16th January at 10.30

Hydroxychloriquine side effects

Hello from a newbie

TMJ/TMD Temporomandibular joint disorder - Jaw problems

Cold feet

Genetics Specialist??? Why?

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